My bed's calling my name!

 

It's raining cats and dogs here and the temperature is cold. It's supposed to be summer here in Australia, but it feels like a winter's day.

After having the cooler on yesterday, in stark contrast, we have the heater on. I am so glad that I don't have to go out today.

This changeable weather is causing havoc with my fibromyalgia. It's predictable that it would. So today I have just a few tasks planned.

• Clean my kitchen
• Make our bed 
• Cook curried beef with vegetables

My fingers are throbbing with pain today, as is my coccyx. With it being broken, it is also to be expected. I may apply some heat to it later on as the cold seems to make it ache more.

I think my bones may be brittle after years of prednisolone for my polymyalgia rheumatica. Hence the break of the coccyx. Yet I can't take extra calcium because I am a chronic kidney stone maker (over 50 bilateral) My stones are calcium oxylate bathed in uric acid. I am on Zyloprim to reduce the acid.

It's a predictable start to the New Year. I have been feeling a little reprieve from fibromyalgia pain and then- boom! inclement weather has blown me away again!

So I best get off my computer and start on the dishes. I can see a nana nap in my future and that's not a bad thing given the circumstances!  I can hear my bed calling my name!

New Year's ponderings

Happy New Year everyone! Well, it's been 2 years today since I started this blog. It was just after giving up the nomadic lifestyle in our RV and moving into our rented country cottage.

So like most people, I am thinking about my direction for the New Year and in particular the plans I have for this blog.

I want to share about my battle with health issues, particularly fibromyalgia and how it effects our life as homemakers. Who I call "Sacrificial Home Keepers" 

I also want to include medical events for my reference and also I want to share news du jour for us.

One of my goals in blogging here is to plan my day and list it. I will truthfully cross off that which I have managed to do and hopefully I will follow it on to the next day.

I also want to read the Bible through in a year. Well, listen to it, anyway! I listen to  it on YouTube.

Another goal is to bring my life verse, Philippians 4:8 into my life by focussing on what is good and true.

Finally, brethren, whatever things are  true, whatever things are noble, whatever things are just, whatever things are pure, whatever things are lovely, whatever things are of good report, if there is any virtue and if there is anything praiseworthy—meditate on these things.

Praying for a happy year and a safe one for you. Remember that the Bridegroom's coming for His Bride soon! Let's dwell on that and look up! 

Read the Bible  https://www.biblestudytools.com/bible-reading-plan/thematic.html

• Wash clothes and fold them
• Cook vegetable lasagna for dinner  
• Clean kitchen

Flying with the birds

 

We came home on Boxing Day from spending Christmas Eve and Day with Chris's daughter. Xena was especially glad to see us- almost as glad as she was seeing the birds coming into the back garden to feast on the remains of the nibblies platter I ordered. (I took a photo for you!)  See the kingfisher on the door mat that the wind blew over?

We had a lovely Christmas with family and it was very relaxing. So much so, that my fibromyalgia flare is lessening. I actually woke feeling refreshed and my muscles weren't feeling like they were tearing like they usually do.

It's been so long since I have had a respite from fibromyalgia flares that it felt strange. Good, but strange. Isn't it sad that one lives on the edge of agony so much that when the pain even abates just a little, you find the sensation agreeable but foreign? Such is fibromyalgia!

I received some nice presents for Christmas, but my favourite gift by far is some spoons or energy! I feel like I have won the lottery! Now if my broken tail bone would hurry up and heal, I would be rapt!

You know too how I said we have a lot of kingfishers around? Well, yesterday I was washing some dishes and I saw a kingfisher on the fence in front of me. I grabbed some offcuts of  beef that were on the chopping board from the stew I was preparing and quietly opened the back door. I pitched the meat towards it and it came down to eat it, but its mother, who was quicker flew down and carried it off, much to her baby's consternation.

She flew off with the beef dangling from her beak and her baby followed squawking in protest. I am sure she would have been a good mother and shared it with him. It made my day. I have found God often treats me with little scenes that delight me like that. I call them Love Glances. Just between Him and I...but I digress..

Having a few spoons has brightened my spirits. I have washed clothes, done dishes, made our bed, cooked lunch and prepared dinner. 

I must hold back and pace myself though or I will crash and burn and be of no use tomorrow. It's a trap that I have fallen into before. But meanwhile, I will pace and plan cautiously even though I feel like flying with the birds! 

My razzle dazzle is now frazzle.

Well, it's the day after Christmas Day, known as Boxing Day here in Australia. I have battled the Mother of All Fibro Flares the days leading up to Christmas. I should have won an Academy Award for acting the part of the festive bearer of gifts and delicious goodies whilst feeling like any second my body would fail me in a catastrophic way.

By 'catastrophic' I mean embarrassing, debilitating, humiliating and last but not least, painful. 'Embarrassing' as in losing control of my bladder, 'debilitating' as in sucking the last of my energy off my one remaining spoon, 'humiliating' as in falling asleep at the Christmas dinner table and 'painful' as in all muscles cramping and tearing as I move them.

Because on top of my fibromyalgia flare, I have broken my coccyx and cannot sit or even stand without yelping in pain. Truly I walk with the grace of a pregnant elephant, as the break in my coccyx has caused the other spinal injuries to flare and has resulted in slight bladder loss. Hence me saying that I should have won an Academy Award for acting "well"

So unless you knew me as well as Chris does, you would think that I was only as fatigued as the average woman who prepares for Christmas guests and sumptious fare and gift shopping.  I was able to feign excitement as the grandchildren opened presents and I scintillated with festive razzle dazzle.

At the end of the day as we made our way up the stairs- (groan) for bed, even my jaw was tight and sore with TMJ through smiling a lot... but it was worth it because at the end of the day, we made some lovely memories and I felt that I was living my life, not just enduring it.

Whether I stayed home or participated in what is usually a happy celebration of the birth of Christ, I would be in pain. So I decided (not for the first time) that sometimes you have to push through your comfort zone to live a satisfying life, even though you know you will pay for it the next couple of days or so. 

You can believe me when I say that I feel it already as I unpack our luggage, and I know I will pay for it tomorrow, but sometime's it is totally worth it even when broken bones and Fibromyalgia flares make anyone's scintillating razzle dazzle turn into a frazzle.

 

Today is going to be cancelled

 

I am beside myself in pain with my fibromyalgia. My muscles are feeling like they are being shredded as I move them. It is agony to extend them and typing kills me...

The weather has been inclement- very changeable with summer/winter in one day and frequent showers. It plays havoc with my fibromyalgia.

With Christmas so close, I am trying to visit family so that all the family have been seen without trying to do it all in one day, but with today's pain, I am not sure if our visit to my granddaughter is going to happen.

I am done in. Truly done in. I cannot stand the pain and need to sleep forever... yes. forever. just to escape. the. pain. and I painfully talk to you,  tapping out letters like a woodpecker. 

Driving Chris home from his heart scan yesterday has pulled every muscle in my neck, back, shoulders and arms and my legs hurt from trying to reach the pedals to drive. I cannot lift them to walk. Even my eyes hurt.

The depression and sense of failure threatens to overwhelm my consciousness: I have no friends to speak of for I only have enough emotional energy today to try to continue to exist without taking all of Chris's Tramadol as a desperate way of going on...

It's a lonely path.  However,  I just realised that I do have a friend who requires no emotion of me: my bed. Yes it's my one only true friend at the moment.  I am giving in. Today is going to be cancelled.

"Let nothing you dismay!"

With the continuation of my fibromyalgia flare, I have been simplifying my Christmas decorating, gift buying and so on.

Chris put a wreath on our front door and I decorated our mini Christmas tree. It sits on our coffee table measuring eighteen inches and has lights.

I have a couple of small nativity scenes on side tables in our living room- that is it for decorating this year.

I have no spoons to go shopping and have done most of my Christmas gift buying online over the year. It has saved me so much energy. These days, just getting dressed is a struggle, let alone going out shopping.

Woolworths supermarkets have a delivery service for online shoppers and I take advantage of that. I have my food list for the festive season and I will be ordering from that.

Cooking wise for Christmas Day, I will be preparing a trifle and bringing a store bought platter of nibblies and a slab of Coca Cola. We will be sharing a meal with family and friends who are all going to bring something.

I know I will be very tired after doing Christmas Day, so we will be staying overnight with family as the trip back home is nearly two hours. It's a long drive.

Gift wrapping is not a job I enjoy and with a fibro flare in full force, I feel even less like doing it. But my little granddaughter is coming to stay with us for the week, and she is chomping at the bit to help me. I can do with all the help I can get! 

Christmas with a chronic illness like fibromyalgia is a stressful time, but with a bit of planning, it is possible to get through and maybe even enjoy the day.

So I find myself ad libbing to the carol "God rest ye merry gentlemen!" by singing "God rest ye tired Glenny Hen!" followed by "let nothing you dismay..."

Let's resolve to make this Christmas a simple affair and enjoy the festive season as much as possible in spite of fibro. And remember- we will be making memories that will always be cherished in years to come. "Let nothing you dismay..."

 

While the lights were off

 Yesterday the power company interrupted our area's power supply to do some works. It was a beautiful day so we decided to just go for a drive.

We ended up in a lovely seaside town called Paynesville. It was a long drive, and I had fallen asleep on the long stretch of freeway as my fibromyalgia was flaring badly. 

The sun was warm on my sore muscles but still too warm to sit out under it, so we parked under the shade of a tree and ate some fish and chips.

The water was quite blue with frothy white capped waves and some black swans floated by, buoyed up repeatedly in them as they searched for their own lunch. It was easy to see how they caught their meal under the water, plunging their long necks under the sea.

The water was maybe only a few feet from our car and it was very soothing to hear the rhythmic pounding against the brick sea break...

The sun shone warmly, our tummies were full and there was a long drive home, so we cranked back our seats and soon were carried to the arms of Morpheus, which wasn't an unwelcome experience, especially as Chris was tired from the long drive and still not feeling the best- and me with my fibro pain and fatigue.

We woke after about a half hour as a dog barked excitedly on his seaside walk. We lingered a bit longer, enjoying the sea and watching a sail boat tacking and slipping into the marina.

Before going home, I walked to the toilet block to be greeted by three black swans and a grey cygnet  drinking from a fresh water spigot and bowl. They were unconcerned as I walked past them and just continued drinking. When I came back out, they were waddling back towards the sea, their barrelled bodies and long necks looking too heavy for their spindly webbed legs...

Continuing on home, taking it slowly, I received a text from our electricity service provider telling us the power had been restored to our homes. We knew it would be back on by the time we got home. That was the plan! 

The house was hot when we got back in the evening, so we opened it up, made a cup of tea,  and fell asleep together on the couch in front of the TV.

The day had been very pleasant, far more so than if we had just stayed home, trying to cope with fibro pain and Chris's shoulder pain. We were glad we had a diversion from our ills and decided to take our little trip to the seaside while the lights were off.

A welcome break

 

So yesterday, just after talking about kookaburras being prolific here, I was washing the dishes at my sink, when a baby kookaburra burst out laughing on my back fence.

As it turned out, his Mum wasn't far away, joining him in a chorus of laughter from my clothesline. By the time I grabbed my phone to record this for you, they had disappeared.

We have a very good feeding ground with abundant water and food in our back garden which has meant a lot of breeding goes on here. We love it.

These agapanthus plants have just blossomed and make a beautiful display in the backyard as well as at my kitchen window.  Some are white, but most are deep blue which is my favourite.

My fibromyalgia is so bad today with the inclement weather. Even my fingers are aching. I am just waiting for my pain killers to work. Not that they do much.

On today's to do list is washing and dishes. So far I have done two loads of washing- dried in the dryer and folded and put away by Chris. I usually do a load a day, but Chris's site where he had an abcess removed bled under the shower yesterday and I had to call an ambulance.

While we were waiting for them, I rolled a clean towel up and we applied pressure to the wound. There was a good deal of blood and when we transferred him to our bed to look at the wound, I had to cover the bed in clean towels to protect it. Consequently I had a lot more washing to do today.

Apparently I did the right thing by applying pressure to his wound and by the time the ambulance got here, the heavy bleeding had stopped. He didn't require going to hospital, thank goodness. But it did give us both a fright.

Even though I am mindful of the amount of electricity using the dryer is costing us, I find when my fibromyalgia is bad that it is actually worth it. In comfort and spoons, money sometimes has to be spent.

My bed is clean but unmade today as I really think I will have to give in to my pain and fatigue and take a nana nap later.

Dinner is farmhouse chicken in the slow cooker. I am so grateful for my hand maidens on days like today.

I am hoping to see the baby kookaburra with his mum again today.  They are always welcome at our place and were a lovely break from the dramas of the morning...

Fibro is the pits!

Some Christmas presents have come early thanks to family who are impatient for Christmas and so today Chris hung my hanging baskets and kookaburra wall ornament up for me.

We have been getting kookaburras by the bus load in our back garden and when I saw this ceramic one, I wanted him for my front porch.

This has given the house more kerbside appeal, and I think the kookaburra is very handsome.

I am psyching myself up to go pick up my grocery order I placed online. It's one of those days where fibromyalgia has reared its ugly head in the form of excruciating muscle pain in my arms and neck.

We will be having a frozen dinner tonight as we had a big lunch. To be honest, I just want to go to bed but that can't happen until after the grocery pick up.

The rain is bucketing down which perhaps accounts for the extra muscle pain. The weather always effects my fibromyalgia....

Better get on with it and rest up afterwards. Fibro is the pits! 

A restful reward

 

With the weather warming up, the fabulous bird life has returned from their migration up north. Every day there's a wide variety of minors, parrots, cockatoos, mudlarks, magpies, rosellas and corellas and kookaburras. And of course, there's crows and their cousins, pied corrowongs.

We keep the bird feeder stacked with seed and we also throw our scraps to them and they literally wait for us. In fact, no sooner is that back sliding door opened, than the magpies alight to snatch away the bread we've thrown. They are almost tame and even knock on the door for us to feed them.

This is so restful and when my fibromyalgia is flaring, I often lay on the couch and watch them. 

Lately, my fibromyalgia has been bad and even though I need to rest during the day, I don't necessarily need or want to be in bed, so I have found bird watching to be something I look forward to. Obviously, if I fall asleep, it doesn't matter. But feeding and watching the birds has a calming effect on me and I love it.

Today my to do list consists of washing a couple of loads of clothes and doing the dishes. I didn't get them done last night and they haven't miraculously disappeared. No, they are waiting patiently for my attention. 

With muscles cramping and spoons all used- obviously part of those waiting to be washed- I am meting out my limited energy with a zeal reserved only for survival these days.

I best get it done, even if it is in short bursts of energy. Eventually they will disappear and I have the birds to watch and amuse me as a reward afterwards.