Tuesday, 9 June 2026
Part of your tribe
Tuesday, 26 May 2026
A personal battle
Those of us who suffer from chronic pain and illness probably will find that taking a shower is not only an exhausting experience, but a scary one as well.
With spoons scarce and a fear of injuring oneself in a fall or having a heart attack or breathing difficulties whilst under it, we can put taking a shower off for quite some time. Especially as well, during a flare up of fibromyalgia..
With this in mind, I did some reading up about this personal battle and I came across a really informative blog by a hospice nurse. She has some really helpful information which I intend to try...
I have been doing washes at the vanity sink and I have been helping Chris with his bathing as well. We also brush our hair and teeth and change our clothes each day. So we never get to the point where we smell. But it is still important to wash our bodies and hair.
In the past I have bought these bath sponges that require no soap and just a little water. Or none. I have tried these ones called Scrubzz I found that they fluffed up after adding water so I am trying the foam by Scrubzz
I do have trouble washing my hair due to mobility issues with fibromyalgia and polymyalgia rheumatica. It is simply too painful for me to raise my arms.
Today I learned of a new Scrubzz Shampoo Caps. Shampoo with water in a cap that does not need a rinse or leak and can be used even in bed.
I am sharing this with you so that you don't feel alone if you also suffer fear of showering. If it helps you it will be worth the embarrassment of sharing this very personal battle.
Wednesday, 13 May 2026
Back to basics
As you probably know, life has been really hard for me both physically and emotionally. Chronic illness is never fun.
But life must go on and that life for me is as a wife, and home maker. So it is normal that I would sit and ponder on how I can best use my few spoons or energy and continue to care for us both as well as our pets and home.
I have had to prioritise our basic needs in order to keep our home clean and our bodies clean and fed.
For me I need to daily organise our meals and medications and feed our cats and birds.
In order to do that, I need to menu plan and then shop online for supplies.
I also need to do a load of washing each day. With polymyalgia rheumatica and fibromyalgia still hurting, I use the dryer.
To keep a roof over our head and utilities and food coming, I have to organise our budget and pay the bills.
I need to organise our medications into pill organisers and get any repeat prescriptions dispensed.
If this necessitates a doctors appointment, I have to make a booking for a phone consult. Every second day we shower and help each other..
With my Aged Care Home Package, I have a cleaner come for 2 hours a week and she does what I simply cannot manage anymore. She changes our beds, cleans the kitchen benches and stovetop, dusts and cleans our showers, toilets and floors.
The day before she cleans, I change the tablecloth, clean out the kitty tray and wheel the bins out for collection. The cleaner brings them in for us.
Every morning I run the Roomba to pick up crumbs and cat's fur. Then with my spoons almost gone, I lay on the couch and Chris rubs my feet to get the lymph fluid off my ankles. And I sleep.
I refuse to feel guilty for needing to sleep or for keeping my swollen legs and feet elevated. I am doing the best that I can. I am not lazy, just a worn out old Sacrificial Home Keeper trying to get back to basics.
Monday, 30 March 2026
Spring cleaning: one spoon at a time!
My blogging friend, Paula Short has written a wonderful post that may help other Sacrificial Home Keepers...
Spring Cleaning Small Spaces: A Gentle Guide for Those Navigating Chronic Illness or Aging
The warmth of spring is in the air, bringing with it a sense of renewal and often, the deep-seated desire to “spring clean.” But for those of us living in smaller spaces, especially when managing a chronic illness or navigating the realities of aging, this annual tradition can feel like an impossible mountain to climb.
The good news is that with a bit of strategy, a change in perspective, and a whole lot of self-compassion, you can achieve a refreshing, revitalized home – one baby step at a time.
This post is for you – the warrior managing fatigue, the grandparent wanting to clear clutter for safety, and anyone who feels the “itch” to renew their space but needs a realistic approach. Let’s find a way to breathe fresh air into your home, together. Read her article here...
Spoons and grace and a lighter load.
Monday, 9 February 2026
I love being a sacrificial home keeper!
I am nearly 73 and I find that there is true contentment in staying home.
Keeping the home clean and attractive is time and energy well spent and I find that it gives me a great sense of peace.
Housework is spiritual and for me keeping my home in order is good for my sense of accomplishment and peace. A messy or dirty home depresses me no end.
I have been blessed to be able to stay home for twenty years as my many illnesses saw me needing rest. But for me it has been no hardship.
After my first marriage ended, I felt lost. I missed being a wife who could stay at home but life dictated that I provide for myself and so I went to work until I met and married Chris 29 years ago.
He was happy to look after me and as illness came to stay he encouraged me to stay home. He also was happy to come home to a nice meal after the work day ended.
I believe that chosing to be a stay at home wife is God ordained and is still a goal that can be achieved with careful planning and management.
This is one definition of what a housewife is:
Housewife:
A married woman who stays home.
This is a lifelong vocation.
It is an old-fashioned term,
and something to be proud of.
Not a "domestic engineer."
Not a "home manager."
An old fashioned housewife,
who keeps the home,
and abides there.
I don't know how I managed to work with all my illnesses and I daily praise God for making it possible for me to stay home.
May He do so for you too if that is what you seek... as for me, I love being a Sacrificial home keeper!
Wednesday, 4 February 2026
When your bed is calling your name.

I am not saying that I don't ever have days where I cannot rise to the occasion and follow them, but on the days that I have a small amount of spoons and motivation, knowing my priorities helps me know where to start in the overwhelm...
My priorities on days when I have enough energy to make an effort in doing housework, are cooking, dishes and washing. Everything else can wait.
So instead of being a slave to my routines and house, I allow myself to let a lot slide on bad days. I refuse to feel guilty for something I have no control over.
Instead of hating my routines, I have come to welcome them for they give me peace and direction, especially during a fibromyalgia flare with brain fog.
I have learned a lot in the three decades I have been a fibromyalgia sufferer, and I can honestly say that sticking to the basic routines will help you cope with it all.
If I (however loosely), can follow the basic routines on a bad day, at least we will have been fed and have clean sheets to slip into when fatigue kicks in and our bed is calling our name.
Thursday, 4 December 2025
Dwelling in acceptance and peace
So over and over again lately, I have had to have a nana nap in the afternoon. I simply can't stay awake all day.
In the past, I have tried to push through the daze and thick fog of sleep deprivation, only to find the fibromyalgia flare, angina pain, neuropathy and endless pills to keep me functioning put an end to it.
After 25 years of fibromyalgia and other chronic illnesses, I have decided that the spoons win. I have given in to their control. I now plan an hour or two hours sleep in the day.
After the daytime sleep, I find I can function enough to cook dinner and feed the cats.
I think being nearly 73 years old doesn't help either. I talk to my friends who suffer no chronic illness but are the same age as me, and they are finding a nana nap is indispensible.
Another strange thing I have noticed is that I seem to have a better quality of sleep in the daytime. As a result there is more restorative benefit from giving in to the fatigue.
I have decided to once and for all accept that my body needs extra sleep and learn to live with it.
By taking a nana nap, I find that the spoons don't win entirely. Sleep truly is a gift from God...
Psalm 4:8 In peace I will lie down and sleep, for you alone, LORD, make me dwell in safety.
I know at this season of my life that I can take that nana nap when I need to or leave the clothes to be folded another day. Likewise I can go to bed as early as I want... there are no schedules to keep.
Each day brings its challenges but even so, I am glad to be here...life is still sweet!
Even in this quiet season of my life it is very comforting to know that I am just where God wants me to be-quietly dwelling in the simplicity of acceptance and peace.
Friday, 21 November 2025
Our newest family member
So we have just adopted our new sibling for our white cat, Xena. Like most new additions to a family, there is an immediate reaction of rejection, forcing our new male cat Milo to hide in fear.
Most times Milo will venture out from behind the couch when we call him. He comes to sniff our hand and stays long enough for a quick pat on the head, but that's it.
We are hoping that he and Xena will eventually get on and we console ourselves that it is early days yet.
Not particularly wanting another cat, we couldn't resist taking him off family member's hands as they no longer wanted a cat. We couldn't bear the thought that he would be taken to the pound and maybe euthanised.
Chris and I love cats and with both of us being chronically ill, we find they help us relax and increase our enjoyment of life.
We both agree that the joyful company of two felines will be worth any initial trouble between Milo and Xena and the extra fibro pain as I clean up after them.
If it doesn't settle, down we figure that Milo needs us as much as she does.
So far today I have made an apple pie with Hermesetas for sweetening. On the stove a Dutch oven holds my pumpkin soup.
I am hoping the enticing smells will make Milo hungrier as he hasnt touched any food since he got here.
Xena has eaten but is now on the guest bed chasing the sun... obviously keeping her distance from our newest family member.
Thursday, 13 November 2025
Advice put into action
Monday, 13 October 2025
New favourite things
So I have recently prioritised some things in my life which thanks to ageing and illness, have become my favourite things.
My most favourite thing is my new Roomba 105 which is really nifty. I never have to touch it. I control it from my phone and it maps my home.
It follows a set routine for each day and empties the dustbin by itself. When needing to charge, it does that autonomously too. I love it.
My daughter-in-law gave me another air fryer. I am now able to fry meats in one and chips or something like that in the other. This makes cooking dinner so much quicker and easier.
And speaking of dinner, I have found an easier way of using my slow cooker. I have plugged it in the walk in pantry and it saves not only benchtop space but pain in my back. Sometimes just tweaking something as simple as where to store or use an appliance, can take some of the pain of the chore away.
With frequent fibromyalgia flares I find getting comfortable in bed difficult, but my new pillow top mattress cover has added some extra softness and makes sleep possible.
I have made good use of Temu wherein I have purchased some gadgets to help my hands when cooking. I have a rubber tipped stick/spoon that helps me mince my beef mince when cooking. This helps me so much with my arthritic fingers and wrists.
Also, I have found a friendly nearby pharmacist who delivers my meds and who will even pack them in Webster packs when the time comes that I need help. This service both for delivery and organising my meds in packs are free services.
It's nice to reflect on the good things in life and bring to mind my new favourite things...
Wednesday, 25 June 2025
Made with Love
Saturday, 15 March 2025
Don't let them dictate
I have been very ill off-and-on for several weeks now. But I needed to drag myself out of bed and "Make an Easter for the Family" as Connie Hultquist would say. I will be okay. My husband (who is disabled) and I learn to live in pain and suffering. He will say that he is going to suffer whether he is doing something in life, or sitting still and hurting. He chooses to do things and live, rather than do nothing and suffer. He will suffer no matter what. But we put on a happy face and enjoy the family and our home and all the wonderful blessings we have. Mrs White of Legacy of Home
As a chronically ill woman, I have seen two lots of sufferers- those who feel like Mrs White and I and those who take to their beds and surrender to it.
Just because the former types of ill people push on as much as humanly possible does not mean that their illness is all in their head and therefore subject to discipline of oneself.
It means that they realise that they may as well try to live as normal a life as possible instead of taking to their bed like the latter half and doing nothing...
We all have days where illness or disability makes it impossible to do anything, ensuring we have to rest, but those who never try to live won't even try to have a life even on better days.
Last week I had a fibromyalgia flare and it was truly torture to try to do those jobs I need to do.. I had no other choice than to rest. But today is the first day I felt a bit better, and so resumed my "normal" routine and feel better emotionally for it.
Others would prolong the flare and continue to stay in bed as they often fear bringing on another flare. Instead, they often succumb to depression because they have mentally put themselves in the invalid role and therefore often endure the loneliness and joylessness of the invalid.
Over the past 24 years of fibromyalgia and other illnesses, I have decided to push myself a little in order to enjoy more of my life. But there's always a balance- if I feel particularly down, I will take a nana nap or actually go to bed.
The trick is learning to co exist with these illnesses and try not to allow those dictators called "Spoons" to literally dictate how we will live each day and how much enjoyment we will derive from each of those days.
As I have been up for quite a few hours already and done some housework, my muscles are cramping and I need to rest. But at least I have some job satisfaction and can cross some tasks off my daily to do list...
Until next time, may you find some spoons to energise you and some motivation so as to enjoy the most of your life that you can today...
Don't let the spoons dictate your life every moment..
Saturday, 7 September 2024
Sufficient to the day
As a woman who suffers from chronic illness and pain through fibromyalgia, I often succumb to bouts of depression. I have a few tips on overcoming it.
First and foremost, start your day in prayer. Ask God for the strength to face the day and play worship music to lift your spirit.
Try to be in the moment and take one day at a time. That's all we can tackle otherwise, the sense of failure can be overwhelming. We aren't meant to take it on all at once.
If you try to just focus on the next task at hand and not dwell on the future, it will help your attitude to realise that you have accomplished something. It will then snowball as you progress through the day.
With chronic illness, I set myself just one or two daily goals that are achievable: for me it is wash the dishes and put away the clean clothes. I only focus on those goals that I know are achievable and if at the end of the day, they are done, then I feel a sense of accomplishment instead of defeat.
Nothing depresses me more than a feeling that I have achieved nothing all day. I don't worry that others may say "for goodness sake, it's only washing dishes..." for us in the throes of illness, be it mental or physical- it's a big deal. Delight yourself in small victories.
I find that in setting small goals it knocks the cloud of gloom off its perch and makes me hopeful that I will be able to rise above the depression. Give yourself a high five and see that any job you do is a step in the right direction. It still blesses your family and serves the LORD.
I think when we are depressed and/or in pain, the desire to go Home to the LORD is strong. After all, we are tired of living in a world of pain and we look forward to our redemption. But in saying that, we still have a work to do until that time.
As FlyLady says, baby steps. But just taking baby steps lead us out of our rut and it is that first baby step that will hasten our healing of depression and sense of failure.
Sufficient to the day is the evil thereof. Matthew 6:34
Monday, 26 August 2024
It is what it is! indeed!
Thursday, 16 May 2024
Sex isn't everything!
This picture reminds me of Chris and I in the kitchen... I often can be washing the dishes and he will come behind me for a cuddle.. I still blush and giggle like a school girl! I usually go weak at the knees when he kisses the back of my neck, and I turn around and kiss him passionately. Finally, we break away, breathless with romance and laughter! Most times, he then pitches in and helps me finish washing up.
Friday, 3 May 2024
I am already there!
In a few days I will be turning 71. It's been a bumpy ride punctuated with bursts of hard work in raising 5 children punctuated with the misery of chronic illness adding to the joy.
I think it's normal to feel tired in your seventies, but when one has fibromyalgia, polymyalgia, heart disease, spinal problems, diabetes and pulmonary hypertension as constant companions, well- it makes me tired just thinking of doing the smallest task.
Lately I have been reflecting on my life and trying to simplify it even more than it is now. And I have done a few things to avoid feeling false guilt and perfectionism.
I have unfollowed all my online groups for cooking, housework and household tips and decluttering. I still do these things, but at a snail's pace. I don't have to add to my perfectionism by fueling it.
I have also unfollowed all my feeds for pregnancy, childbirth and breastfeeding as it tends to make me nostalgic for something that is no longer a part of my life.
Similarly, I have gotten rid of household check lists and calenders about homemaking routines. They never work for me as I am so often out of spoons due mainly to fibromyalgia flares.
All my married life I have written out meal menus but now that Chris is very often not hungry or at least is very picky, I must cook to adapt to his fancies for dining thus invalidating my menu plan..
Always an Aldi girl, I now shop for groceries totally online, visit my doctor via phone consult, order my prescriptions online and pay all my bills online.
I rarely leave the house these days. Everything is slowing down for me these days and I need it to stay that way.
Even with help once a fortnight for housecleaning, I find just running the home during the two weeks between cleans physically taxing.
As I said, I think it's OK to slow down when you age...and I am no longer like the fairy godmother... managing my home easily and without much effort.
I just have to accept that like the fairy godmother I am not getting old: I am already there!
Monday, 29 April 2024
It's not about how fast we spin our wheel
But that doesn't mean that resting will make it better. Nor does it guarantee that you will gather more spoons to use when you rise up from your sickbed.
When you are chronically ill, you don't get better and rest definitely doesn't leave you feeling refreshed and full of energy.
The most rest can do for us is give us a temporary respite from forcing ourselves way beyond our comfort zone to serve our family.
Needing to rest can make those who don't understand chronic illness to make us become the victim of nasty retorts stating that we are lazy and putting it on in order to take to our bed.
Being that fibromyalgia is one of many invisible illnesses, we are often maligned as malingers and the angst that this creates can cause us to become depressed as well as angry.
We didn't ask to be sick and most of us in fact push ourselves way beyond our comfort zone to prove to ourselves and others that we are not lazy.
I think as fibromyalgia is often a prolonged illness that we would do well to take thoughts of others directed at us to be taken into the captivity of Christ Who doesn't condemn us but Who loves us at all times.
He understands and doesn't condemn us. We have to take His Word that He loves us as we are.
We need to learn to switch off from those who condemn and criticise us for taking frequent breaks and nana naps. We know we are doing the best we can and our worth is not about how fast we spin our wheel.
Friday, 15 March 2024
Sitting down brings no comfort
Over the years of chronic illness, I have noticed that what used to be a reward for spending spoons and being proactive was in having a comfortable place to sit.
Gradually the places that once gave me a comfortable sitting have become objects of pain. My armchair, couch or sofa, typist chair, dining chair and car seats have all become places of torture and there's no reward or rest found in them.
Like wise, my bed also yields no comfort to my fibro effected muscles or my spinal pain.. it can't be the furniture's fault.
I think the fault lies in my allodynia which is pain on the lightest of touch. It is often a part of fibromyalgia and/or diabetes neuropathy. There is no cure.
I cannot take many tablets that are commonly prescribed for fibromyalgia, such as Lyrica so I have had to find something that helps with the pain.
With both peripheral neuropathy from diabetes and fibromyalgia, and with constant knee pain, I find the only time I can completely relax is when I am lying on my couch and Chris is rubbing my swollen feet. The swelling is from heart failure.
The massage seems to distract the nerve path that interprets pain and replaces it with a pleasurable sensation, allowing me to often drift off to sleep.
I know it's sad that a foot rub is the only help for me at this stage of my life, but it is what it is. And it is good for me as sitting down brings no comfort.
Monday, 22 January 2024
Do you find that too?
We are in need of haircuts but it is such an ordeal getting out that I placed a query online in our local group on FB and a hairdresser who comes to the house pm'd me.
It will be nice to have my hair styled short. Not sure what to ask for- I can't have a fringe or hair on my nape because with fibro, I itch too much and scratch my skin...
Fellow fibromites, do you find that too?
Wednesday, 29 November 2023
This is a great help

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