A spoon is a spoon!

 

So my polymyalgia rheumatica has kicked in again, and coupled with a fibromyalgia flare, the pain is just excruciating.

I have decided the pain warrants some Prednisolone so I took 25mg of it these last two mornings. It makes me feel a bit antsy but I can now bend my neck, lift my arms to brush my hair, and the pain around my temples and headache has gone, along with the TMJ.

It is risky taking Prenisolone, but I had to weigh up the pros and cons and decided that I simply couldnt bear the pain any longer. 

A happy consequence of it is the fake energy has made me channel it into housekeeping and my house hasnt looked better! 

Today I have run the Roombas, washed the clothes and cleaned my kitchen. I am going to do sausages in the slow cooker for dinner tonight.

The steroids are elevating my blood sugars as I am diabetic. It's making me feel drowsy. I can see a nana nap in my future if the Pred will allow me to sleep.

I really dont care where I get my energy from these days: fake energy from steroids is good. After all, a spoon is a spoon!

Invisible illnesses hurt as much as a broken arm.

So yesterday I got my tooth seen at the dentist. I was overjoyed that she managed to save it. It was a gruelling 45 minute sit in the chair.

Those of you who suffer from fibromyalgia know that sitting stretched back with one's head tilted to the side is not an easy pose to stay in. Add ankylosing spondylitis and polymyalgia rheumatica to the mix, and it's a half hour of torture.

I must say though that the lady dentist was very patient, kind and efficient. I told her about my many ailments as required for a new patient, and I was amazed that not only did she know what fibromyalgia was, but was very careful to not touch my neck roughly. 

She also gave me double the novacaine because she knew I would be very sensitive to pain.

It so happens that her friend suffers from fibromylgia and she has a really bad time of it. To have the dentist allow me to sit up and have a rest every ten minutes was a blessing. In fact, she was a godsend.

She lowered the chair as far as it would go as I got out, and being aware of my torn knee ligaments in both knees, she helped me get out and stand up. 

Today, my tooth is not aching at all, but my jaw, ear and neck are. I suspect from the injections and keeping my mouth open for so long. I have TMJ as well.

Today I have been doing meals, cleaning my kitchen and folding washing whilst medicating with paracetamol. I have had to take it every 6 hours, but it is what it is. I am still better off filling the tooth as opposed to pulling it.

My plan for tonight's meal is to make a sweet curry pork dish with rice. Chris loves that and it's easy to do in the slow cooker.

My online shop will be coming in an hour or so, and I will put that away. That's it for today.

I loved that the dentist took fibromyalgia seriously. It's not often that it is. When you find someone like that, the validation lifts one's spirits. Thanks goodness some people believe that invisible illnesses hurt as much as a broken arm.

 

On a wing and a prayer

We have been busy looking for another home to rent. It's been a nightmare. There aren't many homes to rent and when we apply, we are vying with about 20 other people for the same home.

Most days we have to go to look at these houses and as we are in the country, it is at least an hour's drive each day. I am exhausted.

So much exhaustion is hard to take, especially when it brings on a fibromyalgia flare. But as in lots of things in life, it just has to be done.

I think the most stressful part is actually securing a property to move in to. The actual move is not so bad, and this time we will be paying my grandson to help us move.

With the fifth wheel and tow vehicle sold, we are in a position to get someone to do the move for us and it's especially important with our failing health to enlist help this time.

We are going to miss the birdlife here for sure, but with us being in our 70's, we have decided that we need to be closer to family and hospitals if we have an emergency.

This house is old and has no insulation and is incredibly cold and it's our winter now. With the price of electricity going up on July first, we won't be able to afford the heating in our all electric dwelling.

We are feeling the cold and are looking forward to ducted heating again.

Today there's no house viewings as it's Saturday. I have used the time to catch up on washing and I have two slow cookers going with different meals in them.

I am contemplating using Prednisolone for a few days so that my neck and jaw pain (TMJ) abates. I don't know if it will help my muscle pain in my shoulder and upper pain, but it can't hurt.

Today is the first day for awhile that I have been able to post as my muscles feel like they're tearing. But I just wanted to touch base and tell you what's happening in our part of the world at the moment.

Next week is another day of house hunting and tonight I feel like I am running on a wing and a prayer.

 

It's a pain in the neck

 

Lately I have been trying to keep off the computer. I have had a horrid fibromyalgia flare and I suspect along with neck and shoulder pain, I have also got TMJ and polymyalgia rheumatica back as well.

We  recently sold our GMC Sierra ute and with no more vehicles needing a driveway to park on, we have turned our attention to finding another rented home. It has proven to be a nightmare.

There are not many affordable homes to rent and we find we are vying with up to 20 different people at a viewing, all hoping to get the same property. It is terribly stressful.

I think the stress has exacerbated my fibromyalgia. I have been clenching my jaw and this has seen my TMJ return. Without a blood test to check ESR creatines and so on, I can't say that my PMR has returned, but judging from the pain and inability to raise my arms, I would not be surprised.

I have done 5 loads of washing and dryed it in the dryer as it's too painful to hang it outside. I have run the dishwasher and been to the chemist to pick up my Januvia for my diabetes. Just that small bit of work has exhausted me. My spoons have left the building.

Lately I have been thinking it isn't worth moving, but the possums in the roof wake me up with their thumpings and scratchings and the cold weather has meant that central heating is calling my name and beckoning me to a newer more modern abode.

Just typing to you has stirred up all my sore muscles, and it's traveled down my arm. So I will be taking some paracetamol Osteo soon and maybe I'll be having a nana nap.

Fibromyalgia, PMR or plain arthritis makes for a bad day by any name. Whatever ails me, it boils down to the fact that today, it's a pain in the neck. 

 

He's feeling fairly ordinary.

It's been a busy day today. I have a broken off tooth that needs to come out. We had to be at the dentist's by 8.30am and it was an hour long drive. I was being fitted in as an emergency and was warned I could be waiting for up to 2 hours to get seen. 

Two hours passed by waiting and I was then told they couldn't see me today. They gave me a list of dentists I could see but it was too late to be seen today. 

So we drove about an hour away to see a house that we have applied for to rent. It's so nice and the inspection is tomorrow afternoon at 5pm. I hope we are successful. We have told the landlord we are looking and he was fine. 

When I got home I rang a few dentists on the list and I have an appointment midday Thursday for an extraction. My tongue is sore as the tooth is quite sharp. With my fibro flaring and TMJ, I am just about out of my tree with pain. 

My twin sister and my son have Covid and continue to feel sick, but she's feeling a little better, but my son has man flu. I am so glad Chris and I haven't got it....

I am already in my PJ's with my electric blanket on.  I have rung my son to see how he is before I go to bed.  Not so good. He's feeling fairly ordinary. 

 

My razzle dazzle is now frazzle.

Well, it's the day after Christmas Day, known as Boxing Day here in Australia. I have battled the Mother of All Fibro Flares the days leading up to Christmas. I should have won an Academy Award for acting the part of the festive bearer of gifts and delicious goodies whilst feeling like any second my body would fail me in a catastrophic way.

By 'catastrophic' I mean embarrassing, debilitating, humiliating and last but not least, painful. 'Embarrassing' as in losing control of my bladder, 'debilitating' as in sucking the last of my energy off my one remaining spoon, 'humiliating' as in falling asleep at the Christmas dinner table and 'painful' as in all muscles cramping and tearing as I move them.

Because on top of my fibromyalgia flare, I have broken my coccyx and cannot sit or even stand without yelping in pain. Truly I walk with the grace of a pregnant elephant, as the break in my coccyx has caused the other spinal injuries to flare and has resulted in slight bladder loss. Hence me saying that I should have won an Academy Award for acting "well"

So unless you knew me as well as Chris does, you would think that I was only as fatigued as the average woman who prepares for Christmas guests and sumptious fare and gift shopping.  I was able to feign excitement as the grandchildren opened presents and I scintillated with festive razzle dazzle.

At the end of the day as we made our way up the stairs- (groan) for bed, even my jaw was tight and sore with TMJ through smiling a lot... but it was worth it because at the end of the day, we made some lovely memories and I felt that I was living my life, not just enduring it.

Whether I stayed home or participated in what is usually a happy celebration of the birth of Christ, I would be in pain. So I decided (not for the first time) that sometimes you have to push through your comfort zone to live a satisfying life, even though you know you will pay for it the next couple of days or so. 

You can believe me when I say that I feel it already as I unpack our luggage, and I know I will pay for it tomorrow, but sometime's it is totally worth it even when broken bones and Fibromyalgia flares make anyone's scintillating razzle dazzle turn into a frazzle.