Wednesday 17 May 2023

Resistance is futile


Fibromyalgia is a really difficult illness/syndrome to live with. It's the most painful and yet invisible of illnesses. It is difficult to diagnose and there's no specific test for it.

It's infuriating that you can go years without a diagnosis. Especially frustrating when doctors dismiss you. Even worse if they suggest it's all in your head, when everywhere hurts so much you could cry. And do.

My diagnosis after many years of suffering and tests was clinched when my skin came up in red welts after the rheumatologist pressed on my trigger points. I have since learned that it's called dermagraphica or skin writing. 

One can never leave fibromyalgia or move away from it. One is never really out of a fibromyalgia flare as the smallest over extending of energy drags you back into another one.

Fibromyalgia brings emotional pain too as one tries to avoid looking ill but fails as the pain overrides the best of our intensive acting like a "normal"

There's no cure  and one really doesn't move on but moves through it flare by flare, day in day out, year by year.  One staggers through it. Lives it 24/7.  Endures it. 

No matter how hard we try to live a normal life, fibromyalgia accompanies us like a cloak of gloom around our shoulders. We soon learn we must accept it, for resistance is futile....

Plans for today: Today I had the lady come to clean our house and tomorrow we have a house inspection. My plans today are to keep the dishes under control and put away a few clothes from the washing today. Dinner will be pea and ham soup cooked in the slow cooker. 

Flaring badly, I see a nana nap on my horizon...



6 comments:

  1. Oh my dear friend thank you for this!
    I'm so sorry you are hurting so badly,.
    I find that as I age I hurt worse or I often wonder if it's because I'm so tired and heartbroken to be carrying this around me for so many years? Emotionally I'm worse because there is never time away from it to recover before being held under again.
    I cherish you Glenys and wish I could take this from you. All my love to you and Chris

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  2. Hi, Mona.
    Iagree that it seems harder to bear it all as we age. It certainly wears us down and as one flare subsides, only to quickly be replaced with another one, it is like constantly being overwhelmed in waves of pain and drowning in it all... Love to you and Bruce too!

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  3. Thanks for sharing. I send hugs and relief your way.

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  4. Saying a prayer for you right now.

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