Thursday, 8 August 2024
My cactus sofa
Tuesday, 16 April 2024
A boring home life
Monday, 1 April 2024
She was right!
Wednesday, 24 January 2024
Helping ourselves
I need pain relief. My doctor's on holiday until Feb 9 so I had a phone consult with his doctor wife. I told her my pain is currently off the charts with fibromyalgia, polymyalgia and both knees paining me badly. I asked for a prescription for Tramadol but she said for me to wait until he comes back!
Too long to wait when you are blown away with pain. So I am going to take some Prednisolone for a few days. I have some in the house.
How is it that people with genuine pain issues who rarely ask for help, are regarded with suspicion and treated like a druggie? it's not fair...
Sometimes you have to go against the medicos and do whatever gives you relief.. (as in taking Prednisolone for some relief) People who are chronically ill and in pain have been known to commit suicide... I can understand why- not that I am going to... just sayin'
We are judged so harshly because of those who rort the system and abuse the drugs.. We have to be our own doctor and help ourselves.
Monday, 23 October 2023
Ordinary is good!
Sunday, 14 May 2023
It's going to be a PJ's day
Sunday, 4 December 2022
Invisible illnesses hurt as much as a broken arm.
Sunday, 3 July 2022
Pain is a disability
Anyone who suffers from chronic pain knows that it precludes us from a lot of enjoyment of life. Pain makes the vicissitudes of life that much harder to bear.
Everything is exaggerated both physically and mentally, and the only thing I can do is accept that this is not my usual self, for pain changes people.
Pain disables us in many ways. from physical activity. from family life. from sex. from sleep. from patience. from social life. from functioning normally. from life generally.
The effects of pain cause us to withdraw from people and become reclusive. It makes us feel isolated and unable to really feel understood or validated. We learn to be distrustful of others.
Because chronic pain, in my case fibromyalgia, causes us so much mental as well as physical angst, we decide to retreat to our home often preferring it even if we had enough spoons to leave.
Seeing as pain is such a disabling affliction, it makes no sense to me that we are often regarded by doctors with suspicion when we request heavy duty pain relief such as opiates.
Most of us cannot get enough medication to adequately help us with our pain. We often then succumb to depression and live as recluses due to agoraphobia.
We who suffer from chronic pain know that it is a disability. Invisible and destructive. We live in the knowledge that pain is disabling.
We just wish doctors were as aware of the ongoing relentless disability called Pain.
Saturday, 18 June 2022
It's a pain in the neck
Sunday, 24 April 2022
We have gone mad!
The rheumatologist suggested to my daughter who suffers from fibromyalgia and pain post chemo, to use it as a distraction from the pain. She was one of these mind over matters kind of doctors. We were not very optimistic to be honest.
As a sufferer of not only fibromyalgia but ankylosing spondylitis, spinal canal stenosis coupled with bad arthitis and angina, I thought it may help me. It helps a little. But Tramadol would be better!
My doctor won't let me have them. Even though he knows I only take them as required for high pain days like today. He gave it to me when my second knee tore and it helped my fibro pain so much. Then he closed shop!
I know there have been many who abused pain-killers but when basic pain relief is available only with a chemist's approval such as Panadol with codeine, it makes life more difficult for the person like myself, to get any relief at all.
With fibro flaring and another episode of polymyalgia rheumatica, I have been tempted to take some of my Prednisolone, but I am worried about the side effects. I tell you truly, I am feeling desperate.
So even though you may see me playing Candy Crush or online a lot, I can honestly say that it's for medicinal purposes. I will be a Candy Crush addict any day if it will relieve the pain.
Just don't tell the do-gooders. If they think we are liable to become addicts, they'll make FB take it off their site! You fellow pain sufferers know they will. We have gone mad in our correctness!
Wednesday, 20 April 2022
On my cactus sofa
Friday, 25 March 2022
The only nice thing about it
Monday, 17 January 2022
Our little haven
Wednesday, 12 January 2022
You can say that again
So today we have shopped online but most of the food we ordered was unavailable. So we took a trip to Aldi and managed to get meat, chicken and cat food. Most products are being limited now. There are distribution shortages of staff due to Covid.
There's a four hour queue to get tested or one can do a Rapid Antigen Test at home, but there's a shortage of tests and it's very difficult to get one. People who can't get tested are isolating and missing out on work just in case they are positive.
Our Prime Minister suggested that as most Australians will test positive soon so he told us to make sure we have paracetamol aka Panadol on hand so that we can manage symptoms at home. (Lotsa luck with that one!) So people went out and stripped all pharmacies and supermarkets of all brands of paracetamol.
To top it all off for me is that once again, my antidepressants haven't made it off the wharves. They don't know when they will be available again. So it's lucky that I have extra Panadol on hand for my fibromyalgia and an extra box of antidepressants. I am so grateful to the Proverbs 31 wife in scripture who was always prepared and laughs at the time to come.
A past Prime Minister of ours once famously quoted that life wasn't meant to be easy. You can say that again.
Friday, 19 November 2021
Choppy waters ahead
Well our day is still in full swing. I have dishes to do and clean washing to fold up and put away. We went to the chemist and picked up prescriptions yesterday. Apparently there's a world wide shortage of one of my anti-depressants, Dothep 25 and I am on my last script. I have been waiting for 2 months for some. The Dothep anti-depressants help me with my fibromyalgia pain. I hate to be without them.
The practice of keeping extra meds in case of emergency has paid off for me. But I will be out soon. That's a worry as the sea gets very choppy when I mess with my anti-depressants. I think they are in a container somewhere on their trip to Australia.. Apart from those few tasks, and cooking, that will be all I can manage today.
I am praying that I get those anti-depressants before I run out or there will be very choppy waters ahead.
Monday, 15 November 2021
Keeping my wheels turning!
Good morning. It's a new week! We have to go out today, just some grocery shopping and a trip to the post office. That will be before I tackle last night's dishes.
I was so tired last night that I left them, hoping to wake up with some spoons (energy). That didn't happen so the grocery shop takes priority today.
Some lamb chops are defrosting for dinner tonight. I will do mashed potato, vegetables and gravy with them. A sandwich will suffice for lunch.
I use the frozen mashed potato, steam packs of vegetables and instant Gravox gravy. I am fortunate in that Chris loves meat of some sort with two veg and if one of them's mashed potato, he's a happy man.
Being able to go without peeling potatoes and shelling peas is a godsend for me. The arthritis in my hands, the torn knee caps and spinal problems make standing to cook to prepare a nightmare. I am too short to sit on a chair as I can't see over the benchtops properly.
When in a fibromyalgia flare like today, it is just the icing on the cake. It literally tips me over. The pain is incredible and never lets up. I do have a high pain threshold but when the pain is 24/7, it wears you down.
I think I will make myself a cup of tea and take some painkillers. That's the only way I will be able to function today. They can join my other ten tablets taken this morning. I swear I rattle when I walk. It is what it is! But hey, whatever keep my wheels turning!
Monday, 23 August 2021
Living on a wing and a prayer
Tuesday, 17 August 2021
Wheelchair bound
So, the MRI results are in. I have a meniscus tear, fabella, torn posterior crucius ligament, bursitis and osteo arthritis behind the patella. It needs surgery as it does not repair itself.
I am to see an orthopaedic surgeon and meanwhile I must rest the knee and use pain killers.
We have bought a shower chair and a wheelchair. I have had Chris push me on the seat of my walker, but it is a big strain on his heart and I worry about him.
It is difficult to focus enough to write at the moment and I spend a lot of time on the couch aka the beach, or in bed with my electric blanket.
I am just able to stand enough to wash some dishes, cook a meal and stack the washer and dryer. Chris helps sometimes and has been my legs.
I am making use of the slow cooker a lot, cooking the meals as I am able to stand.
As with all new health issues, I am trying to come to terms with this "new normal" and the constant struggles with fibromyalgia are now "normal" and this new challenge is calling for all my ability to accept my new lot in chronic illness.
I am disheartened that both my knees have now given way (I have a torn meniscus in my other knee), and am trying to feel grateful that I could afford a wheelchair. Thank goodness for afterpay.
However romantic a picture I can find really doesn't cut it for me as I struggle to accept that I am now wheelchair bound.