Thursday, 18 June 2026
When the spoons are gone forever
Friday, 3 May 2024
I am already there!
In a few days I will be turning 71. It's been a bumpy ride punctuated with bursts of hard work in raising 5 children punctuated with the misery of chronic illness adding to the joy.
I think it's normal to feel tired in your seventies, but when one has fibromyalgia, polymyalgia, heart disease, spinal problems, diabetes and pulmonary hypertension as constant companions, well- it makes me tired just thinking of doing the smallest task.
Lately I have been reflecting on my life and trying to simplify it even more than it is now. And I have done a few things to avoid feeling false guilt and perfectionism.
I have unfollowed all my online groups for cooking, housework and household tips and decluttering. I still do these things, but at a snail's pace. I don't have to add to my perfectionism by fueling it.
I have also unfollowed all my feeds for pregnancy, childbirth and breastfeeding as it tends to make me nostalgic for something that is no longer a part of my life.
Similarly, I have gotten rid of household check lists and calenders about homemaking routines. They never work for me as I am so often out of spoons due mainly to fibromyalgia flares.
All my married life I have written out meal menus but now that Chris is very often not hungry or at least is very picky, I must cook to adapt to his fancies for dining thus invalidating my menu plan..
Always an Aldi girl, I now shop for groceries totally online, visit my doctor via phone consult, order my prescriptions online and pay all my bills online.
I rarely leave the house these days. Everything is slowing down for me these days and I need it to stay that way.
Even with help once a fortnight for housecleaning, I find just running the home during the two weeks between cleans physically taxing.
As I said, I think it's OK to slow down when you age...and I am no longer like the fairy godmother... managing my home easily and without much effort.
I just have to accept that like the fairy godmother I am not getting old: I am already there!
Sunday, 16 April 2023
I am no longer a bunny!
Sunday, 24 April 2022
We have gone mad!
The rheumatologist suggested to my daughter who suffers from fibromyalgia and pain post chemo, to use it as a distraction from the pain. She was one of these mind over matters kind of doctors. We were not very optimistic to be honest.
As a sufferer of not only fibromyalgia but ankylosing spondylitis, spinal canal stenosis coupled with bad arthitis and angina, I thought it may help me. It helps a little. But Tramadol would be better!
My doctor won't let me have them. Even though he knows I only take them as required for high pain days like today. He gave it to me when my second knee tore and it helped my fibro pain so much. Then he closed shop!
I know there have been many who abused pain-killers but when basic pain relief is available only with a chemist's approval such as Panadol with codeine, it makes life more difficult for the person like myself, to get any relief at all.
With fibro flaring and another episode of polymyalgia rheumatica, I have been tempted to take some of my Prednisolone, but I am worried about the side effects. I tell you truly, I am feeling desperate.
So even though you may see me playing Candy Crush or online a lot, I can honestly say that it's for medicinal purposes. I will be a Candy Crush addict any day if it will relieve the pain.
Just don't tell the do-gooders. If they think we are liable to become addicts, they'll make FB take it off their site! You fellow pain sufferers know they will. We have gone mad in our correctness!

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