Thursday, 18 June 2026
When the spoons are gone forever
Tuesday, 26 May 2026
A personal battle
Those of us who suffer from chronic pain and illness probably will find that taking a shower is not only an exhausting experience, but a scary one as well.
With spoons scarce and a fear of injuring oneself in a fall or having a heart attack or breathing difficulties whilst under it, we can put taking a shower off for quite some time. Especially as well, during a flare up of fibromyalgia..
With this in mind, I did some reading up about this personal battle and I came across a really informative blog by a hospice nurse. She has some really helpful information which I intend to try...
I have been doing washes at the vanity sink and I have been helping Chris with his bathing as well. We also brush our hair and teeth and change our clothes each day. So we never get to the point where we smell. But it is still important to wash our bodies and hair.
In the past I have bought these bath sponges that require no soap and just a little water. Or none. I have tried these ones called Scrubzz I found that they fluffed up after adding water so I am trying the foam by Scrubzz
I do have trouble washing my hair due to mobility issues with fibromyalgia and polymyalgia rheumatica. It is simply too painful for me to raise my arms.
Today I learned of a new Scrubzz Shampoo Caps. Shampoo with water in a cap that does not need a rinse or leak and can be used even in bed.
I am sharing this with you so that you don't feel alone if you also suffer fear of showering. If it helps you it will be worth the embarrassment of sharing this very personal battle.
Thursday, 4 December 2025
Dwelling in acceptance and peace
So over and over again lately, I have had to have a nana nap in the afternoon. I simply can't stay awake all day.
In the past, I have tried to push through the daze and thick fog of sleep deprivation, only to find the fibromyalgia flare, angina pain, neuropathy and endless pills to keep me functioning put an end to it.
After 25 years of fibromyalgia and other chronic illnesses, I have decided that the spoons win. I have given in to their control. I now plan an hour or two hours sleep in the day.
After the daytime sleep, I find I can function enough to cook dinner and feed the cats.
I think being nearly 73 years old doesn't help either. I talk to my friends who suffer no chronic illness but are the same age as me, and they are finding a nana nap is indispensible.
Another strange thing I have noticed is that I seem to have a better quality of sleep in the daytime. As a result there is more restorative benefit from giving in to the fatigue.
I have decided to once and for all accept that my body needs extra sleep and learn to live with it.
By taking a nana nap, I find that the spoons don't win entirely. Sleep truly is a gift from God...
Psalm 4:8 In peace I will lie down and sleep, for you alone, LORD, make me dwell in safety.
I know at this season of my life that I can take that nana nap when I need to or leave the clothes to be folded another day. Likewise I can go to bed as early as I want... there are no schedules to keep.
Each day brings its challenges but even so, I am glad to be here...life is still sweet!
Even in this quiet season of my life it is very comforting to know that I am just where God wants me to be-quietly dwelling in the simplicity of acceptance and peace.
Monday, 13 October 2025
New favourite things
So I have recently prioritised some things in my life which thanks to ageing and illness, have become my favourite things.
My most favourite thing is my new Roomba 105 which is really nifty. I never have to touch it. I control it from my phone and it maps my home.
It follows a set routine for each day and empties the dustbin by itself. When needing to charge, it does that autonomously too. I love it.
My daughter-in-law gave me another air fryer. I am now able to fry meats in one and chips or something like that in the other. This makes cooking dinner so much quicker and easier.
And speaking of dinner, I have found an easier way of using my slow cooker. I have plugged it in the walk in pantry and it saves not only benchtop space but pain in my back. Sometimes just tweaking something as simple as where to store or use an appliance, can take some of the pain of the chore away.
With frequent fibromyalgia flares I find getting comfortable in bed difficult, but my new pillow top mattress cover has added some extra softness and makes sleep possible.
I have made good use of Temu wherein I have purchased some gadgets to help my hands when cooking. I have a rubber tipped stick/spoon that helps me mince my beef mince when cooking. This helps me so much with my arthritic fingers and wrists.
Also, I have found a friendly nearby pharmacist who delivers my meds and who will even pack them in Webster packs when the time comes that I need help. This service both for delivery and organising my meds in packs are free services.
It's nice to reflect on the good things in life and bring to mind my new favourite things...
Friday, 25 July 2025
A wonderful place
As I get older, I have grown to appreciate my home so much. I have strived to make it an oasis of calm when the world is anything but.
There is much enjoyment in just staying home and relaxing when needed and eating some comfort food and making tea as desired.
It has taken me years to streamline my home making to accommodate my need for pacing due to my many illnesses, especially fibromyalgia.
I have needed to curtail my perfectionism for illness has put an end to that. And with that, peace has come.
To be able to stay at home and just do what is strictly necessary on a spoonless day is very freeing, as is slipping in to bed when I need it.
Knowing I have no need to face a busy world unless I want to is comforting as well. Sometimes leaving home is a struggle. By the time I have showered and dressed, I am totally exhausted.
By accepting myself, which includes my ailments, I have put to bed false guilt and have come to a place of peace.
Along with my home, it is a wonderful place to be in...
Wednesday, 25 June 2025
Made with Love
Thursday, 3 April 2025
Quietly dwelling
Every day I need a nana nap to get through to dinner time and really there's nothing I can do to change that. I am forced to go with the flow.
I used to buy Lite N Easy food as part of my Aged Care package, but Chris and I have become sick of it. I have no choice but to cook.
As dinner times are when my spoons are usually spent, I sit down at the kitchen table and prepare whatever I can beforehand. Then it's just a matter of cooking some meat and doing some gravy.
Both ageing and fibromyalgia keep me living in pain, but I try to not complain about it too much.
I know at this season of my life that I can take that nana nap when I need to or leave the clothes to be folded another day. Likewise I can go to bed as early as I want... there are no schedules to keep.
Each day brings its challenges but even so, I am glad to be here...life is still sweet!
Even in this quiet season of my life it is very comforting to know that I am just where God wants me to be-quietly dwelling in the simplicity of acceptance and peace.
Friday, 28 February 2025
Maybe I should have rephrased it
Thursday, 23 January 2025
It is what it is
So while I was still asleep, just after sunrise, Chris took some photos of our back garden.
He told me there were about 40 corellas eating the birdseed and meat scraps from dinner that I threw out after dinner.
Later on some rosellas joined them and after they left, the sparrows came down. Our place is like an airport.
Later on our cleaner from the Aged Care Provider is coming for a couple of hours and I will be straightening up the kitchen and loading the dishwasher as soon as I finish talking to you.
The washer's already going as I am washing some bedding for her to change the beds today. Of course, I will be using my dryer.
With fibromyalgia and polymyalgia rheumatica, I always use it. I have tried using my clothesline but the pain is really debilitating and I can't bear it. Like I always say, it is what it is.
Friday, 13 December 2024
Better days are coming!
Wednesday, 4 December 2024
I can hardly wait! Again!
Do you remember reading that I was disappointed because the bath lift chair I bought could not fit under the bath tap? I had to sell it..
Well today my Occupational Therapist from my Aged Care Package came for a visit to our new home and brought the mobility gentleman with her. He had a lift chair with him and we did a dry run... and it went very well.
The bathroom tap did not get caught in my leg and I was able to lower the seat right to the bottom of the bath. One has been ordered for me and I am very happy.
I am also happy because I have been told that I can get a mobility scooter in the near future which is cause for celebration... very happy to be getting one, but more excited about the bath lift...
As I said a couple of years ago, I can hardly wait!
Saturday, 20 July 2024
The only perk of being old
Sunday, 2 June 2024
I. have. never. felt. so. weary!
Thursday, 23 May 2024
Fading fast...
Saturday, 11 May 2024
Enjoy being at home.
Friday, 3 May 2024
I am already there!
In a few days I will be turning 71. It's been a bumpy ride punctuated with bursts of hard work in raising 5 children punctuated with the misery of chronic illness adding to the joy.
I think it's normal to feel tired in your seventies, but when one has fibromyalgia, polymyalgia, heart disease, spinal problems, diabetes and pulmonary hypertension as constant companions, well- it makes me tired just thinking of doing the smallest task.
Lately I have been reflecting on my life and trying to simplify it even more than it is now. And I have done a few things to avoid feeling false guilt and perfectionism.
I have unfollowed all my online groups for cooking, housework and household tips and decluttering. I still do these things, but at a snail's pace. I don't have to add to my perfectionism by fueling it.
I have also unfollowed all my feeds for pregnancy, childbirth and breastfeeding as it tends to make me nostalgic for something that is no longer a part of my life.
Similarly, I have gotten rid of household check lists and calenders about homemaking routines. They never work for me as I am so often out of spoons due mainly to fibromyalgia flares.
All my married life I have written out meal menus but now that Chris is very often not hungry or at least is very picky, I must cook to adapt to his fancies for dining thus invalidating my menu plan..
Always an Aldi girl, I now shop for groceries totally online, visit my doctor via phone consult, order my prescriptions online and pay all my bills online.
I rarely leave the house these days. Everything is slowing down for me these days and I need it to stay that way.
Even with help once a fortnight for housecleaning, I find just running the home during the two weeks between cleans physically taxing.
As I said, I think it's OK to slow down when you age...and I am no longer like the fairy godmother... managing my home easily and without much effort.
I just have to accept that like the fairy godmother I am not getting old: I am already there!
Wednesday, 24 April 2024
Play it in your own time!
As we shared before, I am supposed to be getting help in cleaning our home. But it has turned into a mess and I have fallen in the cracks. There was a woman who came for three weeks, but she was woefully indolent and a liar.
Saturday, 25 November 2023
When the fog clears, tea's on the list.
Monday, 20 November 2023
We're going for a run
As you know, I have had to resort to using a wheelchair when I go out. It is not something I am happy about, but it is a necessary part of adapting to my new normal.
Along with walking, there are a few other things I have had to adapt to as well.
I sit on my shower seat. When I get out, I sit down again and dry off. That's about all the time I can stand.
Most times, Chris stacks and unstacks the dishwasher and this has stopped me having to stand and bend.
I always use the dryer even in good weather. I miss the smell of sun-dried clothes, but it is what it is.
I do make my bed for company, but even so it is just pulled up quickly, nothing fancy. I can't stand to tuck it in and I can't bend either...
With the ageing Australian Government Package, I have a support worker come every two weeks. She changes our beds.
Also within this Home Care Package, I can order ready cooked frozen dinners from Lite N Easy. The meals are designed by a dietitian and cooked by a chef. They are quite delicious and save me from having to stand to cook and I know we are eating well.
I am grateful for all this as it allows me to still be mistress of my home in spite of illness, pain and disability. But even so, I find myself longing for the soon rapture of the Church.
It will be so glorious to not only see my Saviour, but to be able to breathe easily, feel joy and go for a run...
Sunday, 19 November 2023
Not falling off the vine
Since turning 70 last May, I have noticed a rapid decline in our health. Heart issues are worsening, pains are hurting, fibromyalgia is making spoons are scarce and my mood is darkening.
We both are enjoying the peace in our home that has been jealously guarded and nurtured. Quite simply, we cannot cope with other's dramas.So much so that we have become reclusive.
The days when we don't have to leave our home are cherished days. And even though we make a point to get dressed each morning, we are not adverse to having a couple of Pajama Days occasionally.
In short, we are wearing out. Physically, mentally and emotionally, we are spent. I can say that we aren't spiritually spent because we pray and worship a lot. It does help.
I have been posting a little spasmodically because of excessive fatigue, and I have decided that from tomorrow onward, I will post in a diary form recording bloods, blood pressure and so on. Plus anything else the LORD puts on my heart.
Today is Sunday and I have just done the least I can do to keep our home manageable. With the fatigue being bad and no spoons, I took a nana nap and it turned into a grandma nap. Three hours.
But I woke up and felt a bit better and managed to fold some clothes that had spent their new clean life in the laundry basket...
Anyway, I had a comforting thought which I will share: there's an old saying that the aged say... "I am so ripe that I am falling off the vine!" Not very comforting.
But the next thought was comforting- physically, yes I am- but spiritually, not so. Instead I am grafted into the Vine- Jesus and He sustains me and gets me through this painful path called life...
So, with His help, I am definitely not falling off the vine!

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