Wednesday 26 February 2020

Fibro is as painful as diseases that can be seen


Today has been a complete fizzer as far as productivity is concerned. I have achieved nothing except cook a slow cooker meal for tonight. In fact, I have been in bed most of today. Fortunately, Chris is very understanding, but doctors over here- not so much.

I have to say that in general I haven't found any real help via my GP's or rheumatologists here in Australia regarding my fibromyalgia. I am on the disability pension because I can't concentrate enough to hold down a job (not mentioning pain because there are some days when it is manageable), but in general the doctors over here seem to think it's something one puts on to get out of work! (If they only knew how we want to be able to work- especially in our homes!)

There was however, one GP who wrote me out a referral to go to a pain management clinic. I haven't been because I do not want to mentally put myself in the chronic invalid basket. If I try not to focus too much on myself and the symptoms it seems to help me mentally at least.  So I am trying self-help. Which truly isn't very helpful!

I have seen a rheumatologist recently who openly admitted to me that rheumies are practically useless in helping with fibromyalgia. I nodded my head in agreement!

I have found more compassion for my heart problems than my fibromyalgia. I wonder if it is because that is something that they can see with an ECG or angiogram? Or is it just the Aussie "Stop your whinging,  Mate!" mentality of some over here? Whatever, I would dearly love people to understand that fibromyalgia is a medical problem every bit as painful as diseases that can be seen.


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