Especially during this rough ride..

 

It has been a rough ride over the last few weeks. Medical matters. Living matters. Family matters.

All the stuff that makes up our life at the moment has graced us with both good and bad events.

Firstly, our new doctor has taken my lymphedema seriously and ordered antibiotics for the bad infection that has overtaken my legs. Ignored by doctors until last week. I have had this infection for 5 years! We are so glad we have at last found a decent doctor..

So three days running, we have had to leave home and see doctors and have blood tests. Not a big deal, most people would think. But with struggles to get enough spoons to shower and get dressed, then to actually get there, it is indeed a big deal...

My kidneys are failing with diabetes.. 56. My infection in the legs is sky high. I have been given Clindamycin. I was also given statins which I tried and the muscle pain escalated 100%. I am not taking them. My fibromyalgia muscle pain is more than enough pain! 

The day after the doctor visits, Chris saw the opthalmologist for a review on his sixth cranial nerve palsy. He is no longer seeing double and has been cleared to drive again. We are praising the LORD that Chris's stroke was not too disabling. We both know it could have been much worse! 

And so, this weekend I have been bed ridden. Breathing is enough with the fibro flare and I have had trouble keeping awake. So I slept. and tried not to dwell on possibly having to move out from here..

I am actually posting this at 2am. My circadian rhythm is all out of whack. But I will be needing to try to sleep again in a minute or I will be no good for tomorrow...

Anyway, I just wanted to let you all know that God has answered our prayers with Chris's eyes. Just another chapter of our life when we can see that His Hand has always been on us. Especially during this rough ride..

Enough acid to rival Chernobyl

 

I have been on Somac for GERD for at least 20 years and I have just learned that it has been allegedly responsible for giving stomach cancer and kidney disease to many users.

Honestly, I don't know what to do and so I have made an appointment with my doctor next week to discuss it.

My GERD causes me to aspirate my acid and stomach contents thus inducing aspiration pneumonia three times so far. I am now in a dilemma to know what to do.

There's been a class action in Australia and it seems that many people have suffered after taking it. I will update after I have discussed it with my doctor.

Honestly, it's a bad time to stop using them with being stressed, tired and fighting a long fibromyalgia flare. I pump out enough acid to rival Chernobyl's meltdown.

It's all too much

 

So recently I have had chest pain in angina and breathing problems coupled with what I thought was fatigue from an ongoing fibromyalgia flare.

My blood pressure sky rocketed, requiring a visit to a cardiologist who ordered an echocardiogram. My general practitioner told me if the results were bad, he would contact me. And he did.

I got the call last Friday telling me to make an appointment for a phone consult so I ended up speaking to the doctor on Monday. He told me I have heart failure due to Pulmonary Hypertension.

There is no cure for it but there are some treatments. I am already on blood thinners which I will stay on as PH can cause blood clots in the lungs. I already take 7 blood pressure tablets a day.

I often have felt dizzy and this is another symptom of PH and I feel like I can't get enough air in at times. The time will come when I will probably need oxygen at home.

Forget about exercise- I nearly collapse with exhaustion after walking up our long passage to answer the door.

I will know more tomorrow when I see the doctor in person. This is needful because he wants to check out the swelling in my feet, ankles and legs. I suspect I have fluid in my abdomen too. It hurts and is tight like a drum.

I had a blood test yesterday to check on my kidney function and this will be a regular thing.

Lately it's been one thing after another and I am a tad depressed. Prayers would be much appreciated. It's all too much!