Saturday, 1 February 2025

We rarely get any validation

 

Those of us who suffer from fibromyalgia often have little sympathy or even care from a lot of people.

Most people haven't even heard of it and most who even have, often believe it is not a serious syndrome to suffer from.

They don't realise that fibro is in fact all encompassing to the afflicted person and has the potential to dictate how we live.

Not only does fibromyalgia dictate our physical life, but our social, mental and even spiritual life. The person who states that it does not have a great impact on their life has not experienced a full blown fibromyalgia flare.

It is a sad syndrome as it has very few visible symptoms and people imply that we are faking it.

The only thing we fake is feeling better than what we do. We rarely get any validation.




4 comments:

  1. I hear what your saying here Glenys as I too have FM & other chronic conditions (have done for 20 years now).
    I think the hardest thing is that it's an invisible chronic condition. Thus it makes it difficult for people to understand because we 'look okay'.

    I'm visiting from Paula's today where we're on the same page, I'm sitting at #50-53☺️.
    Blessings, Jennifer

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    1. I think this is in part why we become so adept at hiding our pain... we get tired of the negative responses when we try to enlighten "normals" about our condition... Blessings to you too, Jennifer

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  2. I pretend "I'm okay". I don't have any support except from you and blogging friends like Jennifer above. So I don't talk about how I'm feeling with the people I'm close to anymore. It's always negative and hurtful comments then I end up crying when I'm home when no one will see me. I always go to Jesus first though.
    I appreciate you sharing this with Sweet Tea & Friends this month sweet friend. 🤗

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    1. That's so sad and I know we share that pain, Paula

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