Friday, 7 November 2025
So very grateful
Saturday, 12 April 2025
I think I've earned it!
You may recall I posted about my new wheels- my motorised scooter coming.. well it came this week!
I have had a burl around the block and am very pleased with it. But I have had problems with health again and it's been hot, so I haven't been out a lot on it yet.
I have been waiting for it since December 11 last year. As it turns out, my case manager for my Aged Care package went on holiday and it was sitting in the warehouse waiting for her to clear it for delivery.
It's no use complaining and I am very grateful that I have it. My knees have been paining me very badly lately and my angina is causing my problems.
Adding having only one functioning lung and a hole in the heart and my swollen legs thanks to lymphoedema, I guess I have earned it... lol
Sunday, 17 November 2024
Rome wasn't built in a day!
As you probably know, we have recently moved again. It is almost complete with just a few boxes to unpack.
We are so very tired and I have exacerbated fibromyalgia and angina pain.
We love this new house and is still quite large like the one we have just left. But honestly, I really hope we dont have to move again because I feel quite done in.
Most things now have found a new home, but as soon as I recover from the move, I will declutter and organise our things better.
So I am finding myself falling asleep at the computer or feeling really razzed, and I have had to have a nana nap during the day or I won't have enough spoons to cook dinner...
And speaking of dinner, I have been making use of my slow cooker to help me when I haven't got any spoons. It has helped take the pressure off me.
Lately having no spoons is my new normal so I have had to rest and pace myself.
Something this move has taught me is to be patient. I have had to learn to wait until others are able to help me and my new mantra is "Rome wasn't built in a day!"
Monday, 26 August 2024
It is what it is! indeed!
Wednesday, 17 January 2024
It's all too much
So recently I have had chest pain in angina and breathing problems coupled with what I thought was fatigue from an ongoing fibromyalgia flare.
My blood pressure sky rocketed, requiring a visit to a cardiologist who ordered an echocardiogram. My general practitioner told me if the results were bad, he would contact me. And he did.
I got the call last Friday telling me to make an appointment for a phone consult so I ended up speaking to the doctor on Monday. He told me I have heart failure due to Pulmonary Hypertension.
There is no cure for it but there are some treatments. I am already on blood thinners which I will stay on as PH can cause blood clots in the lungs. I already take 7 blood pressure tablets a day.
I often have felt dizzy and this is another symptom of PH and I feel like I can't get enough air in at times. The time will come when I will probably need oxygen at home.
Forget about exercise- I nearly collapse with exhaustion after walking up our long passage to answer the door.
I will know more tomorrow when I see the doctor in person. This is needful because he wants to check out the swelling in my feet, ankles and legs. I suspect I have fluid in my abdomen too. It hurts and is tight like a drum.
I had a blood test yesterday to check on my kidney function and this will be a regular thing.
Lately it's been one thing after another and I am a tad depressed. Prayers would be much appreciated. It's all too much!
Monday, 1 January 2024
More than a place to sleep
Recently someone asked why do we make our bed? I gave it some thought as I have recently been making my own bed daily, in spite of regularly going back into it for a nana nap. Here's a few thoughts on why I use my precious spoons to make my bed.
Saturday, 15 July 2023
Just living is a physical ordeal.
Friday, 23 June 2023
I need him awake and aware
Saturday, 27 May 2023
Taking the pressure down
Whatever the worry of checking and medicating sugars and blood pressure is has been and gone..it is what it is.
As the sun goes down and the moon rises, there is the hope of a restful sleep and whatever chores were meant to be done are either completed or waiting for tomorrow.
We can rest and wind down, enjoying whatever simple pleasures we have left after the raviges of pain and illness. Whatever helps us unwind and take the pressure down is welcome and wanted..
The drapes are closed, the fire lit, the kettle has recently boiled and a tea tray awaits our attention..a final sip of our favourite beverage accompanied by quiet reflection and conversation.
One knows that the morning will bring its own anxieties that life struggling with chronic illness brings, but for the moment the hope of a restful night's sleep resides in our bosom... hope is what keeps us going.
As we lay at last in our bed awaiting sleep, we can reflect on those things that light the wick in our candle of hope. Those things that have given us comfort and peace throughout the preceding day..they are worth remembering...
Being thankful for the good things in our day helps us get a better sleep and is a way of taking the pressure down...
Sunday, 16 April 2023
I am no longer a bunny!
Monday, 16 January 2023
More than just a place to sleep
Wednesday, 5 October 2022
Here a little.
Sunday, 25 September 2022
It's a pain!
So the day has started off without any appreciable spoons. However, I have purposed to do some chores in the house regardless. Simply because they have to be done.
With the last two days slack on housework, there are dishes and washing and some other chores that are shouting to be done.
My sugars are still 10.4 this morning in spite of taking the new diabetes medications for a week. So I accept that I am never going to feel really well. Fibromyalgia and angina coupled with back pain also seem to do that.
So today's list of to do's are:
- Soak and wash dishes and put away after air drying
- Catch up on the washing and put it away after the dryer has finished
- Cook some lamb stew in the slow cooker for dinner
Sunday, 24 April 2022
We have gone mad!
The rheumatologist suggested to my daughter who suffers from fibromyalgia and pain post chemo, to use it as a distraction from the pain. She was one of these mind over matters kind of doctors. We were not very optimistic to be honest.
As a sufferer of not only fibromyalgia but ankylosing spondylitis, spinal canal stenosis coupled with bad arthitis and angina, I thought it may help me. It helps a little. But Tramadol would be better!
My doctor won't let me have them. Even though he knows I only take them as required for high pain days like today. He gave it to me when my second knee tore and it helped my fibro pain so much. Then he closed shop!
I know there have been many who abused pain-killers but when basic pain relief is available only with a chemist's approval such as Panadol with codeine, it makes life more difficult for the person like myself, to get any relief at all.
With fibro flaring and another episode of polymyalgia rheumatica, I have been tempted to take some of my Prednisolone, but I am worried about the side effects. I tell you truly, I am feeling desperate.
So even though you may see me playing Candy Crush or online a lot, I can honestly say that it's for medicinal purposes. I will be a Candy Crush addict any day if it will relieve the pain.
Just don't tell the do-gooders. If they think we are liable to become addicts, they'll make FB take it off their site! You fellow pain sufferers know they will. We have gone mad in our correctness!
Friday, 24 December 2021
Oh no, no ho ho!
Tuesday, 19 October 2021
I need him awake and aware
Tuesday, 2 June 2020
Still the mistress of our home!
Monday, 11 May 2020
Light at the end of the tunnel
Sunday, 26 April 2020
Feeling nurtured
Saturday, 11 April 2020
Staying busy
- Done a load of washing
- Put it away as well as a load I found in the dryer! :)
- Cleaned my kitchen
- Made some Jewish Penicillin
- Roasted some chicken drumsticks for dinner
- Sorted out our medications for the week
- Watched Episode 7 of The Chosen very moving...



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