Wednesday 25 May 2022

We just have to embrace it



We have been looking for another house closer to family. We have applied for one yesterday and had a phone call from the real estate this morning which sounded positive. 

Our fiver got to South Australia to its new owner and they rang us to tell us how pleased they were with it. So that's good. 

We are taking our GMC Sierra to the mechanic for a good overhaul Monday and then we will decide what we will do with it. Over here they are seen as a luxury ute and we think a young buck would love it. That's what we are hoping. 

My twin and son and granddaughter continue to recover from Covid but are still very much under the weather with it. 

I am convinced that our prayers have helped keep my twin. She's so many serious health issues such as lupus and I was afraid for her. 

I have done a load of washing, cleaned my kitchen and am about to make some lunch.  I have a flare of fibromyalgia again and my spoons are nearly all gone.  I will be  taking a nana nap soon.

With an imminent move, I am not looking forward to the energy output, however I am looking forward to being nearer family.

I will miss the birds and our feral cat who is gradually becoming less timid as we feed him. We have named him Teddy Bear as his face is surrounded by bushy fur and he is gingery brown and looks like a teddy.

But I know in  life that one rarely gets everything one wants and so we have weighed up staying or moving. We have decided that we want to be closer to family, particularly our daughter who has had leukaemia.

With a bird bath/feeder and garden swing to take with us, we will continue to feed the birds as we watch from the swing in the garden.

It's true what they say: nothing is sure except death and taxes. Life is full of change. We just have to embrace it.


Tuesday 17 May 2022

He's feeling fairly ordinary.


It's been a busy day today. I have a broken off tooth that needs to come out. We had to be at the dentist's by 8.30am and it was an hour long drive. I was being fitted in as an emergency and was warned I could be waiting for up to 2 hours to get seen. 

Two hours passed by waiting and I was then told they couldn't see me today. They gave me a list of dentists I could see but it was too late to be seen today. 

So we drove about an hour away to see a house that we have applied for to rent. It's so nice and the inspection is tomorrow afternoon at 5pm. I hope we are successful. We have told the landlord we are looking and he was fine. 

When I got home I rang a few dentists on the list and I have an appointment midday Thursday for an extraction. My tongue is sore as the tooth is quite sharp. With my fibro flaring and TMJ, I am just about out of my tree with pain. 

My twin sister and my son have Covid and continue to feel sick, but she's feeling a little better, but my son has man flu. I am so glad Chris and I haven't got it....

I am already in my PJ's with my electric blanket on.  I have rung my son to see how he is before I go to bed.  Not so good. He's feeling fairly ordinary. 




 

Wednesday 11 May 2022

Or should I say, how little!



It's Wednesday morning here. I have cleaned my kitchen and taken meat out to thaw for dinner. I am going to cook pork chops with mashed potato and greens with gravy.

My sister's son came to visit her for Mother's Day. He brought some homemade scones with cream and jam for her and my nephew to enjoy. They share a house together.

During the visit, he shared that his own son is at home with Covid. Yesterday, he rings and says he's now positive too. With lupus, fibro and other diseases, and with my son with breathing problems, they are worried that they will catch it too. They aren't vaxxed. So far my son and my sister are OK but are getting some RAT's this afternoon. 

Chris is sleeping sitting up on the couch. He really needs to go back to the doctor as he's feeling like he's drowning in fluid. I have been encouraging him to go, but he's very stubborn. Consequently, he doesn't get much sleep and can't lie down. 

It's hard looking after him because of this fear of doctors and hospitals. It's not like he's a child and you just take them....

There's not much else planned for today. My fibromyalgia pain is bad. I'm so glad at this stage of my life that I can decide how much I will do each day. Or should I say, how little!  



Monday 9 May 2022

It was a good day!



It's Monday afternoon here. I have cleaned my kitchen and done a load of washing. My step-son and his wife came and checked out the fifth wheeler we have sold. We can't even get up in it anymore.

She made the bed up again like in the photos and step-son vaccuumed the floor. It is so nice and the buyer is going to be getting a bargain. He plans to use it as a static van to live in on his property. He's been on the phone organising a transport company to get it for him. He's interstate. 

Hopefully, it will be gone by the end of the week and our bank account will look a lot healthier. Next we will be selling the tow vehicle and buying a new car and moving. So that's what I am doing this afternoon: looking at home rentals. 

I am cooking pork BBQ ribs for dinner. Yet with only a few things on my list of things to do, I am incredibly tired..thanks to fibromyalgia.

Yesterday was Mother's Day and Chris brought me a cup of tea this morning and said Happy Mother's Day. I said I aren't your mum and he replied but you mother me!  So cute. I giggled.

Each of my kids rang me so all in all, it was a good day! 



Thursday 5 May 2022

More than a cake


So yesterday was my 69th birthday. We went to my twin sisters & my sons house for lunch to celebrate.

I really appreciated my sons' effort at the surprise cake he made for us. He's never made a cake in his life. We sang Happy birthday but we all decided not to light 69 candles in case it set the smoke detectors off. He put a few on for traditions sake.

We bought some KFC and enjoyed the family feast barrell. We had just enough chicken to feed four adults and we found we wouldn't need to have a cooked dinner.

This worked out well as I was suffering with a fibromyalgia flare and in fact almost didn't make it to their place for lunch. You know how it is: you arrange something for the next day, and you don't have any spoons when you wake up.

But as Chris pointed out, he was driving and I didn't have to do anything except sit there. So I went.

The trip is one and a half hours each way and I was so tired on the way home that I fell asleep in the car, garotting myself on the seat belt.

So not having to cook when I got home was a blessing. We just had some fruit and a cup of tea. It was enough.

My son lives with my twin who is ill with lupus. He's her carer. He cooks plain meals but never has baked a cake before. So when he brought out his birthday cake, I was more than a little surprised: and the other surprise was that it tasted good as well!

As we blew out the candles, his face was glowing with pride and satisfaction. I saw more than cake yesterday: I saw love!



Monday 2 May 2022

"It is what it is!"





A friend of mine posted this on her Face Book wall and it was so simple and doable that I wanted to share this with you.

My hands are deformed with arthritis and I have little strength in them. Opening these ring pull cans have always been a challenge to me. 

Those cans that need a can opener are  simply not purchased anymore. I cannot use one as the arthritis restricts movement.

My fibromyalgia is paining me today and I didn't sleep well last night, so I will be cleaning my kitchen and psyching myself up to take a shower. That and cooking meals is all I will be doing today.

Meals will be Jewish Penicillin in my slow cooker.

It's not much to show for the vast amount of spoons I will need today, but as the young ones always say, "It is what it is!"


Sunday 1 May 2022

You just have to flex with fibro


 All of us who suffer with fibromyalgia know that it's a very unpredictable illness. We just can't plan with it as we don't know how we will feel until we wake up- and even then it's unpredictable.

We can start our day with extreme stiffness and pain, yet can come better by mid morning some days. It makes planning our day difficult to say the least.

I can't count the number of times I have had to apologise to someone for not being able to socialise or go shopping. I felt well at the time of arranging or accepting the invite, but fibro had other plans and held my body hostage.

Countless times I have planned to declutter my house or some other chore, and I have even gotten started only to find that my body was yelling at me, "Seriously??" and I had to stop. 

It is very challenging and even depressing. But it is what it is. Fibromyalgia is a pain in so many ways!

Lately, I have learned to say to people that I would love to come/do something but because of my fibromyalgia, I won't really know until the day how I will feel. So I will say a tentative yes and hope to be there/see you! 

I have had to learn to not be dogmatic about when I will do a certain chore. For example, all my life as a homemaker, I have changed my sheets every Monday. But with the coming of chronic illness, I might not feel well enough to do it that day. I have just had to accept it.

Part of accepting our new normal as Fibromites is to not get too upset if our body fails us on any particular day. We have to remember that tomorrow is another day, and even then it may not support us the day after that. It is just that unpredictable.

I have learned the hard way too that it's no use getting into a funk or berating yourself if fibro calls the shots and shoots down your day. It's not the end of the world, and you just have to flex with fibro...