Hopefully it will work

So I have noticed that even on a rare good day with my fibromyalgia, I still have a dip in energy by 3 or 4pm. Usually that's my time to start preparing dinner. I simply run out of spoons.

Because I don't want to make eating frozen dinners the norm, I decided to try a new plan. I am going to cook a few weeks to a month ahead and freeze the meals.

Any day that I find myself having enough spoons, I will cook a few meals at the same time and gradually build this up to a month of meals in advance.

I know it's going to take a lot of planning, but I think in the end it will be worth it. I actually started yesterday.

Firstly, I went through my fridges and freezers and grouped meats together. Yesterday I made 4 meals each honey chicken with vegetables, potatoes and gravy, then another 2 meals of Mexican chicken with rice. Today I am going to bake the chicken rissoles and kievs and add mashed potato and greens.

The next day, God willing- and spoons available, I am going to cook some stews with a lot of vegetables, using up my pork and beef steaks. 

On the next Spoon Friendly Day, I plan to make up 6 meals with my sausages. I find my slow cookers- I have 3 of them, so handy plus they don't heat the kitchen up like the oven. We are in our summer at the moment.

I am not sure if I can freeze baked potatoes and bacon successfully, but if I can I will do that for lunches.

We will still be having salads with our meals but I buy the packet salads that are already cut and washed, and that not only saves on spoons but helps me with my arthritic hands.

I know this way is not a new thing to most people, but it is something new to me. Hopefully it will work. 

We live in a fallen world

 I have tried not to dwell on my illnesses these days, but still find that I have to remember to do this:

Accepting that one's life is going to be difficult due to ongoing illness makes for a happier life. When the chronically ill person decides to give it to God, and to cling to Him instead of succumbing to false guilt, life takes on a normality in what many would see as anything but. It is a surrender, if you will.

Suffering does not make us second-class Christians, as some false teachings would purport. Nor does it mean we are faithless or aren't reading our Bibles or standing on the promises of God regarding healing.

Furthermore, being ill does not check us out of God's watchful Eye of concern, or mean that He is an uncompassionate God. No, we all are subject to frailties and problems in the flesh because we live in a fallen world... we have not been singled out to suffer...

God has given us things to do in our suffering and it is important that we stay close to Him and continue to read the Word and pray. It is not that God has moved, when He feels far away during a flare or illness, but our emotions are also hurting as a result of our condition.

It is important to pray that God heal us, and to ask the Church to anoint us with oil according to the Scriptures... It is essential to our emotional and spiritual health to stay in the faith and believe that God can heal us, but to pray for strength until- or even IF it is His will to do so.

I know that should/when another flare comes for me that I will have to cling to Jesus and reread what I have written here (for I write it for myself as well as you). I will need to surrender this next painful chapter of my life, knowing that God will still be there for me.

Surrendering our pain and our life to God is the only thing we can do.... meanwhile, I thank Him for the few days of respite..

Suffering is not our fault, but is because we live in a fallen world.

© Glenys Robyn Hicks

Beloved, I pray that you may prosper in all things and be in health, just as your soul prospers. 3 John 1:2

Normally abnormal

We chronically ill women try so hard to do "normal" things. Like look well. Be cheerful. Be patient. Kind. Hospitable. Our family and marriage are our first priority after God. We try so hard to spin our wheel not fast- but at a "normal" pace. 

By "normal", we compare ourselves to those who do not suffer from chronic illness and pain. Or are disabled. We are very careful to keep serving our family but sometimes with the illness that afflicts us: we fail. This often gets to us and causes us to sink into depression. 

Being unable to process that we simply can't act as "normals", we often berate ourselves and sink into the Pit of Despair. We are often judged by "normal" standards, as we simply cannot attend certain social functions like before. If we do, the pain and effort can make us tense and we can make us appear moody unsociable grumps aka the death head at the feast. 

If only "normals" would realise that we are pushing ourselves every day to live a life that not even closely is "normal" like in the days before our health failed. We get so adept at doing this, that we have become quite good at wearing masks to cover the Mask Of Pain. Hence the appearance of being in a mood. 

My fibromyalgia and other health issues have now made it impossible for me to disguise, and I have learned to acknowledge this to people and tell them in advance that my attendance or action or whatever is totally subject to how I am on any given day. 

Basically, I have had to pander to angina, spinal and knee problems, fibromyalgia, polymyalgia rheumatica, and submit to tyrannical spoons by being totally flexible about my appointments and so on. 

People may still misjudge me but that is not my problem. I just pray that the LORD will allow them to see that I am not lazy or unsociable, but am just a chronically ill woman who finds just breathing some days enough effort. 

The LORD knows I am not well, but people take a lot more convincing. I am normally abnormal.   

Put on therefore, as the elect of God, holy and beloved, bowels of mercies, kindness, humbleness of mind, meekness, longsuffering; Colossians 3:12

My eternal quest

 

I slept well last night but still had no spoons to speak of. After a morning of minimal chores, I sat down next to Chris to watch the birds coming to eat the food I had thrown out for them.

Because of my heart failure, my feet and legs are up like balloons and Chris rubs them for me to help move the fluid up towards my heart. With neuropathy from my diabetes, he rubs my toes to move the blood around and help the circulation. It is heavenly.

Suddenly, I heard sonorous sounds that woke me up: to my horror, it was me snoring! Chris just laughed when he saw that I had woken myself up and suggested I try to get some more sleep before lunch. But the moment was lost and I got up and made some grilled toasties for our lunch.

I soaked the few dishes in hot soapy water, removed a small leg of lamb from the freezer, did some computer work and fell asleep at the screen. So I went for a nana nap as that's the only thing I can do with a fibromyalgia flare.

After I napped, I put the lamb on to roast and completed the dishwashing. We ate dinner and Chris cleared up the kitchen. We took our night medications and Chris watched TV while I blogged.

And so, here I sit, talking to you and longing for my bed again. I had no joy today finding some spoons and it may well be that tomorrow I will be pursuing my search again- it is my eternal quest.

Our little haven

 

So yesterday was a day of horrible fibromyalgia pain and fatigue. I felt a little down so I came to my couch and sat next to Chris for a cuddle and rest. 

We love feeding the birds that come into our back garden and all through the day, our garden is like an airport. Birds of all types come to dine and drink and it is so restful and fun to watch them.

They have their own little antics and natures and they can be quite amusing. And apart from watching their different natures and antics they have something else that we find very attractive: they have babies.

It's such fun to watch the mothers feeding their babies and to watch the babies venture further and further from her as they learn to feed themselves. They fly but are still juvenile and yesterday their mothers were distancing themselves from their chicks and refusing to feed them, much to their annoyance. 

The magpie juveniles are especially raucous and squawk even with food in their mouth. They are almost always feeding. The minor bird mummy also is weaning her chicks from her and as soon as she moves away, they follow like the duckling family juveniles do. So fun to watch.

But by far, my favourite birds are the Kingfishers which have also had babies. Whilst laying on the couch, I can see outside and I was delighted to see a mother Kingfisher with one of her three babies on our garden swing.

They were watching the porch which was covered in birdseed for the galahs and rosellas. I had thrown out some cut up luncheon meat, and they were waiting for the magpies to vacate the porch so that they could dine. Kingfishers are shy and besides, magpies are three times their size. So they wait.

It is the season for little white cabbage moths too. They are flying around the agapanthus plants and I guess they are mating because they seem to be in pairs. As are the pigeons that come for the seed.

There are three that regularly call in and partake of the parrot seed on the ground. There's a little female who just wants to eat, but there also is an amorous male who has romance on his mind. He pursues her constantly and hopes to make her his by dancing for her. 

He fans out his tail feathers and hops towards her, then takes a few steps back. He repeats this courting gesture until she tires of him and runs a few feet away. But he is insistent and pursues her over and over again. I hope that he wins her heart as it is such fun to  watch the young birds as they leave the nest under their mothers supervision.

We have a bird bath/feeder in the back garden which we used to fill with seed, but now with torn meniscuses in both knees, I cannot get down the steps to fill it, so they get fed from the back sliding glass door. I just toss the food onto the back porch. They don't care where it is. 

They are quite used to me now and I have them almost eating out of my hand. So much so that as soon as I open the door, they come flying in to the garden from all directions, calling each other.

We have water in the bird feeder and in a plastic container in front of the steps. They bathe and drink and sing and they enjoy our back garden as much as we do.

It's a lovely place to recoup one's spoons during a fibromyalgia flare. The daily scenes are so peaceful and we love our little haven and we know the birds think of it as their haven as well. Their constant visits and frequent broods of chicks speaks of a place of plentiful food, water and safety.

We are grateful God lead us to this little country town- it is a gift from Him: our little haven

You can say that again

So today we have shopped online but most of the food we ordered was unavailable. So we took a trip to Aldi  and managed to get  meat,  chicken and cat food.  Most products are being limited now.  There are distribution shortages of staff due to Covid. 

There's a four hour queue to get tested or one can do a Rapid Antigen Test at home, but there's a shortage of tests and it's very difficult to get one. People who can't get tested are isolating and missing out on work just in case they are positive.

Our Prime Minister suggested that as most Australians will test positive soon so he told us to make sure we have paracetamol aka Panadol on hand so that we can manage symptoms at home. (Lotsa luck with that one!) So people went out and stripped all pharmacies and supermarkets of all brands of paracetamol. 

To top it all off for me is that once again, my antidepressants haven't made it off the wharves. They don't know when they will be available again. So it's lucky that I have extra Panadol on hand for my fibromyalgia and an extra box of antidepressants. I am so grateful to the Proverbs 31 wife in scripture who was always prepared and laughs at the time to come. 

A past Prime Minister of ours once famously quoted that life wasn't meant to be easy. You can say that again. 

Through troubled waters to Home

We   are  now  into  2022 and   I  was  considering  how  fearful  some  of us  are  as  the   New  Year approached  and I was  comforted  to realise  that God has got this!   There  is no need to fear.

How can we have the peace we need as we face yet another year of uncertain times? By remembering Who is our Backstop, our Guide and our Comforter..

Jesus has brought us through every day until now... He guides us through each day through His Holy Spirit... He comforts us as we travel through this world on our way  Home with Him. 

    He is able. 

         He is. 

              And was. 

                 And will be....

Emmanuel- 

      God with us. 

          Not far from us. 

             Here. 

                 Now. 

A very present help in trouble...

Let  us join our hearts  and hands united in faith,  and not fear the future. We are in very good Hands... and  may  God give us His Peace  and guide us  through troubled  waters to  Home....

© Glenys Robyn Hicks

I am Alpha and Omega, the beginning and the ending, saith the Lord, which is, and which was, and which is to come, the Almighty. Revelation 1:8

If you are not sure where your eternal Home will be, please read this link. Don't go another day without assurance and peace that comes with salvation...

I just have to pursue it.

 So with a horrid year last year, I was quite happy to see the end of it. I messaged my friends and family and wished them a happy new year, then turned my phone off and went to bed.

It was only 11 o'clock, but I was exhausted and had no spoons left. The weather was really warm and I decided to forgo my electric blanket. With the help of a Tramadol, I managed to quell my fibro and back pain and soon fell asleep.

I woke up at 2am and realised that it was January 1st. Not that it makes much difference what year or day it is- for Chris and I one day is much the same as another. We stay home mostly.

This year, I am training myself to live in the moment. That's all we are promised anyway. I have worried about what lies ahead this new year, but I am going to stop thinking too far ahead.

I plan to read more of the Bible and saturate myself in uplifting read and videos. I am going to try to live with hope and not dwell on negatives.

The eternal optimist, I am going to believe that I am going to have less fibro pain and get more done. I mean, if one thinks only of horrible things it will ensure that I just exist and don't live.

I don't want to endure next year, but enjoy it. It's a big ask, but it is possible. I tell myself it's possible to live an abundantly happy life in spite of pain. I just have to pursue it. 

But by the grace of God, go I

As you probably know, I suffer from a myriad of health issues from life threatening to annoying. Each day is a constant struggle to keep my home and look after Chris and myself and our little white cat, Xena.

Recently, I read an article about chronically ill bloggers who use the internet to feed their latent Munchausen's disease  The writer who obviously is not suffering an invisible chronic illness, concludes- falsely that we are feeding a desire for attention and sympathy.

This writer had no medical expertise and spoke with the confidence and freedom of a healthy person who knows nothing of the pain every day brings to us who aren't so blessed. It made me both angry and sad.

Anyone who manages to carry on a relatively "normal" life, sacrificing their comfort to serve and love those closest to them, know that the only thing we really desire is compassion. We rarely take delight in our symptoms, in fact the majority of us try very hard to appear as a healthy person in spite of being in pain and discomfort.

Goodness knows, we suffer so much with people judging us unkindly and this simply serves to push us further into depression and loneliness. Especially when our illness is invisible, like fibromyalgia.

Many of us chronically ill people are housebound for the most part, and therefore we feel a certain amount of loneliness and disjointment from society. We simply want to be respected and allowed to simply exist without the stigma of mental disease in the form of Munchausen's.

We bloggers of chronic illness do so because we know the feeling of disenfranchisement in a social sense. We are stripped of our right to live in peace and freedom from bullying ignorant people. 

Writing for those who suffer like we do helps us to reach out to people who would understand the psychological insulation and the sting of being misjudged and categorised as a malingering attention seeker. 

Whilst it is true that we have the LORD to love us unconditionally, it nevertheless hurts us that people are so cruel and instrumental in adding ridiculous labels to us that demoralise us even further.

Chronic illness and pain is a horrid  way to live and those who cast stones at us would do well to thank God that they aren't so afflicted. God has not chosen them to walk the lonely path of chronic illness and they also would do well to remember "but by the grace of God, go I" 

© Glenys Robyn Hicks

Beloved, I pray that you may prosper in all things and be in health, just as your soul prospers. 3 John 1:2

They're silently waiting for me

Anyone who follows this blog knows that I struggle with washing the dishes. It is a battle that is fought and lost on two fronts: emotional and physical.

The emotional part is owing to the fact that I don't have a dishwasher and the dishes multiply like rabbits and are a continual eye sore on the side of the sink. 

In spite of cleaning them up and being rewarded by not only an empty sink and benches and of course, clean dishes- I find the complete futility of feeling done with them is disheartening.

A terrible procrastinator, I promise myself that I will keep up with them, but illness laughs as it assails me with yet another flare, and they remain on the bench mocking me for being  defeated yet again.

So here comes the other side of this domestic dilemma: being completely out of spoons and suffering from broken knees and collapsing spine. I simply cannot stand.

And of course that horridly wicked ruler, Fibromyalgia ensures that I am in an almost constant flare, and it is the cherry on the top of my cocktail of pain. So not only is my physical health attacked, but also my mental health. It's depressing.

I know I could ask Chris for help, but he has heart failure and battles his own health issues. It has always been me who washes the dishes, and then he will usually come and dry them and put them away. I am grateful.

Until I can gather some spoons I will sit and wait for my Tramadol to work. I plan to clear the dishes up, cook some steak and vegetables for dinner tonight and rest. That's the plan. Meanwhile, they're silently waiting for me.