Not falling off the vine

 

Since turning 70 last May, I have noticed a rapid decline in our health. Heart issues are worsening, pains are hurting, fibromyalgia is making spoons are scarce and my mood is darkening.

We both are enjoying the peace in our home that has been jealously guarded and nurtured. Quite simply, we cannot cope with other's dramas.So much so that we have become reclusive.

The days when we don't have to leave our home are cherished days. And even though we make a point to get dressed each morning, we are not adverse to having a couple of Pajama Days occasionally.

In short, we are wearing out. Physically, mentally and emotionally, we are spent. I can say that we aren't spiritually spent because we pray and worship a lot. It does help.

I have been posting a little spasmodically because of excessive fatigue, and I have decided that from tomorrow onward, I will post in a diary form recording bloods, blood pressure and so on. Plus anything else the LORD puts on my heart.

Today is Sunday and I have just done the least I can do to keep our home manageable. With the fatigue being bad and no spoons, I took a nana nap and it turned into a grandma nap. Three hours.

But I woke up and felt a bit better and managed to fold some clothes that had spent their new clean life in the laundry basket...

Anyway, I had a comforting thought which I will share: there's an old saying that the aged say... "I am so ripe that I am falling off the vine!" Not very comforting. 

But the next thought was comforting- physically, yes I am- but spiritually, not so. Instead I am grafted into the Vine- Jesus and He sustains me and gets me through this painful path called life...

So, with His help, I am definitely not falling off the vine! 

We have to live through the bad times

Every day is precious no matter how much you ache or hurt. Life has to be lived rather than endured.

Realising how short life really is should encourage us to live it with courage, taking hard times as

a challenge.

Not every day will be sunshine and roses, but those days will help us appreciate the days that are.

Remember too, we have to live through the bad times to get to the good.

 © Glenys Robyn Hicks 

 “See then that you walk circumspectly, not as fools but as wise, redeeming the time, because the   days are evil. Therefore do not be unwise, but understand what the will of the Lord is.” Ephesians   5:15-17

Another day at The Beach

So we were watching the birds coming down for the seed and bread and I grabbed my phone and did a short video.

As you can see, the beautiful coloured small parrots came down in droves, making it a lovely afternoon at The Beach aka the couch.

With pacing and resting during fibromyalgia flares, I find the beauty of nature helps to lift my spirits and give me some peace.

I thought if I shared it, it might brighten your day. By the way, although the sound's not great, could you hear Xena crying "Mum!"? She badly wanted me to allow her to go outside.

I couldn't risk it as she would most likely attack the birds or at the least, frighten them. We don't want anything to jeophardise the possibility of another day at The Beach! 

You don't get that in the city

 

What we saw from our back door. Xena is sitting eyeing off the Kingfisher who isn't at all perturbed by her. Nor was the rosella who flew in for some seed and watermelon. Never a dull moment in our backyard.

It was such a lovely day. We sat on our couch and just listened to the stream and the birds were calling and coming down to eat and drink and bathe in our birdbath. It was relaxing like a day at the beach, which is what we call our couch, "The Beach"

Later the Kingfisher was joined by his mate and two others who dine at our place frequently. They came to an inch of Xena and she just sat in the sun watching them. They've got her pegged: she's a scaredy cat!

Chris's face was paining him from his Bell's Palsy and my fibromyalgia was making me feel as if I had been run over by a bus, but the peace and the sunshine made us glad to be alive.

Some corellas just joined the chorus and a kookaburra started laughing nearby. Not for the first time, we commented how much we love our little country cottage and its wildlife. You don't get that in the city.

Hit by a truck!

 

Things are pretty bad here in Victoria. We have been in lockdown for months now and in spite of low numbers of new cases and deaths mainly related to aged care facilities being hit with Covid, our Premier is in no hurry to ease the restrictions. 

I haven't seen my family for about 3 months now.  We are country so our restrictions are stage 3, they are suburban with more cases so they are on the stage 4.  The borders are patrolled by police.

Chris and I are staying home except to go to the chemist and for a drive when we are going stir crazy. We are allowed to go for a drive as long as we stay in our general municipality. 

People in Victoria are desperate. There won't be many businesses to reopen when he finally allows it. The Premier is giving a live broadcast soon... I hope it's a lessening of restrictions.

With my fibromyalgia flaring due to imclement weather, I am trying to keep my peace and have a quiet and undisturbed spirit.

I am wearing my Oodie with the hood up so as to keep my neck and shoulders warm. They are aching so badly that I can hardly turn my head.

Most times because of my fibro pain, I am happy to stay at home. Especially nice at the moment is our new mattress which is more plush than our older one which will go into the guest room. 

It helps with my muscle pain and anything that helps is just the ticket for when fibromyalgia makes even laying down a painful chore.

Today I am resting and doing just the essentials in our home. I will be cooking a vegetable intensive stew for dinner. Nothing that requires a lot of preparation.

I will be doing some bible study later on and just vegging in my Oodie. Not much on my to do list today, which is just as well when one feels like they have been hit by a truck! 

Basking in a new world

Over the years, I have spent many a time in a hospital bed.  For weeks at a time, I would lie in traction with Scheurmann's Disease, with hardly a visitor to see me.

I recall every time my mother came in to see me, she would ask if my (then) husband had been in. The answer was no. In fact, he would drop me off at the hospital entrance and then take off speedily. I would only see him again when I got home.

It got so bad that I would never let him know that I was trying to pass a kidney stone or needed another bout of traction until the moment I had to be admitted for treatment. Then all hell would break loose. It was just a sad state of life wherein I wasn't noticed or wanted until a meal had to be cooked or a shirt ironed.

Of course, I would lay internalising why he wouldn't visit me, and the end result was captured in one solitary, heart breaking and mind numbing word: rejection.

In between hospital stays, I limped along life, serving my husband and family, yet feeling terribly alone and miserable.

In the course of time I left my abusive husband and married Chris 4 years after leaving. All came crashing around my ears when I got fibromyalgia. 

I came home from seeing my rheumatologist for my wide range chronic pain and fatigue, and along with a negative result for lupus, came the diagnosis of fibromyalgia.  The trip home seemed unbearably long as I rehearsed in my mind the scene of rejection again awaiting me with this latest news.

You can imagine my amazement when Chris made me a cup of tea as he listened to the diagnosis. He was the epitome of compassion and love. When he handed me my cup, he was astonished to see me burst into tears: not tears of pain like before, but tears of love, happiness and relief!

Holding me against himself, he said he was so relieved I didn't have lupus, and vowed to help me in any way he could with this new thing called fibromyalgia. 

He was true to his word and together we learned about this new enemy that threatened to destroy my happiness. We vowed to never give it the power over us to come between us.

Twenty two years later, we speak in terms of spoons and nana naps and Lists. Pacing and paracetamol and heat pads are our love language.  

As for the young woman watching out for her husband from behind the curtain: she has gone now, to be replaced by an older happier woman basking in a new world of love and that vital word for all fibromites: validation. 

In the end, we win!

I have been talking to some women who also suffer from fibromyalgia and they have agreed that we sometimes have to set ourselves up to hurt.

If there's somewhere we have to go to and we can't reschedule it, we all have sometimes gone knowing that tomorrow will be horrendous painwise.

The once in a blue moon chance to have beloved grandchildren stay over comes and we often willingly plan to have them, in spite of knowing the consequences for tomorrow. and the next day. and maybe even the next.

Life is unpredictable, and we ill women know that sometimes pushing ourselves to accomplish something vital to our mental happiness, is going to be worth the physical pain it will unleash.

We must live our life even if that means planning to accept the pain. 

In fact, we would do well to prepare for it by planning to cook easy meals for the next couple of days and by postponing as much of our daily housework as we cab for the time being. 

We should make sure we have heating pads, electric blankets, comforting drinks and heaps of paracetamol on hand as well. Maybe some comfort foods like chocolate on hand would be nice. 

When we face the fact that we are most likely going to hurt tomorrow anyway, we might as well bite the bullet and plunge into life head first. We will have happy memories and/or a sense of satisfaction to cuddle up with the next day or two!

We may be setting ourselves up to hurt, but in the end, we win! 

And Baby makes three!

 

For the first time in ages, I have a few spoons and I have been having a few days of respite from my fibromyalgia flare.

It is forecast to rain over the next few days, and the weather is cold, so I probably will find this respite all too brief. But, we live in hope.

I have been taking stock of our pantry and fridge because many abattoir workers have been taken ill with the virus and only one abattoir in Victoria remains empty. Which means that there will soon be a shortage of meat and in particular, mince.

Also here the Covid cases are mounting fast and we have been given stay at home orders. So I will be doing my grocery shopping online. I want to make sure I rotate the food we have and don't over buy on things. So that is my plan for today.

I have some bread dough proofing and I will bake that for tonight. I will be serving crumbed fish, mash and salad with it for dinner.

My washing and dishes are up to date and that makes me happy. In fact, I am very happy up here despite the quarantine.

I love our home here in the country and I feel very happy and grateful to God for giving us this home. If one has to be under lockdown, I can't think of a nicer place to do it.

Xena is happy here as well. It's been cold lately but we have turned the heater off as the sun comes in the back sliding door and warms the lounge room nicely.

Obviously not enough for Xena who spotted Chris's new Oodie on the couch, and so decided to make a little nest in it for herself. 

I have a pink one, Chris has a navy one. Best money I ever spent. We love them and it looks like with Xena, that Baby makes three! 

In my dreams!

Ever since I was a young girl, I have dreamed of being an energetic housewife, baking and cooking from scratch. I would keep an immaculate house as well and my washing would be as white as snow.

Of course, I would iron everything that was on the line and my pantry shelves would be well organised with the spices kept in alphabetical order. And it was so for the first two years of my first  marriage.

But then much sickness came into my life, heralded by displaced discs and Scheurmann's Disease, and the dream evaporated as quickly as my energy and eroded discs.

This dream kept springing back in fits of discontent with myself and no small amount of false guilt. With the onset of heart disease, diabetes and fibromyalgia, the dream became a nightmare that taunted me. 

Perfectionism pointed its' knobbly finger at me, taunting me and demanding I try harder. It insisted that I find my worth in my homemaking abilities as a woman, and I was miserable as well as in pain.

It took until I was into my 20th year with fibromyalgia to realise that my worth as a woman was not on how well I kept my house. 

I decided to focus on the fact that God loves me just as I am and that helped remove the false guilt.

So now, in my 67th year, and my maladies worsening, I have had to put the dream to rest. I am never going to be the woman of my dreams. I have someone come to clean for me once every two weeks and I have learned to be grateful.

Only in accepting your illness can you find peace. Our womanhood is not only about keeping an immaculate house. And as I look at my clean house today, I am glad that we have the Aged care package that allows home care help. 

As I talk to you now, I smile at the irony: my energy comes through the woman who cleans, and my home is still clean. I have a maid in my later years- and that's something I thought would only come to be in my dreams! 

Today's lists of to do's are:

Make our bed

Do a load of washing

Fold yesterday's clothes

Make a sweet curry stew with rice for dinner

Let's be clever ducks!

So I am at  the "beach" again today... just watching out the window as the sun hid behind a tree. In the paddock behind our property, a little family of ducks waddled across towards the stream. One by one with a big plop, they threw themselves in and were rapidly whisked away on the current, probably ending up at the larger town twenty kilometres away.

With world events on my mind, I thought of how quickly we can all be whisked away to a future world we don't really enjoy or even like much any more.  It is dark and frightening for most of us-and especially so for the non believer in Christ.

For Christians have a hope and expectation: we are expecting and waiting for Jesus to come for us, and so we will be forever with Him, away from the anger and wrath that awaits the world. 

Whether we like it or not, we are being whisked away on a flood of rushing water and where we end up for eternity depends on whether or not we accept Jesus Christ as our LORD and Saviour. 

No good works will make us good enough to go to Heaven: Jesus Christ is the ONLY way. 

My prayer today as I watch those ducks making use of that current is that we will all be found safe at the other end with Jesus. Let's be clever ducks!

Nor is there salvation in any other, for there is no other name under heaven given among men by which we must be saved. —Acts 4:12

I aint no cry baby!

So a few days ago it was my birthday. The day started well with Chris giving me breakfast in bed. During the day I facetimed with my family. 

We usually go out for a meal on each other's birthday, but of course with Rona, we had a change of plans. So Chris took me to KFC drivethrough for dinner. We ordered our meal and then ate it in the carpark of Safeway, under the romantic light of the trolley bay!

The rain was belting down and we sat there reminiscing about earlier days and how different things are now.

But we never let Rona spoil our moment. At nearly 70, life teaches you many things. One thing appropriate for now is that you gotta bend or you will break..... 

Seems like at my stage of life and health, bending to difficult circumstances is the only bending I can do.... and laugh. Yes, you gotta laugh. Or else you cry. And I aint no cry baby!

Things on my to do list:

1. Fold and put away washing
2. Do a roast lamb in the air fryer for dinner
3. Clean my kitchen

Enjoying my home

Even though we haven't enjoyed the fact that we have been on lockdown, we have still enjoyed our home.

We have done things around the house, I have tried new recipes to cook and we spend a lot of time just watching the birds and our cat.

There is a lovely feeling of peace, no anxiety and just a sense of calm. I am enjoying Chris's company and the days are going fast.

We have gone to bed late and slept in. Which is just as well because the changeable weather has my fibromyalgia flaring nastily.  It is so nice to be able to just take a nana nap without feeling guilty. 

I have done my grocery shopping online and ordered our medications on an app. That way I only have to run in and pick them up instead of waiting forever for them to be made up.

Yesterday's doctor's visit was done by phone with him faxing our prescriptions through to our chemist.

We are enjoying the peace of scripture and worship music playing in the background and my Quiet Time is now any time I feel like doing it. 

I honestly thought that being in lockdown would drive me nuts, but quite the opposite. Apart from knowing that I can't go out like before, I am still enjoying my home

Staying busy

So in the wake of the Corona Virus comes anxiety and uncertainty and I have been finding my adrenaline racing. With listening to too much news, I am inclined to get depressed and so, I am staying busy. Well, as busy as fibromyalgia and spoons allow.

I am finding by keeping busy that my mind slows down and this brings my blood pressure and heart rate down as well. There is less adrenaline pumping through me. And less angina.

My friend, Mrs Sylvia Britton of Christian HomeKeeper is a very gifted writer. She has blessed me so much with writing her Lists for the chronically ill woman. I follow them most days and they have helped me so much for many years now. 

Sylvia graciously allowed me to post her Lists here and on my other blog and I am eternally grateful.

Recently she has written a post which is so very helpful for us concerning coping with isolation and the Corona Virus.  Once again, she has graciously allowed me to share this with you. Thanks again, my friend.

Sylvia's advice is always scriptural and sensible, and I have found a sense of peace since staying busy.

So today I have:

1. Done a load of washing
2. Put it away as well as a load I found in the dryer! :)
3. Cleaned my kitchen
4. Made some Jewish Penicillin 
5. Roasted some chicken drumsticks for dinner
6. Sorted out our medications for the week
7. Watched Episode 7 of The Chosen  very moving... 

Highly recommend watching it.  He is our Hope and I am so grateful to Jesus for His sacrifice, His salvation and His grace to me.

My body is hurting with the fibromyalgia flaring, but I would prefer that to sitting fretting about Rona. 

I really think the answer to anxiety sometimes is staying busy.

Staying home for real comfort.

So like most  of the world at the moment, we are staying at home to help stop the spread of the Corona Virus. 

We have accepted that this will be the new normal for at least six months and with acceptance comes a certain amount of peace.

As we talked about earlier, Chris and I are focussing on making our home a cosy nest. We have been getting a lot done that makes us both glad we have this home to nest in.

I have been cooking things I know Chris loves and have joined the local chemist's phone app for ordering our repeat prescriptions without going in. They make them up, then phone us when we can come and pick them up.

As spoons allow, I am doing my cleaning by zone according to FlyLady  However with my fibromyalgia flaring due to changing weather- lots of rain, that hasn't been a regular thing.

By and large I have enjoyed being home. There's a peace knowing we won't be likely to get Rona and also that by staying home, we in turn will not be passing it on should we get it.

I have been playing scripture in the background and changing to worship music at times as well. Whenever I find I am worried about Rona, I start praying. That is such a wonderful tool and brings an immediate sense of peace.

I have a few things I want to do today:

1. Do my dinner dishes as I just didn't have the spoons last night.
2. Bake some scones for afternoon tea
3. Make another veggie intensive chicken chow mein with rice for dinner

That will probably be it for today as I am feeling extremely sore and tired. Just another reason staying at home is real comfort.