It starts with you

  

Lately, I have realised that one of the reasons for my high blood pressure is probably in the way I stress about not being able to do what I want due to fibromyalgia.

Although I know that I am not to blame for being ill, I sometimes find myself berating myself and feeling cross that I am a lame duck. It really gets to me at times.

Often I succumb to false guilt, the guilt that comes from matters that are not in my control, and it is easy to go to the Pit of Despair. You do not want to go there.

On rare occasions, I burst into tears and it is then that Chris usually comes to my rescue, pointing out that it's not my fault, that whatever needs to be done can wait or he promises that he will do it...

It made me think that sometimes I am my own worst enemy. By self-condemnation, I am making a sad situation worse for myself.

When I realised that it was my thinking that makes me get so down sometimes, I smiled at the irony: usually I am trying to validate my tiredness and pain to "normals"- those who do not live with chronic pain and no spoons. Now the "normals" are validating me.

So today, after cleaning my kitchen and making lunch, I am going to "the beach" again. I am going to relax and only get up again when it is time to cook tea.

I am going to start to speak to myself as I would speak to someone else who was ill and blaming themselves: lovingly and kindly. Which just doesn't come naturally to me. I have patience with everyone except myself.

Having patience with yourself.

  

Lately, I have realised that one of the reasons for my high blood pressure is probably in the way I stress about not being able to do what I want due to fibromyalgia.

Although I know that I am not to blame for being ill, I sometimes find myself berating myself and feeling cross that I am a lame duck. It really gets to me at times.

Often I succumb to false guilt, the guilt that comes from matters that are not in my control, and it is easy to go to the Pit of Despair. You do not want to go there.

On rare occasions, I burst into tears and it is then that Chris usually comes to my rescue, pointing out that it's not my fault, that whatever needs to be done can wait or he promises that he will do it...

It made me think that sometimes I am my own worst enemy. By self-condemnation, I am making a sad situation worse for myself.

When I realised that it was my thinking that makes me get so down sometimes, I smiled at the irony: usually I am trying to validate my tiredness and pain to "normals"- those who do not live with chronic pain and no spoons. Now the "normals" are validating me.

So today, after cleaning my kitchen and making lunch, I am going to "the beach" again. I am going to relax and only get up again when it is time to cook tea.

I am going to start to speak to myself as I would speak to someone else who was ill and blaming themselves: lovingly and kindly. Which just doesn't come naturally to me. I have patience with everyone except myself.

We live in a fallen world

 I have tried not to dwell on my illnesses these days, but still find that I have to remember to do this:

Accepting that one's life is going to be difficult due to ongoing illness makes for a happier life. When the chronically ill person decides to give it to God, and to cling to Him instead of succumbing to false guilt, life takes on a normality in what many would see as anything but. It is a surrender, if you will.

Suffering does not make us second-class Christians, as some false teachings would purport. Nor does it mean we are faithless or aren't reading our Bibles or standing on the promises of God regarding healing.

Furthermore, being ill does not check us out of God's watchful Eye of concern, or mean that He is an uncompassionate God. No, we all are subject to frailties and problems in the flesh because we live in a fallen world... we have not been singled out to suffer...

God has given us things to do in our suffering and it is important that we stay close to Him and continue to read the Word and pray. It is not that God has moved, when He feels far away during a flare or illness, but our emotions are also hurting as a result of our condition.

It is important to pray that God heal us, and to ask the Church to anoint us with oil according to the Scriptures... It is essential to our emotional and spiritual health to stay in the faith and believe that God can heal us, but to pray for strength until- or even IF it is His will to do so.

I know that should/when another flare comes for me that I will have to cling to Jesus and reread what I have written here (for I write it for myself as well as you). I will need to surrender this next painful chapter of my life, knowing that God will still be there for me.

Surrendering our pain and our life to God is the only thing we can do.... meanwhile, I thank Him for the few days of respite..

Suffering is not our fault, but is because we live in a fallen world.

© Glenys Robyn Hicks

Beloved, I pray that you may prosper in all things and be in health, just as your soul prospers. 3 John 1:2

I envy our cat!

 

I don't believe in reincarnation, but if I did, I would come back as a cat. Xena has the best life ever!

She is a real diva and has two beds, two couches, two director's chairs and endless corners with interesting things like a foot cushion or a printer to lie on. Then there's the sunny window sills and benches for whenever a cat nap is in order. Which for her, is often. I do envy her sometimes.

She has trained us well.. food and water are always available and her litter tray is kept nice and clean. Even her bedding is washed regularly, perfumed and softened with fabric softener.

Our cat's life is a good life. The only tasks in a day are grooming and sharpening her nails on her scratching post- that is where we have trained her well...

With my fibromyalgia pain at an all time high with our colder weather, I often think how wonderful it would be to have no responsibilities and a cosy bed at every turn to fall into. And to be able to peacefully sleep for at least 16 hours a day without feeling guilty would be a dream.

Yes, a cat's life is very desirable.... I could see myself as a feline. But with my bad record with health issues, I probably would be sent on a one way trip to the vet in a steel barred cat cage! 

How to work without dropping from exhaustion.

Sometimes we can get so busy trying to complete our long list of tasks, that we forget to take time out for ourselves during the day.

By time out, I mean taking breaks to keep hydrated, to eat a meal, attend to the calls of nature or to just sit and contemplate one's navel or day dream.

It's important to our mental health as well as our physical well-being.  When we are chronically ill with fibromyalgia for example, we need to learn to pace ourselves between tasks. And here I must say, one should just enjoy the rest break and not feel guilty for taking time out.

It takes a bit of planning to feel productive as well as pacing oneself in order to not suffer too greatly the next day. Here's what I do...

• I write down just the main and most important things I want to achieve by the end of the day. 

• Then I pencil in how long each task should take. 

•  I work through that list with breaks in between. 

• I allow 15 minutes between tasks. 

•  When I see how soon I can be finished, it usually motivates me to get going. 
  

• Visualising how the house will look better after helps too.

• Using Sylvia's lists can be helpful too.
  

Working out how long the list of tasks should take ensures that regular rest breaks are taken to ensure you don't run out of spoons before the list is complete.

There's nothing nicer than reaching the end of your list and feeling a sense of accomplishment without working till you drop from exhaustion...

Pain changes people

In dealing with my fibromyalgia flares, I find dealing with the accompanying mental pain is just as bad as dealing with unrelenting physical pain. It is just as difficult to bear.

Usually a mild mannered person, after coping all day with searing pain in my muscles, topped off with an inability to sleep soundly, I can fly off the handle occasionally.

Yesterday for example, I managed to catch up on my dishes, which turned out to be a three part marathon. Usually Chris puts them away but yesterday it didn't happen.

My fingers were paining me, my back ached and my legs didn't feel like they could hold me up. Unfortunately, a feeling of resentment overtook me, and I yelled at Chris for not doing his part.

I love being a wife and homemaker, but when everything is hurting at once, and not sleeping well because of the pain, resentment rose up in me. 

Resentment that I wasn't getting any help coupled with no pain relief and tiredness made me verbally buck and shy like a wild stallion. Along with resentment of my lack of help came resentment that my body has let me down.

Once resentment kicks in, it opens the door to self-pity and depression. I don't like yelling at Chris, particularly as he is usually not only helpful but emotionally nurturing and supportive.

I have found that at times like this, when pain causes me to blow my stack, that like an overtired toddler, I need to rest. So I put myself to bed for a nana nap.

Fibromyalgia pain never lets up, even in our sleep. It pursues us in our rest and deprives us of even the enjoyment of a brief period of respite in sleep. We toss and turn, trying to get comfortable- and that is even during the brief time our dry aching eyes are actually closed. It is not restorative at all.

I have had to learn to stop feeling false guilt for reacting to my pain when the levels are high enough to launch a rocket. That's how I feel during a flare. But I have got to remember that I didn't ask for this and am not responsible for succumbing to this painful syndrome.

I must remember that fibromyalgia pain-or indeed any pain, makes the vicissitudes of life that much harder to bear. Everything is exaggerated both physically and mentally, and the only thing I can do is accept that this is not my usual self, for pain changes people.

                                                                                                                                                                                                        

                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                          

It's enough to drive me to drink!

So Friday I was talking to my new doctor about my back problems and asthma problems, my blood results and consequent treatment. My cholesterol and sugars were good as was my thyroid thanks to Thyroxin tablets. 

My uric acid levels were good, which they should be with me on medications to stop making kidney stones. And the conversation went like this: "Your uric acid level- have you always had high uric acid in your blood? No? well it probably is due to alcohol intake!" "Excuse me? I don't drink alcohol at all!" "Oh really? well- good: good! So it's just in your blood... OK!"

He was running through the blood tests which showed my liver GGT was unusually high. "Why do you think that is, Doctor?" I asked. "Probably too much fat or excessive alcohol intake!" "Ahem- I don't drink alcohol at all!" "Oh, yes. Of course!" 

I do not drink alcohol, but his reaction to my liver problem and high uric acid level annoyed me somewhat. I mean, if it was a problem, I would tell him so instead of worrying myself as to what it is caused by.

My blood pressure was slightly up which isn't surprising when I am meeting a new doctor. Especially one who suspects that his new patient is a drinker of the new wine! or casks thereof! 

So next we had a discussion on which diet program to follow as the fat lady with the drinker's pot belly needs to lose weight.

And right in the middle of a discussion of Keto and diabetes, I stopped mid sentence and lost my train of thought. Embarrassed beyond belief, I told him I was having a bad fibromyalgia day and it was just brain fog!

He just looked at me over his glasses and I could tell what he was thinking... it's too much imbibing of alcohol that does that!... 

Leaving the clinic with a handful of diet pamphlets and scripts, I asked Chris to drive me straight home. 

I headed for the kettle to make myself my favourite beverage- tea. But I swear I was so upset by the insinuations that I cried out to Chris's surprise, "It's enough to drive me to drink!" and it almost is! 

In my dreams!

Ever since I was a young girl, I have dreamed of being an energetic housewife, baking and cooking from scratch. I would keep an immaculate house as well and my washing would be as white as snow.

Of course, I would iron everything that was on the line and my pantry shelves would be well organised with the spices kept in alphabetical order. And it was so for the first two years of my first  marriage.

But then much sickness came into my life, heralded by displaced discs and Scheurmann's Disease, and the dream evaporated as quickly as my energy and eroded discs.

This dream kept springing back in fits of discontent with myself and no small amount of false guilt. With the onset of heart disease, diabetes and fibromyalgia, the dream became a nightmare that taunted me. 

Perfectionism pointed its' knobbly finger at me, taunting me and demanding I try harder. It insisted that I find my worth in my homemaking abilities as a woman, and I was miserable as well as in pain.

It took until I was into my 20th year with fibromyalgia to realise that my worth as a woman was not on how well I kept my house. 

I decided to focus on the fact that God loves me just as I am and that helped remove the false guilt.

So now, in my 67th year, and my maladies worsening, I have had to put the dream to rest. I am never going to be the woman of my dreams. I have someone come to clean for me once every two weeks and I have learned to be grateful.

Only in accepting your illness can you find peace. Our womanhood is not only about keeping an immaculate house. And as I look at my clean house today, I am glad that we have the Aged care package that allows home care help. 

As I talk to you now, I smile at the irony: my energy comes through the woman who cleans, and my home is still clean. I have a maid in my later years- and that's something I thought would only come to be in my dreams! 

Today's lists of to do's are:

Make our bed

Do a load of washing

Fold yesterday's clothes

Make a sweet curry stew with rice for dinner

Feeling nurtured

So as you know, I have been under the weather with my fibromyalgia and angina. No amount of determination and desire can call my spoons into action. I cannot function well at the moment. No matter what.

I have succumbed to false guilt, but after a heart to heart with Chris and some Quiet Time with the LORD, I feel a little better.

Having Chris bring me in some tea this morning and his offer to vacuum today has brought a smile to my face. I feel nurtured when he pitches in to help me.

I will be taking some Paracetamol soon and he has promised to give my feet and legs a massage. He gently massages my swollen ankles upwards towards my heart. It helps my weakened heart, and after I find that I can bend my toes and move my feet again. But usually it just makes me sleep. I am always glad to have a nana nap.

The only thing I am going to do today is make fish and chips in the air fryer. I will serve them with salad for dinner. 

Being a chronically ill wife, I sometimes worry about how Chris feels. It must be tedious for him, but when I mention it, he waves his hand and says it's all part of the job of being a husband... and he sure has me feeling nurtured.

June Cleaver's dragging her heels

These last few days my fibromyalgia pain has increased to the point I cannot function without assistance in the home. In fact, just talking to you now has been an effort and typing has seen my muscle and tendons cramp and spasm.

So I will be doing some minimal housework today, just to keep the wheels moving, but I have enlisted some help from my husband.

My focus will be on clearing clothes from my clean laundry tub and cooking something for tonight. Chris will vacuum a bit for me later on.

We both will be doing dishes from last night and whatever accumulates as we eat breakfast and lunch and I cook dinner.

This is the time when I find myself weepy and inclined to lapse into false guilt. For some reason my perfectionism increases as my spoons decrease, and I have to put into practice what I have spoken about and believe: it is not my fault that I am chronically ill and God loves me just the way I am. Thank goodness, it's not about how fast I spin my wheel! 

Today, fibromyalgia has won: I am on a go slow, pacing and napping mode. It is all I can manage to keep awake. Today is going to be a wash out. The wanna be June Cleaver is dragging her heels.

The Queen of List Making

So I did it again! Instead of cleaning up after dinner, I went to bed with dishes in the sink. I hate when I do that!

I mean, with fibromyalgia robbing me of a good restful sleep, the mornings are hard enough to face. Having a dirty kitchen to wake up to is the pits!

Most would think that it's just laziness, but by the time I have cooked dinner my spoons are almost gone. Yes gone! I am so done in by the end of the day that even lifting my arms up to put my nightie over them creates pain.

Oh, yes, I make lists and read motivational blogs and You tubes, but to no avail. I am the Queen of List Making. Yet my limited spoons dictate that I do very little and I am left with ashes in my mouth.

I know I said before that I have been keeping busy and that's true, but I now have a rebound fibro flare and coupled with our autumn cold snap with rain, I am in a lot of pain.

You would think that I would have worked out this fibromyalgia lurk after twenty years. And for the most part although I hate it, I have learned to exist with fibro without feeling false guilt that leads to depression.

Most days I accept my disability, but deep inside is a perfectionist screaming to get out! On days like our current lockdown days, due to Rona, I try to nest and I overextend my limits. Hello, Fibro Flare!

I am grateful to my husband Chris. He is an mild mannered man who is happy with how I do manage to keep our nest. He and most people who come to visit- well in better days obviously- are happy with the state of our home.

It must be that I am my own worst enemy: trying to do the work of a much younger healthier self: everything in its place and a place for everything. But always straining, never achieving thanks to Fibromyalgia.  I need to accept what is and hang up my crown as the Queen of List Making.

Today I am doing just a few things:

1. Cooking a chow mein in the slow cooker
2. Doing those dishes from last night
3. Giving in to the latest flare and taking a nana nap

Tomorrow is today

So I have put off some things from yesterday that I didn't get done.  The plan was to do it today, but unfortunately my spoons once again dictated my ability to do them. Tomorrow is today and I simply can't function.

I have had a bath and that was enough to wipe me out of spoons. I have microwaved some party pies for lunch, opened the windows up and made a cup of tea.

After lunch, I will be going back to bed for a while. After that, I will be cooking chow mein for tea. I have taken the mince out to thaw but that's it. 

Once it would worry me, but twenty plus years of living with fibromyalgia has taught me never to plan too far ahead. Until I actually wake up in the morning, I simply don't know how or even if I will be able to cope with the day.

I have found if I just accept that this is the nature of the beast aka fibromyalgia, and go with it that I can avoid false guilt and depression.

So it all will get done when I get to it, even if tomorrow is today! 

It's just the nature of the beast!

I wish I could tell you that my fibromyalgia flare is over, but I can't. This morning I woke with so much pain that I took my bath in the morning instead of at night, hoping it would unkink all my sore muscles. It didn't.

As I lay in the bath I planned my day and prayed for the energy to do it. If determination was the only way to get through, it would be a breeze! But alas, determination does not equate to spoons (energy), and at the end of the day it can actually lead to false guilt if I can't achieve what I wanted to.

In chronic illness, I find that whilst it is good to make plans, it is unlikely that all will be accomplished. Like me knowing that my diabetes is out of control (11.6) and I simply must accept that I cannot take much sugar in any form, I must accept that I can only do so much. Or so little. 

So, it's no good flogging myself like a dead horse. It is what it is. What gets done, gets done. What doesn't, doesn't. 

So today, I am just following Monday's List. And preparing a curried sausages in the slow cooker for dinner. 

If I get everything done or not, I will have to learn to be content. Chronic illness is tough, but I will have to accept it: it's just the nature of the beast.

Not even on my worst day

So today is another day of pain, lethargy and lack of motivation. As soon as I finish this post, I am going to have a nana nap.

I once would have fought going back to bed, but these days I know I have to pace myself and rest or this fibromyalgia flare won't abate.

In accepting my fibromyalgia, I have had to cast my perfectionism aside and just concentrate on basic essentials like meals.

I refuse to give in to false guilt and that has been reinforced by my realising that as soon as I am able, my housework will be done. Besides, it will never ever get to look like these houses in the slideshow that I blogged about today- not even on my worst day. 

Today's to do list is:

1. Rest
2. Cook some devilled sausages, mash and veggies for dinner
3. Do the dishes

This is the least I can do to make sure that our home never looks like one of those.

Not lazy: smart

Anyone with chronic illness that makes you fatigued like fibromyalgia, will know that part of accepting the new normal is planning to do the most you can with the least amount of spoons. That applies to all housework chores and social activities. 

Lately, Chris and I have been ordering our groceries online. This has so many benefits and is worth the $15 delivery fee. It makes ordering the shopping easier by having a list of previous shops to copy from. Wonderful when concentrating is hard when one has brain fog from fibro or medications...

The delivery guy will even bring it into the kitchen and place it on the kitchen bench. It is then just a matter of putting it all away. So much better than handling it at the checkout, loading it into the boot of the car, bringing it all in.

As a Sacrificial Home Keeper, I have streamlined the inside activities, and now I have streamlined the outside activities. 

With paying for delivery, some may say shopping online for groceries is lazy: I say no: it's actually very smart. Designed with the Sacrificial Home Keeper in mind. I am very grateful for it.

Today's list is simple as I am still under the weather:

1. Do dishes
2. Fold clothes in dryer
3. Make our bed
4. Cook lamb stew in slow cooker for dinner

A land awash in floods

Australia is a land of bushfire terrors followed by torrential rains bringing floods. Today has been such a day with a bushfire near us and then a massive storm bringing rains that have flooded our roads and the little stream at the end of our property.

We are grateful for the rains of course, but the changing weather is playing havoc with this fibromyalgia flare. I think it's ending, but new weather changes make it return with a vengeance. Such has been today.

I haven't followed any list and have had to go back to bed this afternoon. I expect to be in bed early tonight too. It simply is too hard to keep awake. I no longer fight it but go with the flow. It is what it is. False guilt is now a thing of the past...

Today I have only really managed to cook devilled sausages with vegetables for dinner. 

As I look out the back door and see the stream overflowing and the birdfeeder full of water, I realise that that is exactly how I feel with weariness... overflowing with it. A woman awash in fatigue, and a land awash in flooding rains..

It's calling my name!

Today is a mild day weather wise. We are sitting on 20C with mild winds and no storm activity. I am sitting here wondering why I have no spoons and am lacking the energy even to have a shower.

Fibromyalgia is a mystery to me. Just as I think I have it worked out, a new or worsened flare springs me unawares, and I find myself unable to think clearly. Even my eyes have trouble focussing today, so pacing myself's not going to work.

There's much to do here as well because I have been in a flare for a few days now. I am even too tired and sore to follow any lists at all. Except Thursdays' List. All one does on Thursdays is rest. I think I will have to treat today as a Thursday. Which is the beauty of Lists: you can exchange days to accommodate how you feel....

There's a few things I must do today:

1. Cook a beef stew in the slow cooker
2. Rest

The first one is done and the second is a work in progress. I feel no false guilt anymore.  It's the only way I can get over this flare. Otherwise tomorrow will be just like today where it's all too much. 

For today, rest is my own prescription to get well. Besides, I can hear my bed: it's calling my name! 

What a drenching!

There's nothing nicer than being in bed listening to the rain on a tin roof. Especially if you don't have to go out in it...

Last night and this morning we had heavy rains and more is expected today. Next week we are going to be in the middle 20C's or 68F's. With all the bushfires around us, it is much needed and prayed for.

I took this picture from our back door just after I fed some bread to the birds that frequent our garden. I love the smell of the rain! We are getting some relief from the heat with a top temperature forecast for 21C or 69.8F. 

It was my plan to go to church this morning, but with all the storm activity yesterday my fibromyalgia's flaring and I honestly can't make it. Hopefully, next Sunday will be better.

Usually, I listen to the Bible on You Tube and worship and rest at home when I can't go. Which is often, unfortunately. 

I will be hanging up the clothes I took out to wear there this morning. Later on I will cook some curried sausages in the slow cooker, which is my favourite way of cooking when I am in a flare.

There are a few dishes in the sink soaking in hot soapy water as per Sylvia's Sunday List. I will attend to them later on after I have had a rest. 

It isn't ideal that I am seeking to go back to bed so early in the day, but such is the life of a chronically ill person. I no longer feel any false guilt over it like I did in the early days of finding out what my new normal would be.  I can only get through this flare by resting...

So list of to do's today:

1. Hang up clothes
2. Set slow cooker going with sausages for dinner
3. Rest

And last but not least, I will be rejoicing as more rain falls giving our parched land a drenching!