Each morning when I get dressed, I wonder what the day will bring. I have learned over the course of time that those days when I have a pyjama day, something crops up and I have to don days clothes in a hurry. So I try to get dressed early in the morning.
Thursday 11 April 2024
I'm a plain Jane!
Each morning when I get dressed, I wonder what the day will bring. I have learned over the course of time that those days when I have a pyjama day, something crops up and I have to don days clothes in a hurry. So I try to get dressed early in the morning.
Wednesday 10 April 2024
A permanent thing
Saturday 30 March 2024
It's a double whammy!
I am flat out resting today, trying to cope with the pain of a flare of fibromyalgia and polymyalgia rheumatica.
Honestly, it's hard enough coping with fibromyalgia flares, let alone PMR as well. And to make it more difficult it's Easter and there are no doctors available, and it doesn't seem to be urgent enough for ER.
Usually PMR fizzles out after about 5 years, but I have had it on and off for 20, often at first mistaken for fibromyalgia.
My doctor told me that often it leaves the sufferer with neck and shoulder arthritis, but rarely, it can last a lifetime. Lucky me.
The treatment for PMR is prednisolone but I am wondering if I should take it without my doctor's permission. I have to remember that it elevates my sugars and they have already gotten higher without it.
After a miserable night's sleep, I took a Tramadol which has helped a little. I took paracetamol as a baseline.. I will most likely have a nana nap soon.
The fibromyalgia is making my knees and back ache and where that lies off, my neck and shoulders and jaw with pounding headache take over thanks to the polymyaglia...
All in all, I am a mess and tired of feeling like this... PMR and fibro are bad enough separately, but this is the worst of all- a double whammy!
Wednesday 6 March 2024
It was good while it lasted!
Tuesday 30 January 2024
I'm in love with my new maidservant
Wednesday 24 January 2024
Helping ourselves
I need pain relief. My doctor's on holiday until Feb 9 so I had a phone consult with his doctor wife. I told her my pain is currently off the charts with fibromyalgia, polymyalgia and both knees paining me badly. I asked for a prescription for Tramadol but she said for me to wait until he comes back!
Too long to wait when you are blown away with pain. So I am going to take some Prednisolone for a few days. I have some in the house.
How is it that people with genuine pain issues who rarely ask for help, are regarded with suspicion and treated like a druggie? it's not fair...
Sometimes you have to go against the medicos and do whatever gives you relief.. (as in taking Prednisolone for some relief) People who are chronically ill and in pain have been known to commit suicide... I can understand why- not that I am going to... just sayin'
We are judged so harshly because of those who rort the system and abuse the drugs.. We have to be our own doctor and help ourselves.
Wednesday 15 November 2023
We need to share the load
Sunday 30 April 2023
Welcome! Come in and lie down!
Tuesday 25 April 2023
I find that very relaxing
If ever a picture epitomises you and your home and lifestyle, it's this one. A lady dressed sensibly and warmly with knitted socks looks out of the window watching the birds feed from the bird feeder.
Her cats also watch, but with ulterior motives, mentally stalking them as prey. She has a cuppa in her hand and seems wholely relaxed.
Like our home, she has a blanket over her armchair, protecting it from the cats and adding a homely touch.
I would love to visit her home as I feel like we would be kindred spirits...
Anyway, today is the first day off the Prednisolone. I tried to halve the tablets but they crumbled. So I will be going off them cold turkey. I was only on them for four days...
My polymyalgia is improving but I still have a headache. I have just taken some paracetamol for that.
The Roombas have been run, I have pulled my bed up, done breakfast, bloods and meds and a load of washing which is now in the dryer. The weather is lovely today and I really should have hung it outside. But the PMR and fibromyalgia says otherwise, so I will have to listen to my body and just go with the flow.
I have a couple of pork chops on the kitchen bench thawing for tea tonight. I will serve mashed potatoes and a salad with them.
I am going to take the rest of the day easy as I have to pace myself.. fibro is raising its ugly head again.
Meanwhile, I will sit on the couch and let the fresh air fan me as I lay in the sunshine on my couch for a bit.
From my view on the couch, I can watch the clouds and I find that very relaxing...
Monday 24 April 2023
It still is that for me!
Yep, it's still Safeway for me! With fibromyalgia brain fog and old age, tell me the new name of a place or person I knew, and it is lost forever... they will forever be the name I first called them!
So I had a phone consult today and the doctor wants to wean me off prednisolone after only four days.. it hasnt really done it's job quite yet, so I am going to spin it out for a few more days ...
Today I have washed some minkie blankets off our beds, ran and then emptied the Roombas, cleaned the toilets and ordered online medicines and groceries.I did some rounds of crochet in between tasks..
Chris loves bangers and mash so that's what I will be doing for tea tonight..
The Prednisolone fills me with fake energy, but I don't care... I will milk this Polymyalgia rheumatica situation for all it's worth! I know I won't be long on the meds so I may as well turn the antsy feelings for my good...and get the benefit of some pseudo spoons!
For those who don't know... in Australia Safeway Supermarkets took on the name Woolworths many moons ago: but as I said, it still is that for me!
Sunday 23 April 2023
A spoon is a spoon!
So my polymyalgia rheumatica has kicked in again, and coupled with a fibromyalgia flare, the pain is just excruciating.
I have decided the pain warrants some Prednisolone so I took 25mg of it these last two mornings. It makes me feel a bit antsy but I can now bend my neck, lift my arms to brush my hair, and the pain around my temples and headache has gone, along with the TMJ.
It is risky taking Prenisolone, but I had to weigh up the pros and cons and decided that I simply couldnt bear the pain any longer.
A happy consequence of it is the fake energy has made me channel it into housekeeping and my house hasnt looked better!
Today I have run the Roombas, washed the clothes and cleaned my kitchen. I am going to do sausages in the slow cooker for dinner tonight.
The steroids are elevating my blood sugars as I am diabetic. It's making me feel drowsy. I can see a nana nap in my future if the Pred will allow me to sleep.
I really dont care where I get my energy from these days: fake energy from steroids is good. After all, a spoon is a spoon!
Sunday 4 December 2022
Invisible illnesses hurt as much as a broken arm.
Saturday 18 June 2022
It's a pain in the neck
Sunday 24 April 2022
We have gone mad!
The rheumatologist suggested to my daughter who suffers from fibromyalgia and pain post chemo, to use it as a distraction from the pain. She was one of these mind over matters kind of doctors. We were not very optimistic to be honest.
As a sufferer of not only fibromyalgia but ankylosing spondylitis, spinal canal stenosis coupled with bad arthitis and angina, I thought it may help me. It helps a little. But Tramadol would be better!
My doctor won't let me have them. Even though he knows I only take them as required for high pain days like today. He gave it to me when my second knee tore and it helped my fibro pain so much. Then he closed shop!
I know there have been many who abused pain-killers but when basic pain relief is available only with a chemist's approval such as Panadol with codeine, it makes life more difficult for the person like myself, to get any relief at all.
With fibro flaring and another episode of polymyalgia rheumatica, I have been tempted to take some of my Prednisolone, but I am worried about the side effects. I tell you truly, I am feeling desperate.
So even though you may see me playing Candy Crush or online a lot, I can honestly say that it's for medicinal purposes. I will be a Candy Crush addict any day if it will relieve the pain.
Just don't tell the do-gooders. If they think we are liable to become addicts, they'll make FB take it off their site! You fellow pain sufferers know they will. We have gone mad in our correctness!
Friday 22 April 2022
Chipping away at the stone
Monday 18 April 2022
He works in mysterious ways!
Tuesday 25 January 2022
Normally abnormal
Wednesday 14 July 2021
Like, sure that will work!
Saturday 5 June 2021
Enjoying some morning sunshine