It's a double whammy!

I am flat out resting today, trying to cope with the pain of a flare of fibromyalgia and polymyalgia rheumatica.

Honestly, it's hard enough coping with fibromyalgia flares, let alone PMR as well. And to make it more difficult it's Easter and there are no doctors available, and it doesn't seem to be urgent enough for ER.

Usually PMR fizzles out after about 5 years, but I have had it on and off for 20, often at first mistaken for fibromyalgia. 

My doctor told me that often it leaves the sufferer with neck and shoulder arthritis, but rarely, it can last a lifetime. Lucky me.

The treatment for PMR is prednisolone but I am wondering if I should take it without my doctor's permission. I have to remember that it elevates my sugars and they have  already gotten higher without it.

After a miserable night's sleep, I took a Tramadol which has helped a little. I took paracetamol as a baseline.. I will most likely have a nana nap soon.

The fibromyalgia is making my knees and back ache and where that lies off, my neck and shoulders and jaw with pounding headache take over thanks to the polymyaglia...

All in all, I am a mess and tired of feeling like this... PMR and fibro are bad enough separately, but this is the worst of all- a double whammy! 

It's OK to have a simple Christmas

As you know, I have been having problems with my heart and fibromyalgia. My blood pressure is barely controlled and I am constantly tired.

We have decided to cancel Christmas this year. I haven't even put up a wreath on the front door, let alone, a Christmas tree.

We are staying home and nobody is coming. Contrary to how I would feel in years past, this year's plan gives me peace.

We plan to play games online with my sister and son. There's nothing like a game of online Scrabble with familiar people who are well matched in scores.

None of us is able to attend church these days but that doesn't stop us from worshiping God and remembering Jesus on the day we choose to celebrate as His birthday.

Next week I will be ordering my Christmas food and I will be buying a ham and organic salad vegetables for Chris's and my lunch. I will also be buying some grape juice and matzo crackers, as we plan to take Communion online with my sister and son like we did last Easter.

It is not an ideal Christmas, but with all of us feeling unwell, it is making the best of a bad situation.

We all feel that as long as we remember that God sent His Son Jesus to bear the sins of the world and be our Saviour, then that is what Christmas really is.

Besides, the first Christmas was extremely unpretentious and simple. It's OK if ours is too...

I am no longer a bunny!

 

So Easter has come and gone and so have all my spoons! I have been under the weather all over Easter and have a constant fibromyalgia flare, coupled with spinal pain.

With moving the homemaking help for the elderly stopped and it would take a long time to get it all arranged. We have decided to enlist a woman to clean for us fortnightly again.

This lady is very efficient and friendly as well and although we enlisted her for once a month cleaning, the truth is I need her fortnightly. I can maintain our home in between her visits, but with once a month, the house is needing a more thorough clean and therefore took more than the two hours I hired her to clean.

As always, I hate needing to have help these days, and Chris is too unwell to help me. It is what it is..

You would think that with having back pain for forty years and fibromyaglia and angina for twenty, that I would be more gracious to myself. I should be accepting my lot, but being a woman, I still find my perceived worth as a homemaker is dictated by how fast I spin my wheel without help.

So with my 70th birthday here in a few weeks, I am just going to have to accept my handicaps and be merciful to myself.

I should be glad that I have a husband who agrees to hiring help. A lot of women don't. So I will just stop the pity party and enjoy this season where we can afford her...

And also, when she comes, I am not going to clean the house before she comes... I am a  perfectionist, but no longer... where housework is concerned, I will get the help I need. I'm no longer a bunny!

© Glenys Robyn Hicks

God is my strength and power: and he maketh my way perfect. 2 Samuel 22:33

He works in mysterious ways!

So last Thursday I ordered my online Easter grocery shop. The driver had just taken off after delivering our order and immediately on starting to put it away, I noticed a bag that I hadn't ordered.

In it were four packets of frozen Hoki fish fillets and 2 packets of sweet potato fries and 2 packets of sea salt and rosemary chips.

I quickly rang the supermarket online customer service. There was a wait of an hour to talk to a human, so I "talked" to the AI bot there called Olive.

Olive was of no use to me. She told me to keep the goods as it was the supermarket's fault and accept them with their compliments.

The bot also told me there were no deliveries the next day as it was Good Friday, so obviously there was no way to get the bag of frozen foods to the correct purchaser.

I felt quite sad for the lady as I imagine this was what she had planned to feed her family Good Friday. I had done all I could but I couldn't help but feel sorry for her. I had been in a similar situation last Christmas and it's not nice.

I hope the lady was able to rustle up something else for Good Friday. Seeing as I have the fish and chips here I plan to use them Wednesday when family come up for lunch.

With my fibromyalgia flaring and a recurrence of polymyalgia rheumatica, I don't want to be cooking as I am out of spoons and in pain.

During this particular time, we had no spare money for extras which included Easter eggs for the grandchildren. They get plenty of chocolate, so they won't go without, but it was a bit difficult to not be able to give them any this year.

That extra food will come in handy as I haven't done another weekly shop and can't until next week. I guess the LORD has provided for our needs and for that I am grateful. He does work in mysterious ways sometimes! 

 

It is enough!

Today  is  Resurrection Sunday  here.  Chris and I took  communion  with  my son  and sister via facetime this morning.  

None of us is able to get to church right now, but we had a very moving and worshipful service at home. 

He is risen! Happy Easter Sunday to those who celebrate!

I am short on spoons due to fibromyalgia flaring so I will just be doing a load of washing and cooking meals today. It is enough! 

 

To eat the meat

With Good Friday being on us, often the question of whether or not to serve red meat comes up. Basically the tradition is something the Catholic church adopted and the protestant churches followed... 

Because I have found nothing in scripture forbidding us to eat red meat on Good Friday- or even on Fridays for Christians, I have no problem whatsoever eating it. In fact, when I was worshiping at a Pentecostal church, they held a BBQ after the Good Friday service. 

The  answer  for our house is yes we eat it on Good Friday-  however,  if someone is with us who has a problem with that, we abstain for their sake. Scriptures don't tell us not to eat red meat on Good Friday, but  they  do tell  us  to  respect  the conscience and belief  of  those  who don't wish to.   I  believe like everything in the Christian life, it comes down to loving your neighbour and fellow man. 

This year because my son is living with us and because he upholds the traditions of his childhood when his  (non-practicing)  Catholic Italian  father  didn't eat it,  we will be having fish for lunch.  

If  my  fibromyalgia  flare goes,  our family  evening  BBQ for  Easter is  going to be at  my daughters'  home and eating fish,   because her husband upholds the traditions of the Catholic church. They do not eat red meats on Good Friday. 

I believe we are to respect other peoples' conscience in our decision whether we serve red meats to them. It is the loving thing to do.. Have a blessed Easter!  

 

If any of them that believe not bid you [to a feast], and ye be disposed to go; whatsoever is set before you, eat, asking no question for conscience sake. But if any man say unto you, This is offered in sacrifice unto idols, eat not for his sake that shewed it, and for conscience sake: for the earth [is] the Lord's, and the fulness thereof: Conscience, I say, not thine own, but of the other: for why is my liberty judged of another [man's] conscience? For if I by grace be a partaker, why am I evil spoken of for that for which I give thanks? Whether therefore ye eat, or drink, or whatsoever ye do, do all to the glory of God.  1 Corinthians 10: 27-31

Red meats on Good Friday?

With Good Friday being on us, often the question of whether or not to serve red meat comes up. There is a tradition in the Catholic church that red meat is not eaten on Friday and the protestant churches followed with it not to be eaten on Good Friday.. 

Because I have found nothing in scripture forbidding us to eat red meat on Good Friday- or even on Fridays for Christians, I have no problem whatsoever eating it. In fact, when I was worshiping at a Pentecostal church, they held a BBQ after the Good Friday service. The answer for our house is yes we eat it on Good Friday- however, if someone is with us who has a problem with that, we abstain for their sake. Scriptures don't tell us not to eat red meat on Good Friday, but they do tell us to respect the conscience and belief of those who don't wish to. I  believe like everything in the Christian life, it comes down to loving your neighbour and fellow man. 

This year because my son is living with us and because he upholds the traditions of his childhood when his (non-practicing) Catholic Italian father didn't eat it, we will be having fish. Likewise our family BBQ for Easter is going to be at my daughters' home with fish as the mainstay,  because her husband upholds the traditions of the Catholic church. They do not eat red meats on Good Friday. 

I believe we are to respect other peoples' conscience in our decision whether we serve red meats to them. It is the loving thing to do.. Have a blessed Easter! 

© Glenys Robyn Hicks

If any of them that believe not bid you [to a feast], and ye be disposed to go; whatsoever is set before you, eat, asking no question for conscience sake. But if any man say unto you, This is offered in sacrifice unto idols, eat not for his sake that shewed it, and for conscience sake: for the earth [is] the Lord's, and the fulness thereof: Conscience, I say, not thine own, but of the other: for why is my liberty judged of another [man's] conscience? For if I by grace be a partaker, why am I evil spoken of for that for which I give thanks? Whether therefore ye eat, or drink, or whatsoever ye do, do all to the glory of God.  1 Corinthians 10: 27-31

Home is the new church

So today is Resurrection Sunday when Jesus rose from the dead. It is a joyful day in the Christian calendar and one I look forward to each year.

I am so grateful that Jesus saved me from my sins and that when I die, I will be with Him for eternity. That is a wonderful promise to hang onto in these uncertain times.

This year will see many of us viewing online Easter services and I will be doing that later, but today I will be taking Communion with my sister and one of my sons online. We will be FaceTiming.

We did this last week and it was very fulfilling. What better way of celebrating Resurrection Sunday than by worshiping and remembering Jesus Christ's sacrifice for us all?

I have some homemaking chores to do:

1. Make pumpkin soup
2. Fold a load of washing and put it away
3. Clean my kitchen

I will get to this hopefully after Communion today. I will be taking it under our picture of the Last Supper where Christ introduced Communion as a way for Christians to remember His sacrifice. 

It's quite pleasant to be home doing it: like other things we have to accept for the time being: home is the new church! 

And so Easter is upon us!

Today is Maundy Thursday, the eve of the Crucifixion of Christ. Usually I attend a Maundy Thursday service commemorating Christ washing the feet of His disciples and introducing the first Communion.

Of course with church services being banned, I won't be attending this year, but I will be focussing on Christ and His atoning sacrifice. 

I usually have a quiet time of a morning where I worship God and give thanks for His salvation. Not even Rona can stop that.  I will probably watch church services live streamed throughout Easter as well.

Today I have a few things on my to do list:

1. Go to the chemist and pick up our scripts that were ordered yesterday
2. Clean my kitchen
3. Go to the post office to pick up something I bought on ebay
4. Cook lamb steaks, mashed potatoes and salad for dinner

Obviously not a lot to do, but as much as my spoons will allow today.