Pass the onions

So as you know, I am currently on Prednisolone for my polymyalgia rheumatica. Predictably, my blood sugars have skyrocketed because of the steroids.

As I was reading my FB, a reel came up about bringing blood sugar down by eating onions. So I prepared this drink and it was too vile for me to take.

As I had boiled a lot of onions, I added some seasonings and drained them and ate them

Fastforward to evening when I take my sugars and inject my insulin, I firstly noticed that my finger sprayed blood in a fine spotted spray. I thought how thin my blood must be.

Secondly, when I took my sugars, to my surprise they were in single figures after double all day...

So I have made a decision to eat more onions to reduce my sugar readings and keep my blood thin...

I will be using insulin of course, but if my sugars spike especially after taking Prednisolone, I will be asking Chris to pass the onions...

Thank You Lord, for the blessings.

 

So we found out today that  the house has been sold  to an investor.

Apparently we will be able to stay as tenants. To say we are relieved is an understatement.

We are so grateful to the LORD for allowing us to stay. He has answered our prayers.

We are both not in good shape to cope with a move. Chris with his stroke and me with fibromyalgia and polymyalgia rheumatica flaring together..

At the moment, I am still not quite believing this good news... after weeks of uncertainty, it is such a change to relax.

I am so attached to this house.. I have finally unpacked my emotional suitcase so to speak. That rarely happens when you are constantly renting.

Just savouring a cup of tea with my cat by my side, I realise how very very blessed we are.

We would have somehow managed a move- you do what you have to do- but to be able to stay and not have to do anything except pay the rent to a different landlord is a blessing that will go on giving.

Thank You LORD, for the blessings.

I am comforted!

 

I am on fire with pain. Literally from the top of my head to the tips of my toes. I don't believe I am being punished for my sin. Jesus took that for me...

But I do believe that we live in a fallen world and I am genetically weak with many inherited maladies from both sides of my parentage.

At nearly 73, I am unravelling. It is just the facts.. my body is failing me. I am in agony and I cannot get medications that will successfully keep the pain at bearable limits. This is because some who abuse opioids have closed the door on help for everyone who truly needs it.

They don't believe that I need pain relief, but here is a brief description of my pain in mostly every area of my body.

My head: PMR temple pain and headache. TMJ causing jaw pain and earache. Fibro brain fog.

My neck: Polymyalgia rheumatica pain (PMR) Hashimoto's disease.

My skin: psoriasis and rash on shins from lymphedema of left leg 

My shoulders: fibromyalgia and PMR muscle pain. Lymphedema in my right arm (from the angiogram)

My heart: angina, costrocondritis. Hole in the heart. Ongoing IHD

My blood: antiphospholilipid syndrome. (Sticky blood)

My lungs: pulmonary hypertension. Only my left one working.

My stomach: gastroparisis, GERD. Navel hernia repair done with mesh which is tearing away from flesh

My pancreas: failing due to diabetes 2

My kidneys: failing and dropping- currently 56 Makers of 50+ kidney stones

My arms: muscle pain with tearing ligament pain. 

My hands: deformed from osteoarthritis. Trigger finger on left pointer finger.

My back & hips: PMR, fibromyalgia, spinal canal stenosis, ankylosing spondylitis, Scheurrmanns disease. No lower discs left. Coccydynia 

My knees: lymphedema, ligaments torn and a fabella in the right knee. Arthritis.

My legs: fluid from heart disease and lymphedema.

My feet: arthritis, peripheral neuropathy from diabetes, heel spurs

Each day brings more pain. The level fluctuates, but it never goes. And I am still treated like a drug abuser when I ask for pain relief- and this is all verifiable by medical tests.

In fact, the only "help" I have gotten is through a pain management clinic where I was told to play Candy Crush to keep my mind off it. It is a joke. 

In spite of all this, I have had comfort from the LORD. He has helped me to seek truth and set the evil one to flight in moments of doubt. It is easy to wonder if one is being punished during a trial of pain and illness.

Sometimes I haven't even been able to formulate prayers and yet He has calmed my heart and made His Presence felt in giving me a peace.

He has led me to rest in Him, allowing me to drift into a sleep that has seen me restored and refreshed enough to cope during even the most painful of episodes.

His Holy Spirit has reminded me that this too will pass and that Jesus is preparing for me a place of eternal joy and health. And that the suffering I have now will fade in the beauty of His Presence and Holiness where nothing will cause tears and pain and where there is no death.

I have truly felt His Love for me wrap itself around me like a cloak of protection and ownership. 

Sometimes He will bring a song of praise or worship to mind, and I will praise Him in spite of it all. For He is worthy.

Through illness and pain, I have felt a Father's concern and love and I have held on to His Promise that He will not leave me comfortless and will come to me..

The pain is relentless, but so is God's Love and Presence. 

It is true: I am not alone. I am comforted.

© Glenys Robyn Hicks

 I will not leave you comfortless: I will come to you. John 14:18

Hand over the Prednisolone!

I was too afraid to take the 5mg Prednisolone x 3 tablets the doctor gave me Monday for my polymyalgia rheumatica flareup and arthritic deformed hands... PMR has been confirmed.

She said to take it for a week and see how it goes, but I was so scared of the side effects that I wondered if I should avoid it. I know it will raise by blood sugars and I am diabetic. Also, I know it will raise my blood pressure. But still, the pain is rising so much that I really don't have much choice...

I have temple pain with the PMR and I am scared it may go into giant cell arteritis. I had them in my hand that morning, chickened out and put them back in the bottle....

I had a phone consult with my doctor later and I discussed what was worrying me about taking Prednisolone. We discussed the risks and she asked me to try it till Monday when we both go to see her. My ESR was very high (65) so she is pretty sure it's PMR back again. So this morning I took them.

It's evening now and I am exhausted but feel a bit edgy so I am not in bed yet. I know this will sound untrue, but this arvo I have been able to move my thumb and bend my fingers for the first time in months! I hope it continues...

Twelve hours in, in the midst of this battle with pain, it seems like a miracle cure! I am a new fan. I am glad now that I weighed up the pros and cons as I weighed my burgeoning body.

Unable to hold a cake knife, I shouted to my husband, "Hand over the Prednisolone and no one gets hurt!” as I reached for a piece of comforting cake.

I am the victim!

I need pain relief. My doctor's unavailable  so I had a phone consult with another doctor. I told her my pain is currently off the charts with fibromyalgia, polymyalgia and both knees paining me badly. I asked for a prescription for Tramadol but she said for me to wait until he comes back!

Too long to wait when you are blown away with pain. So I am going to take some Prednisolone for a few days. I have some in the house.

Sometimes you have to go against the medicos and do whatever gives you relief.. (as in taking Prednisolone for some relief) People who are chronically ill and in pain have been known to commit suicide... I can understand why- not that I am going to... just sayin'

How is it that people with genuine pain issues who rarely ask for help, are regarded with suspicion and treated like a druggo? it's not fair... 

We are judged so harshly because of those who rort the system and abuse the drugs.. God knows, we aren't druggos.

Yet here I am, suffering indifference and suspicion because of those who abuse drugs. I only ask for help when I can't stand the pain any longer, and when I do I find less compassionate treatment than those who do abuse them.

I carry a constant burden of pain because others refuse stop abusing the drugs I need during times of uncontrolled pain.. In this, I am the victim!

I feel sick at the thought

 

So a couple of days ago, we had a visit from a real estate man with the news that the owner of our rented home is selling.

We have been here for 16 months. Our bodies are still feeling the effects of the move. So receiving the news made me feel physically sick.

Chris has recently had a stroke and is recovering slowly from it and I have grossly swollen legs and right arm from lymphedema.  We need this move like a hole in the head.

It was strange that I had just said to Chris that morning that I feel like this is the nicest home I have lived in and that I have emotionally unpacked my suitcase... then this.

I have been praying that the home is sold to an investor so that we can stay here. But I can't see them refusing a sale if it's not.

Then of course, maybe the LORD has something planned in moving that we don't know about yet. So I have prayed in the sense of  "not my will, but Yours be done!" 

I am currently having the heat of lymphodema, polymyalgia rheumatica, angina and back pain, all marinaded in a fibromyalgia flare that has me wanting to stay in bed a lot.

Also, the worst of this is that we are in limbo... we might stay. or we might go. 

I can hardly type the word go... because truthfully, I feel sick at the thought.

Dusting off my wheelchair.

 

Last week my knees both popped out as I was gingerly walking up the passage to answer the door.

I can't tell you how painful it was, but what I can say is that it reduced me to tears and I am not a woman given to crying.

As you probably know, I have ligament damage to both knees which due to co-morbidities, they cannot be repaired.

Chris immediately brought me my walker and after getting my breath back, I limped to the kitchen table and sat down.

It's now the final straw in the pain stakes. With heart and lung issues, plus severe fibromyalgia and polymyalgia rheumatica, and now my latest challenge, lymphoedema, it all became too much.

I have my wheelchair in the garage. I havent used it much but it will have to be used now. My mobility aid scooter is OK but I cant take it into the shops.

Chris read my thoughts and is out in the garage, dusting off my wheelchair...

Because of motherly love

 

Life has been tough lately. Fibromyalgia has come with a vengeance as the weather here in Australia is so changeable. It is our autumn or fall.

A Fibromite will tell you that weather effects your pain. Coupled with some family circumstances wherein we now have another person living with us, there's not only more stress but more work.

To make matters worse, my Polymyalgia Rheumatica has returned and my knees go out of joint frequently. Pain is my constant companion.

In spite of this, I try to keep everything up to date, especially the dishes and washing.

Last week I had to cancel our cleaner because I had an urgent appointment, so today I have my Roomba going around.

I have a dryer full of clothes that need to be removed and put away. There's another one to follow.

For dinner I am planning to cook some steak, mashed potatoes with vegetables and gravy. Then it will be another stacking of the dishwasher and a lay on the couch for a while.

Not for the first time, I am glad I don't have little ones to look after now. I don't think I would manage it. It's a young person's game.

Thoughts and prayers go out to the young mothers who have a chronic painful illness. The only concession I used to make was doing my housework in my dressing gown or bathrobe instead of being in bed.

Kudos to all of us who battle on because of  motherly love. You are the true Sacrificial Home Keepers.

Bells and whistles

 

I was deep in thought on my computer this morning when something started beeping in the house.

Chris called out to me asking what went off. I did a mental check going through the chores I was currently doing. Or I should say, that my appliances were doing for me.

My washing machine was still washing. I wasn't using my oven. My robotic vacuums were fully charged waiting to be instructed on when to start cleaning. My dryer was not in use. The air fryer was not in use....

I asked Chris if he had left the fridge door open... he hadn't. There was only one thing it could be: the dishwasher. It was! 

It was such a relief to locate the beeping sound. Doubly a relief that the dishes were washed. Now we could find a clean cup to have a cup of tea.

I have had many painful conditions attack my body at once- fibromyalgia, PMR, TMJ and knees that keep wobbling out of place and my lymphoedema is so active that I can't wear my usual slippers. My feet and legs are too swollen.

Along with these painful conditions has come the need to sleep around the clock. So I have been remiss in keeping the dishes washed and ready and although I have been washing our clothes, we have been living out of the laundry basket. 

I know that's not ideal, but chronic illness and consequent no spoons has dictated my pace. When one has constant chronic pain, one's attention span is short and the beeping helps bring my attention back to the task at hand. As always, I needed a clean cup to make my tea this morning.

But I digress- back to beeping- I am glad my applicances bring me back into focus and come with bells and whistles..

It is what it is

 

So while I was still asleep, just after sunrise, Chris took some photos of our back garden.

He told me there were about 40 corellas eating the birdseed and meat scraps from dinner that I threw out after dinner.

Later on some rosellas joined them and after they left, the sparrows came down. Our place is like an airport.

Later on our cleaner from the Aged Care Provider is coming for a couple of hours and I will be straightening up the kitchen and loading the dishwasher as soon as I finish talking to you.

The washer's already going as I am washing some bedding for her to change the beds today. Of course, I will be using my dryer.

With fibromyalgia and polymyalgia rheumatica, I always use it. I have tried using my clothesline but the pain is really debilitating and I can't bear it. Like I always say, it is what it is.

First we have coffee!

 

As you probably know, my twin sister is ill and has been living with us for the last five months.

She has now moved into her own new rented home and my son, her carer has moved in with her. She's in need of a carer.

Helping her has left both Chris and I spoonless and that condition is not going to improve any time soon. We have now found a new rented home two minutes away from them and the move is happening in a few weeks.

Although we feel the effort will be worth it, finding the spoons to move is a hit or miss thing. I must force myself to keep going.

I am suffering from an expected fibromyalgia flare, my knees are hurting and I cannot move my neck thanks to polymyalgia rheumatica. 

I am happy to be moving but not so good with the pain. But I pace myself taking frequent breaks and drinking endless cups of tea.

My kettle is constantly boiling for a cuppa and it is the first thing I do each day. I join millions of others in enjoying to lifting qualities of coffee or tea to start each day.

Like I read in a book, "First we have coffee!", it has proven to be true for me, only my uplifting beverage is tea! 

A common thread

 

I recently saw this beautiful painting that evoked happy memories of both my childhood and my mothering days.

With a large family of seven to wash for, I usually washed three loads of laundry daily and hung it out.

So many years ago,  and a time when the days were long but the years were short. Now mostly a distant memory. I now longer can hang my clothes out.

Fibromyalgia and polymyalgia rheumatica has put paid to hanging the washing on the line. Flexing my sore muscles is so painful these days. I am forced to use the dryer.

I really loved the smell of line dried clothes and delighted in this painting with the children in the yard. 

Hanging the clothes out to me is synonymous with family life. It speaks of service to family, activity and life.

Globally, I think we can all concede that washing on the line is a common thread that unites the human family.

I am already there!

   

In a few days I will be turning 71. It's been a bumpy ride punctuated with bursts of hard work in raising 5 children punctuated with the misery of chronic illness adding to the joy.

I think it's normal to feel tired in your seventies, but when one has fibromyalgia, polymyalgia, heart disease, spinal problems, diabetes and pulmonary hypertension as constant companions, well- it makes me tired just thinking of doing the smallest task.

Lately I have been reflecting on my life and trying to simplify it even more than it is now. And I have done a few things to avoid feeling false guilt and perfectionism.

I have unfollowed all my online groups for cooking, housework and household tips and decluttering. I still do these things, but at a snail's pace. I don't have to add to my perfectionism by fueling it.

I have also unfollowed all my feeds for pregnancy, childbirth and breastfeeding as it tends to make me nostalgic for something that is no longer a part of my life.

Similarly, I have gotten rid of household check lists and calenders about homemaking routines. They never work for me as I am so often out of spoons due mainly to fibromyalgia flares.

All my married life I have written out meal menus but now that Chris is very often not hungry or at least is very picky, I must cook to adapt to his fancies for dining thus invalidating my menu plan..

Always an Aldi girl, I now shop for groceries totally online, visit my doctor via phone consult, order  my prescriptions online and pay all my bills online.  

I rarely leave the house these days. Everything is slowing down for me these days and I need it to stay that way. 

Even with help once a fortnight for housecleaning, I find just running the home during the two weeks between cleans physically taxing. 

As I said, I think it's OK to slow down when you age...and I am no longer like the fairy godmother... managing my home easily and without much effort. 

I just have to accept that like the fairy godmother I am not getting old: I am already there! 

I'm a plain Jane!

Each morning when I get dressed, I wonder what the day will bring.  I have learned over the course of time that those days when I have a pyjama day, something crops up and I have to don days clothes in a hurry. So I try to get dressed early in the morning.

I don't worry with makeup and just brush my hair. I have dresses that have sleeves and some that don't. So I can dress according to the weather. Or according to my rapid body temperature. Thanks to fibromyalgia, my thermostat's broken.

Not a great fan of jewellery, I just wear my wedding ring and usually I just wear some stud earrings of a matching colour as my dress. Usually I am home, so I have some pretty bibbed aprons that I match up with the colour of the day.

Most times because of foot swelling, I go around the house barefoot, but I do have some black Skechers I wear when I go out. I don't wear socks or stockings. 

These clothes work well for me- tidy, plain and modest and easy to wear and wash. No ironing. 

I would love to have long hair but I lost a lot of it due to illness and now I find it easier on my arms to keep it short. My polymyalgia won't allow me to raise  my arms, so my hair's short.  I wear it in a pixi style which is like my clothes, easy to manage.

I would say my style is plain but tidy. And when you are chronically ill and in pain, it is enough. 

It's a good job today's clothing is not reliant on stays and corsets and many buttons and ruffles, because I just couldn't stand long enough to get it all right and I just don't have the patience. Also, I need to breathe freely and I know I couldn't with a corset! 

I really aren't that great to look at, but I look feminine and that and clean, tidy and modest is OK. I guess you could call me a plain Jane! 

A permanent thing

 

So I haven't been feeling the love for weeks now. In fact I seem to be enduring the mother of all flares with slight variations on the depth of the flare.

My polymyalgia rheumatica seems to be going but the fibromyalgia pains and fatigue and brain fog are still draining me with their presence.

I wonder when the fibromyalgia pains will abate like my PMR. But they don't. Ever.

So I was reading over the blog trying to recall how long this current flare has been going on, and it was no surprise that it has come hot on the heels of the one before that. In fact, I don't think it ever went.

I got to thinking that maybe they aren't true flares. Maybe it's one continual run of severe pain with only a slightly better day thrown in here and there. But no real breakthrough. It makes sense.

It makes sense that's why I constantly start each day in severe pain and enjoy no spoons to think of because I am in a major flare. One that never goes away.

The only difference between "flares" is that I may have managed to chuck some washing in the machine or put a couple of appliances back where they belong. So I consider myself not flaring.

The only time I get any relief is when Chris rubs my sore feet- and fibromyalgia also is to blame for that, vying with peripheral neuropathy from my diabetes.  I usually fall asleep for a little while.

Sleeping brings no real relief as I wake myself in pain trying to move in my bed. It's a viscious cycle.

I hear so much about having a rest or nana nap when it gets really bad, but any Fibromite will tell you that you often wake up worse than before and your muscles feel like it's early morning again.

If I did manage to get comfortable I think bed could easily become a permanent thing- along with my so called fibromyalgia flares. Because they definitely are for me, a permanent thing...

It's a double whammy!

I am flat out resting today, trying to cope with the pain of a flare of fibromyalgia and polymyalgia rheumatica.

Honestly, it's hard enough coping with fibromyalgia flares, let alone PMR as well. And to make it more difficult it's Easter and there are no doctors available, and it doesn't seem to be urgent enough for ER.

Usually PMR fizzles out after about 5 years, but I have had it on and off for 20, often at first mistaken for fibromyalgia. 

My doctor told me that often it leaves the sufferer with neck and shoulder arthritis, but rarely, it can last a lifetime. Lucky me.

The treatment for PMR is prednisolone but I am wondering if I should take it without my doctor's permission. I have to remember that it elevates my sugars and they have  already gotten higher without it.

After a miserable night's sleep, I took a Tramadol which has helped a little. I took paracetamol as a baseline.. I will most likely have a nana nap soon.

The fibromyalgia is making my knees and back ache and where that lies off, my neck and shoulders and jaw with pounding headache take over thanks to the polymyaglia...

All in all, I am a mess and tired of feeling like this... PMR and fibro are bad enough separately, but this is the worst of all- a double whammy! 

It was good while it lasted!

So yesterday I woke up without the usual muscle pain and fatigue that characterises fibromyalgia.

I sensed that I had some spoons in abundance and I was in a quandary as to how I could best utilise them without giving myself a flare the next day.

I decided it would be sensible to pace myself which is what I did at first... I say at first because like all good intentions, they can fall by the wayside. And they did.

There was so much I had put on the back burner and left undone. But then it was a long time since I had any energy and to be honest, I was so used to living with chronic illness and fatigue that feeling energised seemed "abnormal"

So I started a load of washing and cleaned out Xena our cat's litter tray. Then I hung out the finished  load of whites... also something I have had to forgo due to no spoons and pain.

I rummaged through the fridge and cleaned out the out of date food. Then, remembering to pace myself, I made a cup of tea for us both and decided we needed some cookies to have for afternoon tea.

After I made a batch of cookies for the afternoon, I brought in my washing. It dried quickly because the weather has been rather warm.  Too warm in fact.

By the time I came back inside, I was wilting. My spoons were dissipating! Quickly! 

My muscles and back started paining me and it hurt to turn my neck thanks to polymyalgia rheumatica.

I left the clothes in the laundry trolley and kissed thoughts of ironing my pillow cases goodbye. I had so wanted to do that too... just one of the jobs that I had to put on the back burner, put back again..

Chris made me a cup of tea and I took some Tramadol. I only use them for top of the range fibro flares and knee pain.

As I sat sipping my tea and waiting for the Tramadol to work, I realised that I hadn't got much done in spite of some spoons. 

Xena had a clean litter tray. We had some cookies to wash the tablets down. The fridge had no science experiments but didn't get a thorough clean. And I hurt so badly for so little! 

If I ever get another day with some spoons, I will not bother to hang the washing out... I nearly always use the dryer since fibromyalgia found me. And I know my poor old broken knees will thank me for not walking so far up the back garden to the line.

I guess I can sleep on unironed pillowcases.. it has been known  to happen! And as the pain relief finally kicked in, I decided that you can't really win with spoons. They are devious little dictators!

Chronic illness is not for wimps and I refuse to give in to depression. I think all things considered, I do a reasonable job of keeping our home nice. 

Still it was great to wake feeling refreshed and alive! It was good while it lasted! 

I'm in love with my new maidservant

As you probably know, I cannot bend anymore. Thanks to back issues and torn knee ligaments, bending is a thing of the past.

I had a front loader and it was so difficult bending to load and unload it that I opted to sell it and buy a top loader.

As I am 4' 10", I have problems getting garments out of large machines, but I need one large enough to wash my doona and pillow in.

I ordered a 8kgs Haier machine and I am so pleased with it. It is large enough to wash bedding and yet small enough that I don't need a step ladder to reach inside it.

Muscle pain from fibromyalgia and polymyalgia rheumatica is lessened with washing with this new machine as I am not bending as with the older one or stretching to fetch a left over sock in the tub...

It probably is silly to some people that I post about my new maidservant, but it has saved me quite a lot of pain and expense. To wash bedding, I used to have to go to the laundrymat, which is very pricey these days.

It actually is a thrill to be able to add the leftover facewasher or something into the already started load and I love watching the clothes move smoothly around the tub. Unlike the front loader which just made me ill if I watched it too long...

I didn't realise how much I missed the simple pleasures of watching the clothes come clean. I guess you can say I'm in love with my new maidservant!

We need to share the load

Sometimes I feel guilty for letting off steam at times but I really believe I could have a bit more support than what I am getting. 

We sometimes have words during my fibromyalgia flares and when I have polymyalgia rheumatica at the same time, it can make me scream in desperation. I just want a hand. It helps me emotionally as well as physically and I feel nurtured.

I know my husband is unwell and he has my understanding and utmost sympathy. But sometimes, the pain gets so bad and I have so little spoons that I will yell at him to come and make his own cup of tea or whatever.

After words,  I often cry because I aren't usually like that.  Pain changes people.  Especially unrelenting pain. And unrestorative sleep. Especially that.

Yet, to those who don't know the desperation that pain drives you to, they would just think I was being unreasonable and using my fibro to elicit a response from Chris. 

It's not that at all. Our health issues mean that there are times when we have to help one another. And lately when Chris is not well, I find I am left to push myself beyond my own comfort level while he sleeps on the couch.

His pain is not at the same high level mine is. His health issues relate to other issues regarding heart problems. But his issues are difficult for him to bear. I know that. 

Chronic illness in both people in a marriage presents its own problems. Each one having pain that makes the eyeballs bulge, causes arguments of who's pain or condition is worse than the other's. A form of validation if you will.

But here's the scoop about chronic illness. It's not a contest. Just another thing about chronic illness that most don't understand. We need to share the load.

Welcome! Come in and lie down!

                                                    

So yesterday we  had plans to visit my son and my twin sister who share a house together..I had been looking forward to it for a while.

When it was time to rise, I didn't feel well enough to go and it was only because I had to deliver some medications that I made the effort to leave the house. My fibromyalgia and polymyalgia were both flaring and my body was missing the Prednisolone...

On our way there, I kept falling asleep, only waking up when the seatbelt garrotted me... I felt weak and disoriented.

By the time we arrived after a 40 minute drive, I couldn't focus and after ordering McDonalds online for lunch, I fell asleep at my sister's computer.

We ate lunch and I still felt like my head was full of cotton wool and my muscles especially in the neck and shoulders were so sore I nearly cried.

My twin and son who has chronic pain issues from a work injury and fibromyalgia, told me to go and lie down in her bed. My sister joined me and my son went to his room, leaving Chris to watch TV and/or sleep.

I don't know how long I was asleep, but Chris came in and asked to go as he was feeling unwell with his high sugars and wanted to go while it was still daylight.

We quietly let ourselves out and took the scenic easy route home...and I slept on and off throughout the journey...

Next week my twin and I will be 70 and they are planning to come to our place. Although I am looking forward to seeing them, I know it will be a shortlived visit.  

Chronic illness in the form of fibromyalgia, polymyalgia and lupus for her, dictate our lives somewhat... in spite of the best intentions, spoons dictate rigidly and always win.

We will eat, they will leave to go home to sleep. It looks very like I will be saying, "Welcome! Come in and lie down!"