It gets very tiresome!

Over the last few days, I have had a cancer scare with someone dear to me, and my fibromyalgia has flared and with the pain comes that most embarrassing symptom of all: fibro fog.

I was talking on the phone to my sister, and was telling her something that had happened, but I never got to finish what I was saying. I got distracted mid-sentence and never finished the tale.

Unsure of her knowing of whom I was speaking, I digressed in a discussion on who he was, and when I tried to remember the point of discussion- I simply forgot.

Being that my sister also suffers from fibromyalgia, she understood-otherwise it would have been totally embarrassing. But there have been times in the past when I simply can't think of a word and flounder.

Like the time I was at the doctor's and was telling him something important. I simply forgot a word and there was a pregnant pause as I floundered to find it- embarrassment made it more difficult to find. He just looked over his glasses at me until I ventured to say that my fibro was flaring and this isn't usual for me. I am usually verbose.

Many times during a fibro flare, I can be reading something and it just doesn't sink in. I reread it and reread it before it is clear what I have just read. Or I can be paying the bills and have to check upteen times before I pay it to make sure I have the correct amount and I must check again to whom I am paying said correct amount. 

This coupled with the physical pain and fatigue make for a very challenging life during a fibro flare. It has the propensity to sap you of your self confidence. It can make you doubt your sanity. It can scare you to death as you worry about your competence to even run your own life at times.

I would not wish this on anyone: the pain. the fatigue. the confusion. the sapping of confidence. the insomnia. the judgments.

Many times I cannot attend church or read my Bible and I sense that there are some who think I am backsliding. Far from it. I am simply too exhausted.

All these things are a Fibromite's lot and no one seems to understand if we give in to a rare moment of snappiness or pique. It's just that the whole fibro thing with pain 24/7 gets one over it very quicky and it gets very tiresome! 

Today's to do list:

• Washing
• Clean my kitchen
• Cook chicken risotto for dinner

 

We give You thanks

"We Give You Thanks"

Lord, as we gather at this table
May we be truly grateful
For the bounty You have given us.
We thank you for the earth and rain,
The good harvest and the wholesome grain
That went into our daily bread
And kept the stock that kept us fed.
Thank you for the hands that cooked and baked,
And for the water that our thirst slaked.
Please accept our thanks as we honour You
For Your goodness in giving us this food.

© Glenys Robyn Hicks

By him therefore let us offer the sacrifice of praise to God continually, that is, the fruit of [our] lips giving thanks to his name. Hebrews 13:15

It still is what it is!

You may remember me telling you that I bought a bath chair lift so that I can have a bath. I was so overjoyed when it came.

Unfortunately it didn't work out for me and I only used it twice before I sold it. It came down to awkward plumbing and knees that don't work anymore. 

To say I was disappointed would be an understatement, not only disappointment that I couldn't bathe but also for the fact that it cost me $870AUD.

It was still immaculate and under warranty so I decided to sell it. I did after a couple of weeks, but I sold it for only $400AUD with ebay fees of $53.90 so I didn't make much back on it. 

On the bright side though, I did find that the shower in the main bathroom has an easier accessible shower stall and better water pressure than the ensuite one. 

And speaking of showering, I have purposed to have it at night now due to my spoons being scarce with my latest fibromyalgia flare. It doesn't matter so much if I run out of spoons if I am on my way to bed anyway.

Victoria has been experiencing very wild weather with lots of rain and thunderstorms. The pain in my joints and muscles gets too much to bear at times and I find I am needing to take a Tramadol some days.

 I haven't been spending much time on the computer for this reason as Tramadol makes me feel spaced out and I can't focus to write properly. Like everything to do with fibromyalgia, it's a tough task master and a tyrant, but it is what it is! 

Right where she loves to be!

Our white cat, Xena loves being near me. She always follows me around and sleeps with me as well. I guess she's her mother's girl.

She can be a bit jealous though. When Chris comes in to say goodnight and tuck me in and he always gets greeted with "nooooo!" from her. Especially when he kisses me. For that, she always gets up and comes to me, rubbing my hand or licking it.

Whenever we sit on the couch watching TV together, Xena jumps up and wiggles her way between us. We find it endearing and amusing.

Recently we got a new desk for my study nook and there's plenty of room for her favourite daytime sleep- her igloo. So knowing how close she loves to be- usually lying over my keyboard as I try to type- I put her igloo up on the desk in the corner, very close to me. She loves it!

We both love this house and feel really nurtured here. And so does Xena- and why not?- she's right where she loves to be! 

Giving the gift of time well spent

 

As most of you who follow my blogs know, Chris and I not enjoying the best of health. We both are currently battling heart failure, diabetes and obesity brought on by the inactivity that comes with pain and age.

Gradually as the maladies make themselves more known and felt, we are aware that we probably won't make it to our 80th year.

Lately we have written a will and talked to our adult children of our final wishes. Unable to bear being apart, we have decided that we both want to be buried together, and to this end, we are currently getting information about prepaid funerals and plots of land at our local cemetery.

We have discussed Do not rescusitate orders and made our wishes known to our children. They were hesitant to talk about these matters, but we assured them that we need to sort it out, afterwhich we won't talk about it.

My stents in my heart are 15 years old and I am told I need new ones inserted, but I have refused  them as the previous 2 angiograms injured me. I simply don't want to have more surgery.  

Chris and I have made the choice that there won't be any more harmful surgeries. If I have a bad heart attack I do not want to be rescusitated.

I am ready for Jesus to either take me in the Rapture or call me Home. Either way is OK. I'm just passing through!

Chris is in really bad health with his own heart failure. I am aware of how little time we may have and I don't want to waste it.

So I am on the computer about an hour instead of all day. I have culled most groups etc but have not culled my friends.

Chris promised me he will update if I go Home. We just cant bear any more hospitals and tests etc- especially when they have done me harm in the past.

I am trusting the LORD instead of man and for the one who is left behind, we are giving the gift of time well spent.

© Glenys Robyn Hicks

Precious in the sight of the LORD is the death of his saints. Psalm 116:15