Wednesday 24 April 2024
Play it in your own time!
Wednesday 10 April 2024
A permanent thing
Sunday 7 April 2024
It's gonna be a PJ's day.
Tuesday 12 March 2024
Cooking with fibro plus fibro bloggers' tips!
Here’s what works for my fibromyalgia blogger friends
- Cynthia from The Disabled Diva shares her top tips
- Shelly from ChronicMom blog shares her #1 recommendation
- Australian Sacrificial Home Keeper on tricks to help cooking
- Mandy and Michele on their preferred medication
- Lee Good, who is discovering what works to help Fibromyalgia at Fibro Files
- Katie from Painfully Living shares what’s worked for her
- Sue at Rebuilding Wellness blog shares her top tips
- Carrie shares her top tips at My Several Worlds blog
- Bettina shares what works for her in the hope that it will work for you
- Nikki from the Brainless Blogger shares her top tips
- Bethan from Hello Fibro Blog shares what she’s learnt since diagnosis
- Cynthia from My Inspired Fibro Life shares her tips
- Donna over at Fed up with Fatigue writes about the beneficial fibromyalgia treatments she’s used since diagnosis
Wednesday 6 March 2024
It was good while it lasted!
Wednesday 21 February 2024
I am not lazy!
Usually by the end of the day, you will find me resting in my recliner rocker or in bed. Especially when I have a fibromyalgia flare or a bad day with breathing difficulties.
Apart from the usual taunts such as "but you don't look sick" and the need to validate my need for rest, I find that the latest taunt is "you are so lazy!"
But appearances can be deceiving. If I were truly lazy I wouldn't even be resting or pacing myself in order to do a household task or cook a meal. I wouldn't even be entertaining the thought of cleaning or cooking.
People presuming to know my situation are often getting it all wrong. And it used to hurt. But these days, I have decided to let it run off my back like water off a duck.
I no longer let those unkind remarks get to me... Chris and I know the truth and that's all that matters.
Like looking well when I feel like death warmed over, resting to enable a task to be done does not mean I am indolent or don't care about my husband or my home.
Taking care of myself in order to take care of others may appear selfish. But nothing can be further from the truth: I am not lazy!
Tuesday 30 January 2024
I'm in love with my new maidservant
Monday 1 January 2024
More than a place to sleep
Recently someone asked why do we make our bed? I gave it some thought as I have recently been making my own bed daily, in spite of regularly going back into it for a nana nap. Here's a few thoughts on why I use my precious spoons to make my bed.
Monday 20 November 2023
We're going for a run
As you know, I have had to resort to using a wheelchair when I go out. It is not something I am happy about, but it is a necessary part of adapting to my new normal.
Along with walking, there are a few other things I have had to adapt to as well.
I sit on my shower seat. When I get out, I sit down again and dry off. That's about all the time I can stand.
Most times, Chris stacks and unstacks the dishwasher and this has stopped me having to stand and bend.
I always use the dryer even in good weather. I miss the smell of sun-dried clothes, but it is what it is.
I do make my bed for company, but even so it is just pulled up quickly, nothing fancy. I can't stand to tuck it in and I can't bend either...
With the ageing Australian Government Package, I have a support worker come every two weeks. She changes our beds.
Also within this Home Care Package, I can order ready cooked frozen dinners from Lite N Easy. The meals are designed by a dietitian and cooked by a chef. They are quite delicious and save me from having to stand to cook and I know we are eating well.
I am grateful for all this as it allows me to still be mistress of my home in spite of illness, pain and disability. But even so, I find myself longing for the soon rapture of the Church.
It will be so glorious to not only see my Saviour, but to be able to breathe easily, feel joy and go for a run...
Sunday 19 November 2023
Not falling off the vine
Since turning 70 last May, I have noticed a rapid decline in our health. Heart issues are worsening, pains are hurting, fibromyalgia is making spoons are scarce and my mood is darkening.
We both are enjoying the peace in our home that has been jealously guarded and nurtured. Quite simply, we cannot cope with other's dramas.So much so that we have become reclusive.
The days when we don't have to leave our home are cherished days. And even though we make a point to get dressed each morning, we are not adverse to having a couple of Pajama Days occasionally.
In short, we are wearing out. Physically, mentally and emotionally, we are spent. I can say that we aren't spiritually spent because we pray and worship a lot. It does help.
I have been posting a little spasmodically because of excessive fatigue, and I have decided that from tomorrow onward, I will post in a diary form recording bloods, blood pressure and so on. Plus anything else the LORD puts on my heart.
Today is Sunday and I have just done the least I can do to keep our home manageable. With the fatigue being bad and no spoons, I took a nana nap and it turned into a grandma nap. Three hours.
But I woke up and felt a bit better and managed to fold some clothes that had spent their new clean life in the laundry basket...
Anyway, I had a comforting thought which I will share: there's an old saying that the aged say... "I am so ripe that I am falling off the vine!" Not very comforting.
But the next thought was comforting- physically, yes I am- but spiritually, not so. Instead I am grafted into the Vine- Jesus and He sustains me and gets me through this painful path called life...
So, with His help, I am definitely not falling off the vine!
Saturday 18 November 2023
Hear me roar
Eventually you run out of dishes and knives and forks and of course, pots and pans. You work harder by having to scrub really dried on food. It's a drag.
So the other day I woke up and decided that this would be the day I washed all those dishes and cleaned my kitchen. With both my knees with meniscus tears, I doubted I would be able to accomplish this.
Anyway, in stints of about 15 minutes each, I managed to knock over the dishes and clean the kitchen. It was a novelty to see the benchtops clear of dishes and I pinched myself to make sure I was seeing the empty draining board and not imagining it.
Life has been tough lately with torn knees, sciatica and fibromyalgia flaring. I haven't been able to stand much and my muscle pain has been horrible. But I did it!
To 'normals' reading this, you probably will be thinking it's no big deal- it's doing the dishes. But to me it's like climbing a mountain or going on a 30 mile hike. That's how my body reacts.
To my Sacrificial Home Keeping Sisters, you will be rejoicing with me because you know how even a seemingly small task can feel like a marathon.
It was a marathon and I won! you can't believe how extremely proud of myself I am feeling right now. And relieved. It's nice to prepare a meal in a well organised and clean kitchen.
I am savouring the moment and don't care if you are laughing at me! I can do anything!
I am woman-hear me roar!
Thursday 28 September 2023
When the spoons are gone forever
Wednesday 23 August 2023
Help until He comes
Today was a busy day in that I was organising aged care help for Chris and I ... we arent coping all that well... lots of phone calls that had me on hold for at least an hour each
After nearly a whole day on the phone, I am happy to report that we were approved for help. Our aged care home package will start in 3-4 weeks. It includes transport, home maintenance, podiatry, and grass cutting. Later on as we get older it will include meals on wheels... but as long as I can cook, we would prefer our own cuisine.
I am hoping that God takes us Home soon. That is the best thing to dwell on. But meanwhile, while we wait, my house could do with a deep clean, our toenails are feral and we need them properly done. We cant take a bath and we help each other shower but a grip bar and telephone type shower have been promised to us under home maintenance, and that would stop the suffocation feeling of water pouring over our head when we can't breathe at the best of times..
We cant drive most times and we will need transport for a personal consultation with our doctor and the help they offer is needed now. Nothing to do with lack of faith or not watching- but we have to be practical.
Heart failure is a beast that stalks us both and is a progressive disease. Peripheral neuropathy in our feet and legs is a constant pain that stops sleep. A physiotherapist may be able to help or offer exercises to alleviate it.. all things that need attention now.
Including last but not least, changed bed linen that can be done without banging gnarled fingers and hands... and while we look with anticipation and longing to be Home, the daily necessities of life are calling.
We rely on God to help us and are grateful that He has blessed us with the help we need...until He comes. Our life style is always if the LORD wills.... we consider ourselves blessed that we are eligible for the help that's come our way, until He comes! God willing, it will be soon. But if not, we will be accepting help to keep going until He comes.
© Glenys Robyn Hicks
" So teach [us] to number our days, that we may apply [our] hearts unto wisdom" Psalm 90:12
Tuesday 22 August 2023
Time on the phone paid off
Once a year someone will come and wash our windows for us. The is all part of the Australian Government's plan to keep seniors in their own home instead of a nursing home.
I had to access three different goverment bodies today via phone with a waiting time of an hour or more, but with the ability to be approved so quickly and for the blessing it will be, the time on the phone paid off.
Wednesday 26 July 2023
That to me is true love
Sunday 2 July 2023
There'll be no divorce
If housework and you were married, there'd be no divorce... it would be a co-dependency relationship though.
You need a clean environment and housework needs to be done!
The only way I could see a divorce would be if the fictitious fairy godmother were real, and cleaned for us and therefore the codependency would be over.
Housework is something that is never noticed until you don't do it, and it becomes a personal embarrassment when your lack of intimacy with it is noticed... so the desire for constant attention that housework demands is given ones full compliance in order to not be embarrassed... codependency at its best!
Such is the grip housework has on even us chronically ill fibromites, we will appease it way beyond our comfort zone or we will pay someone to clean for us.
As long as there is a dwelling to clean, housework will partner with us and will turn up on the winning side every time.
There's nothing like dirty house to bring out our guilt and unhappiness and the heartless housework will unmercifully multiply its untidiness inducing a desperate response from it. After all, it doesnt care how or who does it... as long as its top dog.
Fit or not, young or old, you do unwittingly partner with housework the minute you get a dwelling to clean... And the partnership will continue until you no longer dwell there...There'll be no divorce!
Tuesday 25 April 2023
I find that very relaxing
If ever a picture epitomises you and your home and lifestyle, it's this one. A lady dressed sensibly and warmly with knitted socks looks out of the window watching the birds feed from the bird feeder.
Her cats also watch, but with ulterior motives, mentally stalking them as prey. She has a cuppa in her hand and seems wholely relaxed.
Like our home, she has a blanket over her armchair, protecting it from the cats and adding a homely touch.
I would love to visit her home as I feel like we would be kindred spirits...
Anyway, today is the first day off the Prednisolone. I tried to halve the tablets but they crumbled. So I will be going off them cold turkey. I was only on them for four days...
My polymyalgia is improving but I still have a headache. I have just taken some paracetamol for that.
The Roombas have been run, I have pulled my bed up, done breakfast, bloods and meds and a load of washing which is now in the dryer. The weather is lovely today and I really should have hung it outside. But the PMR and fibromyalgia says otherwise, so I will have to listen to my body and just go with the flow.
I have a couple of pork chops on the kitchen bench thawing for tea tonight. I will serve mashed potatoes and a salad with them.
I am going to take the rest of the day easy as I have to pace myself.. fibro is raising its ugly head again.
Meanwhile, I will sit on the couch and let the fresh air fan me as I lay in the sunshine on my couch for a bit.
From my view on the couch, I can watch the clouds and I find that very relaxing...
Monday 24 April 2023
It still is that for me!
Yep, it's still Safeway for me! With fibromyalgia brain fog and old age, tell me the new name of a place or person I knew, and it is lost forever... they will forever be the name I first called them!
So I had a phone consult today and the doctor wants to wean me off prednisolone after only four days.. it hasnt really done it's job quite yet, so I am going to spin it out for a few more days ...
Today I have washed some minkie blankets off our beds, ran and then emptied the Roombas, cleaned the toilets and ordered online medicines and groceries.I did some rounds of crochet in between tasks..
Chris loves bangers and mash so that's what I will be doing for tea tonight..
The Prednisolone fills me with fake energy, but I don't care... I will milk this Polymyalgia rheumatica situation for all it's worth! I know I won't be long on the meds so I may as well turn the antsy feelings for my good...and get the benefit of some pseudo spoons!
For those who don't know... in Australia Safeway Supermarkets took on the name Woolworths many moons ago: but as I said, it still is that for me!
Thursday 20 April 2023
She's a Diva!
I have changed my blood pressure tablets around and take the stronger of the two Physiotens at night and it has helped me sleep better again.
Consequently, I awoke with a few more spoons this morning and I paced myself and managed to catch up on some home chores I was behind in.
It's now evening and I am winding down for the day.
I managed to fold and put away a weeks' worth of washing which was weighing on my mind. I always meant to get around to it, but fibromyalgia reduced spoons saw to it that I didn't.
Although spent and exhausted at the moment, I have a feeling of accomplishment. I like it. So tomorrow, God willing, I am going to iron my few articles such as our pillowcases and sort out my medicines.
It's going to be cold tonight, so I have already put our electric blankets on. Our cat, Xena has found the warm patch already and is asleep on my bed. It will be interesting to see if she objects to me slipping in beside her when I retire tonight. She actually tells Chris no when he comes in to say goodnight.
They say cats aren't very expressive, but Xena is! She's also very bossy and fussy. We love her to bits, even if she's a diva!