Rome wasn't built in a day!

 

As you probably know, we have recently moved again. It is almost complete with just a few boxes to unpack.

We are so very tired and I have exacerbated fibromyalgia and angina pain.

We love this new house and is still quite large like the one we have just left. But honestly, I really hope we dont have to move again because I feel quite done in.

Most things now have found a new home, but as soon as I recover from the move, I will declutter and organise our things better.

So I am finding myself falling asleep at the computer or feeling really razzed, and I have had to have a nana nap during the day or I won't have enough spoons to cook dinner...

And speaking of dinner, I have been making use of my slow cooker to help me when I haven't got any spoons. It has helped take the pressure off me.

Lately having no spoons is my new normal so I have had to rest and pace myself. 

Something this move has taught me is to be patient. I have had to learn to wait until others are able to help me and my new mantra is "Rome wasn't built in a day!"

It is what it is! indeed!

 

In my efforts to still be mistress of my home in spite of severe health issues, I have tried to pare down my necessary daily tasks.

I can forgo doing the washing for a day or two. I can not make my bed or do much cleaning. But every single day I find I must cook, which is a necessity that brings the second necessity of the day: doing the dishes.

Oh I have left them before during a fibromyalgia flare. But I have learned that they seem to multiply like rabbits- my kitchen sink and bench are testimony to this!

I have left the dishes until the morning or even until the evening, but the mess on the plates and cutlery makes the job not only labourious, but "yucky". So I have learned to keep abreast of them.

Now I know some people use paper plates to avoid doing the dishes, but I am old school. Besides, everything tastes better on a china plate or in a glass or cup. I detest polystyrene cups or picnic cups.

Occasionally during a bout of angina or fibromyalgia or even a day of back pain, I am happy to order take away meals... but it is such a nasty blow to the budget that this is rather rare.

So then I am now convinced that I must acquiesce to doing the dishes daily as we absolutely must eat- there's nothing else I can do about it except cook.

Finding two daily essential jobs wasn't easy because there are so many more things one could count as essential. 

More over, one thing chronic illness has taught me is that spoons dictate not only one's lifestyle but standards.

One can either accept less high standards or die trying to sustain them. And given the effort in just breathing and being some days, the standards become more achievable.

I have had to accept what the young ones say, "It is what it is!"  Indeed! It is! 

My Cleaning Schedule

           

As you know, I have now been approved for 2 hours of  home help a week. It has been a difficult time lately with a fibromyalgia flare that never seems to end. 

I have my sister here with us for the moment, so having some extra help especially in bedmaking, will help me immensely.

Just keeping the washing up to date, menu planning, cooking, dishes, food shopping, bill paying, and organising medicines for the week and ordering them from the doctor and chemist, is enough for me to cope with.

So this extra 2 hours will help me immensely. Maybe then my fibromyalgia flare will finally go away!

 

WEEK - MEL-6/9/2024

KITCHEN

MY BED AND CHRIS' BED

TOILETS/ ENSUITE

FLOORS

WEEK - TANYA -13/9/2024

KITCHEN

GUEST BED AND MY BED

TOILETS/ENSUITE

FLOORS

WEEK - MEL- 20/9/2024

KITCHEN

GUEST BED AND MY BED

TOILETS / SHOWER

FLOORS

WEEK - TANYA- 27/9/2024

KITCHEN

GUEST BED AND MY BED 

TOILETS / SHOWER

FLOORS

It doesn't take much!

As you know, we have my sister here with  us until she finds a new rented home. She's been here for 8 weeks now and I have been taking care of her.

My twin, like me, has fibromyalgia, heart and lung problems and has recently had RSV. It went through our house.

But until I am diagnosed, she is alone in suffering with Lupus. There's a question mark over whether or not I have it too. We are mirror image identical twins.

So suffice it to say, I have been looking after her and part of that is making sure she eats well. 

As I told you in a previous post nutrition can extend our life and certainly makes for a more pleasurable life. So I made sure my sister was eating lots of vegetables and fruits and red meat at least 3 times a week.

At her last doctors visit before moving in with us, she was told that the Lupus had made her very anemic so much so that she needed an iron infusion. She didn't cook much when she did cook... and sometimes her diet was not very nutritious. 

So, as I mentioned she's been with us for two months and her new doctor- (our doctor) ordered baseline blood tests. The results showed her iron has improved and she no longer needs an iron infusion.

This reinforced my belief that good plain homemade meals made from scratch with lots of vegetables and fruits, help extend one's life. The proof is there in the blood tests, for the life is in the blood. 

By eating well and staying well nourished, life can be made more enjoyable and prolonged. All it takes is a balanced diet and a little thought in purchasing our food. It doesn't take much! 

Easy meals for when you can't be bothered cooking

 

We all know that good nutrition is important for our health and the health of our family. But as sacrificial home keepers, cooking can prove to be a big challenge.  Our energy often precludes cooking elaborate meals. We need to find some recipes that our family likes and that won't take a lot of effort and time. Keep it simple.

I am not the worlds' best cook, and it isn't necessary to cook cordon bleu or gourmet food, but it *is* necessary to cook nutritious food..  

It is a good idea to plan a menu: this is something most of us can do even on bed rest. Here are some meals that Chris and I  like that are not difficult to cook and that are nourishing: I have a menu planned for dinner each week. This week it is:

Wednesdays' Dinner:  Corned beef, cabbage, carrot and mashed potato.

Dessert:  Cake or biscuits and tea

***

Thursdays' Dinner:  Roast chicken with peas, sweet potato, pumpkin, onions and potatoes.

Dessert: Instant blancmange pudding

***

Fridays' dinner:  chops, salad and mash.  Buy the salad already washed. You can also purchase frozen mashed potato that is cooked in the microwave and that tastes exactly as if you have done it at home. A little dash of salad dressing and you're done. We like 50/50 balsemic vinegar and olive oil which is just added together and tossed over the salad.

Dessert: a can of mandarins or any fruit with instant custard

      ***

Saturdays' Dinner: fettucine bolognaise with store bought garlic bread.

Dessert:  Icecream and banana

      ***

Sundays' Dinner:  Swiss steak (done in tomato puree), veggies and mashed potato.  The veggies are just frozen ones.

Dessert:  Pancakes from an instant mix: just add water and shake the bottle. I top them with sugar and lemon juice.

    ***

Mondays' Dinner:  Rump steak and veggies and mashed potato

Dessert: Ice cream and kiwi fruit.

   ***

Tuesdays' Dinner:   Chow mein and rice.  This is easy to cook in the slow cooker.  I cook the rice in the microwave.

Dessert:  Tinned fruit and custard

© Glenys Robyn Hicks

 

“Go now to the flock, and fetch me from thence two good kids of the goats; and I will make them savoury meat for thy father, such as he loveth:” Genesis 27:9

Fading fast...

 

Lately it seems that my life consists of pain, fatigue, breathlessness and pacing. pacing. pacing.

Life demands certain things of us and for me it's looking after a sickly husband, a house that is in need of a good clean and now a convalescent sister who is here to recover from a nasty fall after hospitalisation for lupus.

On top of that, we are trying to find rental homes for her and one for my son who was her carer. 

My fibromyalgia is flaring  because I am stressed and all I seem to do is pace myself to ensure I keep the few spoons I wake up with.

I am back to sharing a bed with my husband as my sister is occupying my adjustable one to alleviate some of the pain in her injured back and legs.  Neither Chris or I are sleeping well at night.

So I follow a plan for a rest between tasks and by the afternoon I am so overcome with tiredness that I have to take a nana nap in order to have enough spoons left to cook dinner.

And as I sit resting, I realise that most of the day for me is now resting and pacing in order to just get through. even with minimal tasks planned.

And as the spoons diminish, I realise too that my strength is fading fast with fibromyalgia and old age. It is what it is.

I am fading fast.. the only thing about me that is fast! 

Enjoy being at home.

The last few days have seen me taking a renewed interest in cooking and house management.. it's been a time of feeling incredibly blessed.

Our home nurtures us so much. It is so comforting to be here, away from the hustle and bustle of life and just snuggling in  here. 

I have just turned 71 and I can honestly say that contentment and joy have caught me by surprise! 

The longings for adventure and new experiences has waned and I am truly content just following my basic routines.

Fibromyalgia and heart problems dictate my life somewhat and even though spoons are scarce, I still try to keep my home well and I even try to bake bread... this is where spoons and pacing comes to the fore.

In an effort to keep feeling peace in our home, I have stopped viewing news videos regarding the end days and I can say it has worked.

As I work on my computer, I have scriptures or some form of worship music playing. 

I am waiting on the LORD to come for us and while I wait, I keep guard on what exactly comes into our home.

I pray a lot that God will keep me in perfect peace because as the wife in our home, my moods and attitudes shape not only my day, but Chris's

Peace is the first thing to go and it's not necessarily from the words we speak. Attitudes speak volumes.

Our home can be a haven from the world for us and we should try to make it a clean and comfortable place that shields us from the world...  Our home is indeed our haven. Enjoy being at home.

A boring home life

It's Tuesday morning here. I have just finished putting the groceries I got online away. It's so convenient for Chris and I seeing as we both are unwell

I have done a  load of washing and am thinking about doing some lunch. Toasted cheese and tomato sangers sounds good and easy.  

My kitchen needs to be cleaned but I am out of spoons as I didn't sleep well last night. The weather is changing as it's autumn here and we can experience all seasons in one day. It plays havoc with my fibromyalgia. It's making me feel miserable.

I am thinking of taking a nana nap before I do the kitchen. But before that I will take some Panadol Osteo   to help relieve my fibro pain. Pacing and resting are not an option with fibromyalgia: it's a necessity. 

After I clean the kitchen I will cook chow mein and rice for dinner and if I have enough spoons I will fold the day's clean clothes and put them away.

It's a boring day here and I am glad. When you think of what's happening in the world, I can truly gratefully say that God has blessed me with a good but boring home life! 

Loving Australian Damper

The other day, we ran out of bread and Chris and I didn't feel like driving to the shops. 

Now I cannot make a decent loaf of bread so my  friend suggested trying damper. It is a bread that has no yeast and has been baked since the dawn of settlement in Australia. So I tried my hand at making Australian Damper.

In the past I have used bread makers and have tried endless recipes for no knead bread without success. Oh, it tastes great straight out of the oven with lashings of butter, but as soon as it cools off, it is as heavy as lead. It even breaks the birds' beaks when I throw it out for them! haha

But this method for damper was so easy and we both enjoyed it so much. Why not give it a try?

Are you a senior Aussie?

 

These days groceries have gone through the ceiling and it is very hard to be able to afford meat and fresh fruits and vegetables.

When you are chronically ill and disabled, cooking becomes a real chore and meals can become less tasty and nutritious.

I was feeling  all this when my Aged Home Care Package was reactivated and it was with sincere gratitude that I was able to access Lite N Easy Meals. 

They are created by dietitians and cooked by chefs and are very tasty. My Aged Care Package pays 70% of the cost and I can order 28 meals every two weeks- or more often if desired.

If you are a senior in Australia, check out your eligibility for you Aged Care Package. You will be glad you did.

Ordinary is good!

It's Tuesday morning here. I have just finished putting the groceries I got online away. It's so convenient for Chris and I seeing as we both are unwell

I have done a couple of loads of washing and am thinking about doing some lunch. Toasted cheese and tomato sangers sounds good and easy.  

My kitchen needs to be cleaned but I am out of spoons as I didn't sleep well last night. The weather is changing as it's autumn here and we can experience all seasons in one day. It plays havoc with my fibromyalgia. It's making me feel miserable.

I am thinking of taking a nana nap before I do the kitchen. But before that I will take some Panadol Osteo   to help relieve my fibro pain. Pacing and resting are not an option with fibromyalgia: it's a necessity. 

After I clean the kitchen I will cook chow mein and rice for dinner and if I have enough spoons I will fold the day's clean clothes and put them away.

It's an ordinary day here and I am glad. When you think of what's happening in the world, I can truly gratefully say that God has blessed me with a day that's ordinary and good! 

Just living is a physical ordeal.

 

Lately I have been finding it difficult to be joyful. My fibromyalgia doesn't get better, my knees are paining me, my angina's worse and I have had bouts of asthma.

Sitting for long periods hurts my back, and my eyes and face and general skin is dry, but I need to keep the house warm as the cold winter temperatures aggravate everything.

I have tried returning to a more realistic sleeping schedule, but I find even if I go to bed at a reasonable hour, I still wake up a couple of hours later. Then I can't get back to sleep for another 4 or so hours. 

I am tired, people. Tired of all this pain. Trying to keep it all together. Trying to live a "normal" life. I mean taking a shower without assistance or cooking a meal from scratch or hanging out some washing should all be within the bounds of normality for a homemaker. Not so for me.

I wear tiredness like a heavy saggy wet cloak, and I never wake up refreshed. My circadian rhythm is all out of whack and I can't restore it. Through no choice of my own, I have become a night owl.

With Chris being ill with his heart failure, he doesn't sleep well either and sleeps sitting up. He starts off in bed, but graduates to his recliner armchair.

The fluid in his lungs makes him feel like he is drowning, so that necessitates sitting up to sleep. It. is. what. it. is... But I watch him struggling for breath and I feel that I am losing him by degrees...

I have thought about trying to be upbeat and falsely present myself as someone who is coping with all this, but if I did it would be a lie.

So apart from a nana nap later, I am planning to spend some time in prayer and worship. Hopefully, that will give me the strength to emotionally and spiritually rise above the physical ordeal just living creates.

Today is pancake day!

 

So today I wanted to make some pancakes for Chris's breakfast. I went to my pantry confident that I had a few packets of plain flour there, waiting to be used.

Sure enough, I not only had plain flour, but self raising flour and cornflour. I always keep a spare of everything in my fridge and pantry. Just in case there's a shortage or I don't have money any pay period.

I measured the plain flour and noticed it was a little dark. So I tasted it. Bitter. So I checked the use by date. Best before July 2021. 

Flabbergasted, I checked the other flours and they all were out of date- by two years!

When covid was at its height, I remember buying extra flour and sugar so that I could at least bake something tasty when we were staying home... 

Feeling a bit guilty that I havent baked for a couple of years, I recalled that my fibromyalgia had been bad all that time, and I toasted a couple of crumpets for Chris and promised to add flour to the shopping list for next week.

He was so longing for pancakes but settled for the crumpets and tea. 

Pancakes weren't meant to be today: but next week I am sure Chris will say, "Make me some pancakes for today is pancake day!"

For me, it's spoons!

It's Sunday morning here. I have brought in the online groceries and checked them off and put them away. 

I will soon be taking Chris's bloods and doing breakfast. Breakfast will be eggs and bacon and a cup of tea. Lunch will be ham and salad sandwiches. For dinner, I am doing a vegetable intensive beef stew. Fresh fruit for desert.

There's a hamper of clean clothes to fold and then I will be up to date with washing. Later I plan to make some coleslaw, if spoons permit. 

That's about it for today, except for cooking dinner. I don't want to put myself into another fibromyalgia flare or I won't have spoons to help my daughter tomorrow. As I always say: most jugglers juggle balls, for me it's spoons! 

More spoons to enjoy life.

We have just moved and we are both quite tired still. Although the house is functional, there's still a lot of unpacking to do.

This weekend, two of our grandchildren wanted to come see us and give us their verdict of the new house. Knowing that memories are all we will have once they are grown, we agreed to have them.

Although I am suffering from a bad fibromyalgia flare, I got dressed and stayed up in order to spend time with them.

We cooked lunch together and watched family videos of when they were first born and growing up. It was fun but it was also non taxing to my sore body. 

Today I am expecting a lady to come clean for a couple of hours. She did such a good job of cleaning our old house for our bond return, that I asked her if she would like to do a regular clean for us once a fortnight. She agreed.

With my poor daughter suffering from fibromyalgia as well and now living two minutes away, she also agreed to clean her house after ours each fortnight as well.

Both my daughter and I are finding just cooking, cleaning our kitchen, doing washing, grocery shopping, running errands like going to the chemist, planning finances and feeding our pets is enough of a job. We need some extra help.

There's very little help here for chronically ill people who can't do housework. What little we did get has been stopped since a new government has taken over the reins. So we have to pay privately.

I am grateful that I can save enough each fortnight to afford a cleaner's help. It not only keeps my home clean, but gives me more spoons to enjoy life.

 

"It is what it is!"

A friend of mine posted this on her Face Book wall and it was so simple and doable that I wanted to share this with you.

My hands are deformed with arthritis and I have little strength in them. Opening these ring pull cans have always been a challenge to me. 

Those cans that need a can opener are  simply not purchased anymore. I cannot use one as the arthritis restricts movement.

My fibromyalgia is paining me today and I didn't sleep well last night, so I will be cleaning my kitchen and psyching myself up to take a shower. That and cooking meals is all I will be doing today.

Meals will be Jewish Penicillin in my slow cooker.

It's not much to show for the vast amount of spoons I will need today, but as the young ones always say, "It is what it is!"

A helpful guide

As reported on the news, there will  be food shortages in the future, so I have been building my pantry and freezer up.

I am not living in fear, but rather I am trying to emulate that wise woman in Proverbs 31. She was not afraid of winter because she was prepared. I want to be prepared too.

As you probably know, I have been cooking extra meals and doing a cookup on days I have some spoons. It's been working marvellously well for me. Especially for those days when my fibromyalgia is flaring. I simply grab and defrost a couple of meals and dinner is done.

I make sure everything is clearly marked and dated so that I can rotate the food and not have it sit there until it is out of date.

One thing that I noticed when freezing my meals is that the label came off and I couldn't identify what the meal was and how old it was. So I read that masking tape doesn't fade or come off easily and I did that. It's true.

I came across this guide of shelf life for pantry items and I posted it here for our easy reference. Goodness knows, food's too expensive to waste, so this should be a helpful guide. 

 

No mojo with fibro

So leading up to Christmas, I had my 9 year old granddaughter Taylah, stay with us until Christmas Eve, when she would be taken home in plenty of time for Santa to come.

I promised Tay that we would make Christmas cookies make cubbies, play school, go swimming and have a play date with her cousins. 

Day one started out well and we played school, office workers and shop keepers. I showed Tay how to touch type, taught her a bit of Italian and French in a fun way and then I promptly ran out of spoons.

I simply had to give in to the pain and take some Tramadol to keep going. I made some lunch and felt like I might pass out. Dizziness assailed me and I felt vomity. Probably the Tramadol.

I had to explain to Tay that I love having her here, but am not well and I need to take a nana nap. She got a crash course in fibromyalgia and chronic fatigue. 

She had lost her paternal grandmother last week and was very anxious about me so I didn't want to frighten her too much, so I said that if I don't go to rest for an hour that I would not enjoy her stay because I would be cranky. If I went to bed just for an hour, I would enjoy it so much more, and so would she.

As she accepted this fact, she immediately bombarded me with "but I thought we were making cookies, playing out side and making a cubby house?" I told her we could do all that if I took a nap. She said OK then got her ipad out. I went to bed and allowed the Tramadol to do its magic. It didn't.

No, it didn't do anything except make me nauseous, even after a 20 minute nap. That was all I got. So, I got up, made us all a cup of tea and sat down with Chris to watch a video he wanted to show me.

Taylah pouted and demanded to make cookies, as I had had a nana nap. Groaning, I got up and started taking ingredients out to make the cookies. 

After that, I was too exhausted to clean the kitchen. I cooked dinner and then it was time for Tay to have her bath. That wasn't a big deal as she's nearly ten, but she wanted me to play MacDonalds with her, so I got some wooden spoons and plastic cups for her to play with. 

I sat on my shower stool and bought some Big Macs,"no pickles, no onion and a soft serve cone for my daughter." We blew bubbles with the Imperial Leather soap and I did what Fibromites do best: I tried to hide my pain and pretended to have a good time.

By 9 o'clock I insisted that Tay go to bed and I joined her. Before we went to sleep, she told me she missed her mother and wanted to go home.

In the morning, she assured me she loved being here and she loved me but wanted her mum. I told her I understood and that it was fine. We would take her home. She was humming to herself as she played teacher and when I went to the fridge, I found a love note from her to me.

I was glad as I worried she didn't stay with us longer because I was a boring old lady. And I fear I am. Cos everyone knows there's no mojo with fibro.