Maybe I should have rephrased it

As you may know, I have a cleaner come for a couple of hours each Thursday, thanks to my Aged Care Home Package.

She does a really good job and after she leaves, I feel really happy. 

Everything is in order and looks great and the effect it has on my spirits is wonderful. As I have said before, housework is spiritual.

After she is gone I do a few small tasks that make me happy. I change our tablecloth, organise my benchtops in the kitchen and add a new cleaning product/deodorant block to the toilets.

If I have enough spoons on the day, I will sweep down the front porch, but if not, it waits until the next day.

It's so nice to walk around my house on Thursdays and it spurs me on to cook something special. It's always nice to cook when the kitchen looks inviting...

And something funny that happened yesterday.. which was when my cleaner came... as she was leaving I said to her, "After you go, I am always very happy!" She laughed and replied, "Oh, so you are glad when I finally go?" lol... I was embarrassed..

But it was all good, she thanked me for appreciating her efforts and we laughed again and she took her leave. 

Fortunately, she has been told I like her work before and was feigning offence, but thinking about it, maybe I should have rephrased it!

I am my own doctor

 

So we have recieved more bad news from our doctor with a change of medications which, as it turns out, hosts a long list of dangerous side effects.

Our 3 monthly blood tests for diabetes and cholesterol etc came back showing a rapid rise in our sugars and cholesterol.

Our doctor is not pleased that we have stopped taking our statins, agreeing that the brain needs the cholesterol but saying with our chronic heart disease and failure that we should take them as the benefits far out the risks... and she wasn't swayed that both of our mothers died of alzheimers.

So I am sitting here praying and reflecting on what to do and we have decided to resume taking our previous medications that came with less side effects.

I am not happy that she changed our medications without informing us that they come with a host of possible dangers... as I said a few years ago, sometimes you have to be your own doctor.

Setting things to rights

So today is Monday and unlike some people who hate Mondays, I quite like them. I see Monday as the first day of the week and it is a day to put things to rights.

Sundays are our sabbath and we only do those things that are truly necessary. After all, it's supposed to be a day of rest.

We chill out and watch online services and listen to worship music and nap. But with Monday comes the need to plan to incorporate those tasks that went undone yesterday. 

I usually have washing to do and at least one load of clean clothes to fold. I try to get caught up with that plus any dishes that need washing get put into the dishwasher.

For me the tasks that take the most time and are frequent flyers are washing folding and dishes.

Provided I am not in a fibromyalgia flare and have enough spoons, (and this is always unknown and erratic), I will tackle these today.

As I said, I follow Sylvia's Lists and I will loosely follow this for Monday..  

There's always a feeling of satisfaction when/if I can do these tasks on Monday's... but still, come to think of it... I always feel happy any day when I am setting things to rights..

I'm bringing FlyLady with me!

 

As I have mentioned before, I loosely follow FlyLady and Sylvia's Lists to keep my home in order between weekly visits of a cleaner through my Aged Care Home Package.

So for two hours on a Thursday, the cleaner changes our beds, cleans our stove top and benchtops, cleans our bathrooms and toilets and vacuums and mops the floors. She dusts when necessary.

Each day after that I follow Sylvia's Lists and then when the cleaner comes, I get her to do one task in the zone FlyLady is in at that time. Eventually those detailed lists get done too.

I have been following these cleaning schedules for years and our home can be company in 30 minutes.. and with our first house inspection being a resounding success last week, we can see it's working.

As I said, it's a successful plan and I am definitely bringing FlyLady with me! 

We rarely get any validation

 

Those of us who suffer from fibromyalgia often have little sympathy or even care from a lot of people.

Most people haven't even heard of it and most who even have, often believe it is not a serious syndrome to suffer from.

They don't realise that fibro is in fact all encompassing to the afflicted person and has the potential to dictate how we live.

Not only does fibromyalgia dictate our physical life, but our social, mental and even spiritual life. The person who states that it does not have a great impact on their life has not experienced a full blown fibromyalgia flare.

It is a sad syndrome as it has very few visible symptoms and people imply that we are faking it.

The only thing we fake is feeling better than what we do. We rarely get any validation.

It is what it is

 

So while I was still asleep, just after sunrise, Chris took some photos of our back garden.

He told me there were about 40 corellas eating the birdseed and meat scraps from dinner that I threw out after dinner.

Later on some rosellas joined them and after they left, the sparrows came down. Our place is like an airport.

Later on our cleaner from the Aged Care Provider is coming for a couple of hours and I will be straightening up the kitchen and loading the dishwasher as soon as I finish talking to you.

The washer's already going as I am washing some bedding for her to change the beds today. Of course, I will be using my dryer.

With fibromyalgia and polymyalgia rheumatica, I always use it. I have tried using my clothesline but the pain is really debilitating and I can't bear it. Like I always say, it is what it is.

There's plenty that I do.

As you may recall, I have help in housekeeping via the Australian Aged Care Home Package. 

My home cleaning schedule ensures most things are cleaned and you would think that I have it made. But there's always more things to do to run our house.

Not included is 

• Maintenance in between weekly cleans
• Pet care and feeding our cat Xena
• Washing and folding and occasional ironing
• Menu planning
• Grocery shopping online
• Cooking
• Kitchen cleaning and dishes
• Gathering rubbish for bin collection
• Budgeting and bill paying
• Scheduling doctors visits
• Updating prescriptions and filling pill containers for the week
• Organising social events occasionally

I am very grateful for the help I get but used to feel guilty that I needed it. This is false guilt and I have since gotten over it. 

Likewise, I have gotten over the feeling that I was lazy, but of course, when I consider how much I actually do, I realise I am far from it.  As well as my hobbies and blogging, there's plenty that I do . 

 

Have a cuppa with me!

 

As you know, we have recently moved. I love this house more than all the others we have lived in.

We only have one room now that is a work in progress, but the main move is done and dusted. We couldn't be happier..

I would love to show you our new home, so come in- the kettle's on- let me show you through and then have a cuppa with me! 

Letting nothing you dismay!

  

With the continuation of my fibromyalgia flare, I have been simplifying my Christmas decorating, gift buying and so on.

Chris put a wreath on our front door and I decorated our mini Christmas tree. It sits on our coffee table measuring eighteen inches and has lights.

I have no spoons to go shopping and have done most of my Christmas gift buying online over the year. It has saved me so much energy. These days, just getting dressed is a struggle, let alone going out shopping.

Woolworths supermarkets have a delivery service for online shoppers and I take advantage of that. I have my food list for the festive season and I will be ordering from that.

Cooking wise for Christmas Day, I will be preparing  a fresh salad and some curried hard boiled eggs. The rest of our food will be pre cooked. We will be sharing a meal with family  who are all going to bring something.

Gift wrapping is not a job I enjoy and with a fibro flare in full force, I will be giving the grandchildren money.

Christmas with a chronic illness like fibromyalgia is a stressful time, but with a bit of planning, it is possible to get through and maybe even enjoy the day.

So I find myself ad libbing to the carol "God rest ye merry gentlemen!" by singing "God rest ye tired Glenny Hen!" followed by "let nothing you dismay..."

Let's resolve to make this Christmas a simple affair and enjoy the festive season as much as possible in spite of fibro. And remember- we will be making memories that will always be cherished in years to come. "Let nothing you dismay..."

This is hygge to us!

                            

 

Today my granddaughter came and put up a bible text that spoke to us.

When we were renewing our vows 7 years ago, we thought of this verse as our wedding verse as including Jesus into our marriage was important to us. The meaning of this verse is not lost on us and we know that with our threefold cord, we won't easily be broken.

Our wedding 26 years ago was in the Registry Office Melbourne and although we intended to include Jesus in our vows, we found that we weren't given the opportunity to include Him in prayer.

So at our son's wedding we slipped out of the reception room and renewed our vows in front of the Salvation Army Officers who married him. And lo and behold, after that, the chaplain mentioned this verse which was confirmation that we had heard from the LORD that this was a good thing.

Anyway, back to today... my granddaughter used her Cricut and printed these for us and put them up today. 

We both love her work and the scripture that spoke to us. Seeing it on the wall is hygge to us.  

© Glenys Robyn Hicks

And if one prevail against him, two shall withstand him; and a threefold cord is not quickly broken. Ecclesiastes 4:12