While the lights were off

 Yesterday the power company interrupted our area's power supply to do some works. It was a beautiful day so we decided to just go for a drive.

We ended up in a lovely seaside town called Paynesville. It was a long drive, and I had fallen asleep on the long stretch of freeway as my fibromyalgia was flaring badly. 

The sun was warm on my sore muscles but still too warm to sit out under it, so we parked under the shade of a tree and ate some fish and chips.

The water was quite blue with frothy white capped waves and some black swans floated by, buoyed up repeatedly in them as they searched for their own lunch. It was easy to see how they caught their meal under the water, plunging their long necks under the sea.

The water was maybe only a few feet from our car and it was very soothing to hear the rhythmic pounding against the brick sea break...

The sun shone warmly, our tummies were full and there was a long drive home, so we cranked back our seats and soon were carried to the arms of Morpheus, which wasn't an unwelcome experience, especially as Chris was tired from the long drive and still not feeling the best- and me with my fibro pain and fatigue.

We woke after about a half hour as a dog barked excitedly on his seaside walk. We lingered a bit longer, enjoying the sea and watching a sail boat tacking and slipping into the marina.

Before going home, I walked to the toilet block to be greeted by three black swans and a grey cygnet  drinking from a fresh water spigot and bowl. They were unconcerned as I walked past them and just continued drinking. When I came back out, they were waddling back towards the sea, their barrelled bodies and long necks looking too heavy for their spindly webbed legs...

Continuing on home, taking it slowly, I received a text from our electricity service provider telling us the power had been restored to our homes. We knew it would be back on by the time we got home. That was the plan! 

The house was hot when we got back in the evening, so we opened it up, made a cup of tea,  and fell asleep together on the couch in front of the TV.

The day had been very pleasant, far more so than if we had just stayed home, trying to cope with fibro pain and Chris's shoulder pain. We were glad we had a diversion from our ills and decided to take our little trip to the seaside while the lights were off.

A welcome break

 

So yesterday, just after talking about kookaburras being prolific here, I was washing the dishes at my sink, when a baby kookaburra burst out laughing on my back fence.

As it turned out, his Mum wasn't far away, joining him in a chorus of laughter from my clothesline. By the time I grabbed my phone to record this for you, they had disappeared.

We have a very good feeding ground with abundant water and food in our back garden which has meant a lot of breeding goes on here. We love it.

These agapanthus plants have just blossomed and make a beautiful display in the backyard as well as at my kitchen window.  Some are white, but most are deep blue which is my favourite.

My fibromyalgia is so bad today with the inclement weather. Even my fingers are aching. I am just waiting for my pain killers to work. Not that they do much.

On today's to do list is washing and dishes. So far I have done two loads of washing- dried in the dryer and folded and put away by Chris. I usually do a load a day, but Chris's site where he had an abcess removed bled under the shower yesterday and I had to call an ambulance.

While we were waiting for them, I rolled a clean towel up and we applied pressure to the wound. There was a good deal of blood and when we transferred him to our bed to look at the wound, I had to cover the bed in clean towels to protect it. Consequently I had a lot more washing to do today.

Apparently I did the right thing by applying pressure to his wound and by the time the ambulance got here, the heavy bleeding had stopped. He didn't require going to hospital, thank goodness. But it did give us both a fright.

Even though I am mindful of the amount of electricity using the dryer is costing us, I find when my fibromyalgia is bad that it is actually worth it. In comfort and spoons, money sometimes has to be spent.

My bed is clean but unmade today as I really think I will have to give in to my pain and fatigue and take a nana nap later.

Dinner is farmhouse chicken in the slow cooker. I am so grateful for my hand maidens on days like today.

I am hoping to see the baby kookaburra with his mum again today.  They are always welcome at our place and were a lovely break from the dramas of the morning...

Fibro is the pits!

Some Christmas presents have come early thanks to family who are impatient for Christmas and so today Chris hung my hanging baskets and kookaburra wall ornament up for me.

We have been getting kookaburras by the bus load in our back garden and when I saw this ceramic one, I wanted him for my front porch.

This has given the house more kerbside appeal, and I think the kookaburra is very handsome.

I am psyching myself up to go pick up my grocery order I placed online. It's one of those days where fibromyalgia has reared its ugly head in the form of excruciating muscle pain in my arms and neck.

We will be having a frozen dinner tonight as we had a big lunch. To be honest, I just want to go to bed but that can't happen until after the grocery pick up.

The rain is bucketing down which perhaps accounts for the extra muscle pain. The weather always effects my fibromyalgia....

Better get on with it and rest up afterwards. Fibro is the pits! 

A restful reward

 

With the weather warming up, the fabulous bird life has returned from their migration up north. Every day there's a wide variety of minors, parrots, cockatoos, mudlarks, magpies, rosellas and corellas and kookaburras. And of course, there's crows and their cousins, pied corrowongs.

We keep the bird feeder stacked with seed and we also throw our scraps to them and they literally wait for us. In fact, no sooner is that back sliding door opened, than the magpies alight to snatch away the bread we've thrown. They are almost tame and even knock on the door for us to feed them.

This is so restful and when my fibromyalgia is flaring, I often lay on the couch and watch them. 

Lately, my fibromyalgia has been bad and even though I need to rest during the day, I don't necessarily need or want to be in bed, so I have found bird watching to be something I look forward to. Obviously, if I fall asleep, it doesn't matter. But feeding and watching the birds has a calming effect on me and I love it.

Today my to do list consists of washing a couple of loads of clothes and doing the dishes. I didn't get them done last night and they haven't miraculously disappeared. No, they are waiting patiently for my attention. 

With muscles cramping and spoons all used- obviously part of those waiting to be washed- I am meting out my limited energy with a zeal reserved only for survival these days.

I best get it done, even if it is in short bursts of energy. Eventually they will disappear and I have the birds to watch and amuse me as a reward afterwards.

Country life is sweet

I love our little country township. This is the main street. It consists of a few houses, a Post Office and a general store.

Although very small, the town always has something happening- today it was a nursery stall where plants and vegetables to cultivate are sold cheaply.

It is not uncommon to go to the Post Office and be walking among free range hens, pecking in the nature strip or front garden of the people's homes.

The Post Office is staffed with super friendly people and is pretty busy. Due to small population here, the mail is not delivered by a post man, but is delivered to PO boxes which we hire.

I have got permission from our landlords for Chris to make some waist high raised garden beds and I am planning to buy some vegetable seedlings for that soon.

Just across the Post Office there is a lovely park which has just been allowed to be visited after Covid rules lessened. I will be taking the grandchildren there on the approaching school holidays.

This little Post Office is within easy walking distance from our place. As soon as I get some spoons back with this fibromyalgia flare, I am going to try to walk it there and back. 

If I run into difficulties, Chris will be able to see me from our front porch and he will pick me up.

It does seem laughable that a short walk has to be timed and emergency procedures in place, but such is the life for a fibromite with barely a spoon to stir her aching old bones. 

I tell myself, "It is what it is!" and accept it but it still hurts. It's sort of like having a laugh instead of having a good cry.

I will get to walking it as it's fun to play with the hens who are quite gentle and tame. Country life is sweet! 

Planning to live

 

As you know, I have had fibromyalgia for over 24 years. It never gets better, but by careful planning of my life, I find I can most times live a balanced life.

There are occasions in life that are unavoidable. Sometimes it is of a medical nature like the time I simply had to stir my stumps and get to hospital for my heart stents. It was literally a matter of life or death. No choices about postponing because of a flare- it just had to be done.

Sometimes it is something we have looked forward to and simply can't miss- like our 10am wedding in Melbourne 22 years ago. You may wake up like a train has hit you, but you have to go or life as you want to live it, would take a turn for the worse. As I said, there are occasions in life that are unavoidable. And sometimes, it's worth the anguish! 

Living with fibromyalgia is very tricky. One does not know how one will feel on any particular day, and often accepting an invitation to a social occasion or  keeping a medical appointment is always on a tentative basis. It depends largely on how intense one's pain is at the moment.

Planning to live with fibromyalgia is very necessary and as seen, it is not for the faint of heart. It is necessary to plan and plot moments in our life to allow certain events to unfold.

If I know I have a special event tomorrow, I will plan my menu for the next couple of days to include slow cooker or easy to prepare meals, or I will cook ahead if I have sufficient energy. Or do frozen TV dinners. Housework is set on the back burner for a few days, with me focusing mainly on just doing a load of washing if necessary- and even so, I will use the dryer to save spoons.

As we Fibromites know, after a day out, the next day or two (or three) can bring on a fibro flare and we will be trying to recover and will not be fit for much activity for those days. So we have to plan ahead to include rest.

If we take care to include days of rest after a day out, we should be able to incorporate days out when needed and in so doing, we will be able to feel that we are actually living and not simply enduring or existing.

Medical matters must be attended to look after our health and happy occasions must be attended in order to make memories. If we fail to plan to live, we will always feel that we are on the inside of the window looking out as life passes us by.

 So teach us to number our days, that we may apply our hearts unto wisdom.  Psalm 90:12

Smelling the roses!

 

The last few weeks have been full of drama and it has seen my body collapsing with the mother of all fibromyalgia flares and a (non Covid) viral infection. Most things have been resolved and I have my peace back again. 

I have taken back control of my house in which I had fallen down during my illness, and I have had help from a cleaner from my aged care package. 

A lot of our Corona limits have been lifted and I have been able to see my family. That has helped. More things will be lifted next Sunday and it looks hopeful that we will be able to see family at Christmas.

Chris is recovering well from his surgery and no longer needs special dressing of his wound. In fact, a bandaid suffices now. I am so cheered that he is well. I hate it when he is unwell. 

The days are getting hotter with tomorrow set to be 33deg C but I am not concerned since we aren't going outside and we have air conditioners now.

We saw the doctor today for routine blood results and my blood pressure check as it was high last week. With giving my situation to the LORD and regaining my peace, it was 134/80 and the doctor was very pleased.

We have found a couple of Christian networks to watch wholesome movies and they have been very uplifting. One is New Faith Network for which I pay about $8AUD a month and the other is free for 14 days then $8AUD a month-  ACCTV.net from Australia. 

Chris and I sit of an evening and watch TV together and it all helps to bring stress levels down as well as blood pressure.

We are enjoying our back garden with a return of the prolific bird life that is so colourful. They have returned from their migration north to beat the winter and they are a joy to watch as they come down for the seed and food we leave for them.

Life can be so difficult, but can also be so wonderful: a great deal of the wonder of it all is to take time in smelling the roses! 

Life's looking up!

 

I am a very happy girl today. Our landlords have just put a reverse cycle air conditioner in our bedroom. It is just in time for the summer which officially starts on the 1st December.

It is very difficult to sleep in the front room in summer as it becomes a sauna. With fibromyalgia and a hole in the heart which stops oxygenation of the right lung, the heat just literally takes my breath away.

With a few hot days under our belt already, the timing has been perfect.

I am very happy that we will be able to sleep even during the hottest night. The air blowing on our faces makes it easier to take a deep breath and even on cooler nights, you will find me with a small fan to get that air.

With restrictions being lifted that will allow us to travel this Christmas, I can say that life's looking up! 

Making holiday plans

 

After nine months of lockdown here in Victoria, at last some restrictions have been lifted, paving the way for families to get to together for Christmas and New Year.

Gone are the endless days of watching movies and becoming totally indolent because of boredom and depression. We can now make plans for the holidays.

It was horrid being in a state of limbo due to the Government's tight rein on us travelling because of Covid 19. We didn't know what would be happening this year, but hopefully now we will be able to reconnect with family.

It will be good to travel without being pulled over by the police or defence officers. Shopping for food and presents will be fun, even though we still will have to wear a mask and practise social distancing.

This doesn't really worry me as I do all my gift buying and food online, due to fibromyalgia and heart problems. But it will be great to know that we can actually visit our family instead of posting presents. 

My aged care home help lady has been coming and it is such a relief. I have the place tidy for her and she said our place is fine. Apparently some people won't do anything in their house at all.

I have had Chris receiving hospital in the home care daily and last Friday he was discharged because the wound has granulated sufficiently that it doesn't need packing anymore.

We are experiencing quite changeable weather and my fibromyalgia is off the charts. Along with the chronic fatigue a flare brings.

I am looking for Christmas gifts online and am planning my Christmas dinner menu. We are so glad that at last there is a lessening of active Covid cases here in Victoria and it looks like Christmas will be a time to enjoy with family. 

I am rejoicing and feel alive again, now that I will see my grandchildren and other family and I will take great pleasure in making holiday plans.

Spoons aren't transferable

 

So this morning I needed a shower as I have an important appointment later on in the day. With lockdown and being home most of the time, I have been fairly relaxed about it, but not today.

I did our bloods, gave Chris his insulin injection, ate breakfast and ran the shower. It was heaven on my aching muscles and I let the water run on my sore neck and back. I washed my hair and body and then started to feel weak.

Out of spoons, I sat on the side of the bath trying to catch my breath and get my second wind. It didn't come. 

By the time I had finally got dried and dressed, I was literally shaking and sick with fatigue.

Looking at the clock, I realised that in a few hours I will be leaving the house and walking around. Which normals think as normal, but us sufferers of fibromyalgia and other chronic illnesses know, we have to balance everything in the spoon equation. Once spent, they're gone! 

Sitting down to rest and trying to garner some spoons of energy, I realised once again that I simply cannot shower on days I have to go out to an appointment that simply cannot be postponed. 

You would think after 20 years of fibro that I would have learned that spoons aren't transferable.