© Glenys Robyn Hicks
And if one prevail against him, two shall withstand him; and a threefold cord is not quickly broken. Ecclesiastes 4:12
© Glenys Robyn Hicks
And if one prevail against him, two shall withstand him; and a threefold cord is not quickly broken. Ecclesiastes 4:12
Do you remember reading that I was disappointed because the bath lift chair I bought could not fit under the bath tap? I had to sell it..
Well today my Occupational Therapist from my Aged Care Package came for a visit to our new home and brought the mobility gentleman with her. He had a lift chair with him and we did a dry run... and it went very well.
The bathroom tap did not get caught in my leg and I was able to lower the seat right to the bottom of the bath. One has been ordered for me and I am very happy.
I am also happy because I have been told that I can get a mobility scooter in the near future which is cause for celebration... very happy to be getting one, but more excited about the bath lift...
As I said a couple of years ago, I can hardly wait!
As you probably know, we have recently moved again. It is almost complete with just a few boxes to unpack.
We are so very tired and I have exacerbated fibromyalgia and angina pain.
We love this new house and is still quite large like the one we have just left. But honestly, I really hope we dont have to move again because I feel quite done in.
Most things now have found a new home, but as soon as I recover from the move, I will declutter and organise our things better.
So I am finding myself falling asleep at the computer or feeling really razzed, and I have had to have a nana nap during the day or I won't have enough spoons to cook dinner...
And speaking of dinner, I have been making use of my slow cooker to help me when I haven't got any spoons. It has helped take the pressure off me.
Lately having no spoons is my new normal so I have had to rest and pace myself.
Something this move has taught me is to be patient. I have had to learn to wait until others are able to help me and my new mantra is "Rome wasn't built in a day!"
My mother was a good homemaker. Some of my earliest memories were of her hanging out washing on her long line held up by props. She used to boil up the copper and honestly, she had the whitest washing ever. She used Rinso to wash the clothes and Lux Flakes for delicates.
As you probably know, my twin sister is ill and has been living with us for the last five months.
She has now moved into her own new rented home and my son, her carer has moved in with her. She's in need of a carer.
Helping her has left both Chris and I spoonless and that condition is not going to improve any time soon. We have now found a new rented home two minutes away from them and the move is happening in a few weeks.
Although we feel the effort will be worth it, finding the spoons to move is a hit or miss thing. I must force myself to keep going.
I am suffering from an expected fibromyalgia flare, my knees are hurting and I cannot move my neck thanks to polymyalgia rheumatica.
I am happy to be moving but not so good with the pain. But I pace myself taking frequent breaks and drinking endless cups of tea.
My kettle is constantly boiling for a cuppa and it is the first thing I do each day. I join millions of others in enjoying to lifting qualities of coffee or tea to start each day.
Like I read in a book, "First we have coffee!", it has proven to be true for me, only my lifting beverage is tea!
As a woman who suffers from chronic illness and pain through fibromyalgia, I often succumb to bouts of depression. I have a few tips on overcoming it.
First and foremost, start your day in prayer. Ask God for the strength to face the day and play worship music to lift your spirit.
Try to be in the moment and take one day at a time. That's all we can tackle otherwise, the sense of failure can be overwhelming. We aren't meant to take it on all at once.
If you try to just focus on the next task at hand and not dwell on the future, it will help your attitude to realise that you have accomplished something. It will then snowball as you progress through the day.
With chronic illness, I set myself just one or two daily goals that are achievable: for me it is wash the dishes and put away the clean clothes. I only focus on those goals that I know are achievable and if at the end of the day, they are done, then I feel a sense of accomplishment instead of defeat.
Nothing depresses me more than a feeling that I have achieved nothing all day. I don't worry that others may say "for goodness sake, it's only washing dishes..." for us in the throes of illness, be it mental or physical- it's a big deal. Delight yourself in small victories.
I find that in setting small goals it knocks the cloud of gloom off its perch and makes me hopeful that I will be able to rise above the depression. Give yourself a high five and see that any job you do is a step in the right direction. It still blesses your family and serves the LORD.
I think when we are depressed and/or in pain, the desire to go Home to the LORD is strong. After all, we are tired of living in a world of pain and we look forward to our redemption. But in saying that, we still have a work to do until that time.
As FlyLady says, baby steps. But just taking baby steps lead us out of our rut and it is that first baby step that will hasten our healing of depression and sense of failure.
Sufficient to the day is the evil thereof. Matthew 6:34
With a large family of seven to wash for, I usually washed three loads of laundry daily and hung it out.
So many years ago, and a time when the days were long but the years were short. Now mostly a distant memory. I now longer can hang my clothes out.
Fibromyalgia and polymyalgia rheumatica has put paid to hanging the washing on the line. Flexing my sore muscles is so painful these days. I am forced to use the dryer.
I really loved the smell of line dried clothes and delighted in this painting with the children in the yard.
Hanging the clothes out to me is synonymous with family life. It speaks of service to family, activity and life.
Globally, I think we can all concede that washing on the line is a common thread that unites the human family.
No, I knew from 20 years experience that my respite from pain would be short-lived and it was. But because of planning for it, it hasn't seen me in a total mess, overwhelmed with meals and mess.
I had my dishwasher and I kept up with the dishes. I did a load of washing a day and I dried it in the dryer. But my greatest life saver was my frozen dinners I have in the freezer. They saved the day.
In all honesty, though I haven't kept the house running smoothly all by myself. I have had to enlist Chris to help me with stacking and unstacking the dishwasher and I asked him to put his own clean clothes away as soon as they came out of the dryer.
He has been really good actually- a blessing really. He also encourages me to take a nana nap, and feeling so fatigued and sore, I am so glad. We all need a hand when we are feeling so wretched and when you got no spoons everyone has to help!
Once I passed menopause, I thought I would be free of hot flushes and sweaty nights, waking up in a bed of sweat and feeling nauseous.
However, fate was not kind to me and as soon as I finished the menopause, I became ill with fibromyalgia.
To be honest, I am never at a normal temperature. On blood thinners for heart stents and antiphospholipid syndrome (or sticky blood), I feel the cold keenly and on any given day while everyone in my home wants to turn the heating off or down, I am there pleading my case for more heat.
Ten minutes after the heat is put up for my benefit, I have to turn it off again. I feel sick- I am sweaty and unwell.
About an hour before I go to bed, I turn my electric blanket on as I feel the cold so much. I sink into the warmth as it soothes my fibro muscle and spinal pain. A couple of hours later, I wake, sweaty, nauseous and out of sorts.
I strip the minkie blankets off but I feel cold so I put some back. Five minutes later, I am hot again and I stick one leg out of the blankets and fall sleep again.
This cycle of hot/cold repeats through the night. I am turning like a rotisserie chicken! Thanks to fibro, my thermostat's broken.
WEEK - MEL-6/9/2024
KITCHEN
MY BED AND CHRIS' BED
TOILETS/ ENSUITE
FLOORS
KITCHEN
GUEST BED AND MY BED
TOILETS/ENSUITE
FLOORS
WEEK - MEL- 20/9/2024
KITCHEN
GUEST BED AND MY BED
TOILETS / SHOWER
FLOORS
WEEK - TANYA- 27/9/2024
KITCHEN
GUEST BED AND MY BED
TOILETS / SHOWER
FLOORS
As you know, we have my sister here with us until she finds a new rented home. She's been here for 8 weeks now and I have been taking care of her.
My twin, like me, has fibromyalgia, heart and lung problems and has recently had RSV. It went through our house.
But until I am diagnosed, she is alone in suffering with Lupus. There's a question mark over whether or not I have it too. We are mirror image identical twins.
So suffice it to say, I have been looking after her and part of that is making sure she eats well.
As I told you in a previous post nutrition can extend our life and certainly makes for a more pleasurable life. So I made sure my sister was eating lots of vegetables and fruits and red meat at least 3 times a week.
At her last doctors visit before moving in with us, she was told that the Lupus had made her very anemic so much so that she needed an iron infusion. She didn't cook much when she did cook... and sometimes her diet was not very nutritious.
So, as I mentioned she's been with us for two months and her new doctor- (our doctor) ordered baseline blood tests. The results showed her iron has improved and she no longer needs an iron infusion.
This reinforced my belief that good plain homemade meals made from scratch with lots of vegetables and fruits, help extend one's life. The proof is there in the blood tests, for the life is in the blood.
By eating well and staying well nourished, life can be made more enjoyable and prolonged. All it takes is a balanced diet and a little thought in purchasing our food. It doesn't take much!
It's a sad fact that lately Chris and I wake up each morning feeling exhausted. We can sleep for 8 hours or sometimes 9 and still feel tired.
We ache all over and carry the "just woken up" brain fog all day. Our morning routine consists of bloods to check the blood sugar levels and then an insulin injection for Chris followed by a hearty breakfast of pills swallowed down with a nice cup of tea.
Our love language is spoons and our song of lamentation is that we don't have any or that it won't be sufficient for the day's activities. We live just to take another nana or grandpa nap.
Of course I have a double whammy of woes, with my diabetes and fibromyalgia. The pain never departs except for the brief few minutes Chris rubs my feet. I have the combined effects of peripheral neuropathy, in my toes especially and the foot pain that comes with fibro.
With ongoing chronic fatigue, I am certain to fall sleep just 5 minutes into my foot rub. I joke and tell Chris that these days it's better than sex!... only between us- I think it's true! I mean when everything hurts and it's hard to breathe with angina and pulmonary hypertension, foot rubs now are the only pleasure in life that steadies my breathing and still relaxes me..
And talking of breathing, that RSV flu type virus is still hanging around. Not as bad, but bad enough to have me keep my asthma puffers strategically placed at my dining table, computer desk and bedside. It too drains my energy and adds to the joy of a fibromyalgia flare.
Statistics show that more women have fibromyalgia than men, but I often wonder if Chris' chronic fatigue and constant body pains are indeed fibro... there's no particular test to find out, but it wouldn't surprise me at all...
Meanwhile, he lives the horrible life of a fibromite, but at least he doesn't have to validate himself with me. We walk that path together...
These last few weeks have been difficult to say the least. We have been moving my sister in here until she finds a new home for rent. With fibromyalgia flaring, the spoons have not even been seen.
To top it off, RSV has been in our house and we have been knocked down like flies.With Chris, Julie and I all suffering from heart and lung problems, RSV hit us hard.
I caught it off my great-granddaughter when she came for a visit a week before she developed symptoms. Being a sharing person, she passed it on to her mother, Chris and Julie then me.
Chris only had symptoms like a bad cold and was ill for about a week, I was very ill with it lasting two weeks and Julie was sickest of all with hers lasting three weeks. Julie has lupus so it played havoc with her health.
This is not a virus to be played with. It honestly nearly carried Julie and I off. Julie told me it was worse than when she had Covid. I can only attest that it made me sicker than when I had pneumonia. I have never had Covid, and I tested myself at my sickest point. It was negative.
Now I am feeling a bit better but it has left me very exhausted and requiring frequent rests and/or nana naps. Maybe it's that and my fibromyalgia flaring. It was hard work moving my sister..
So to today: I am slowing trying to get my home into order. My floors need vaccuuming and mopping. My toilets are in need of a good clean and I need to conquer Dish City and Mt Laundry.
I will get there but not any time soon.