Wednesday 3 August 2022
I can hardly wait!
Sunday 3 July 2022
Pain is a disability
Anyone who suffers from chronic pain knows that it precludes us from a lot of enjoyment of life. Pain makes the vicissitudes of life that much harder to bear.
Everything is exaggerated both physically and mentally, and the only thing I can do is accept that this is not my usual self, for pain changes people.
Pain disables us in many ways. from physical activity. from family life. from sex. from sleep. from patience. from social life. from functioning normally. from life generally.
The effects of pain cause us to withdraw from people and become reclusive. It makes us feel isolated and unable to really feel understood or validated. We learn to be distrustful of others.
Because chronic pain, in my case fibromyalgia, causes us so much mental as well as physical angst, we decide to retreat to our home often preferring it even if we had enough spoons to leave.
Seeing as pain is such a disabling affliction, it makes no sense to me that we are often regarded by doctors with suspicion when we request heavy duty pain relief such as opiates.
Most of us cannot get enough medication to adequately help us with our pain. We often then succumb to depression and live as recluses due to agoraphobia.
We who suffer from chronic pain know that it is a disability. Invisible and destructive. We live in the knowledge that pain is disabling.
We just wish doctors were as aware of the ongoing relentless disability called Pain.
Saturday 18 June 2022
It's a pain in the neck
Tuesday 17 May 2022
He's feeling fairly ordinary.
It's been a busy day today. I have a broken off tooth that needs to come out. We had to be at the dentist's by 8.30am and it was an hour long drive. I was being fitted in as an emergency and was warned I could be waiting for up to 2 hours to get seen.
Two hours passed by waiting and I was then told they couldn't see me today. They gave me a list of dentists I could see but it was too late to be seen today.
So we drove about an hour away to see a house that we have applied for to rent. It's so nice and the inspection is tomorrow afternoon at 5pm. I hope we are successful. We have told the landlord we are looking and he was fine.
When I got home I rang a few dentists on the list and I have an appointment midday Thursday for an extraction. My tongue is sore as the tooth is quite sharp. With my fibro flaring and TMJ, I am just about out of my tree with pain.
My twin sister and my son have Covid and continue to feel sick, but she's feeling a little better, but my son has man flu. I am so glad Chris and I haven't got it....
Monday 2 May 2022
"It is what it is!"
Sunday 1 May 2022
You just have to flex with fibro
Sunday 24 April 2022
We have gone mad!
The rheumatologist suggested to my daughter who suffers from fibromyalgia and pain post chemo, to use it as a distraction from the pain. She was one of these mind over matters kind of doctors. We were not very optimistic to be honest.
As a sufferer of not only fibromyalgia but ankylosing spondylitis, spinal canal stenosis coupled with bad arthitis and angina, I thought it may help me. It helps a little. But Tramadol would be better!
My doctor won't let me have them. Even though he knows I only take them as required for high pain days like today. He gave it to me when my second knee tore and it helped my fibro pain so much. Then he closed shop!
I know there have been many who abused pain-killers but when basic pain relief is available only with a chemist's approval such as Panadol with codeine, it makes life more difficult for the person like myself, to get any relief at all.
With fibro flaring and another episode of polymyalgia rheumatica, I have been tempted to take some of my Prednisolone, but I am worried about the side effects. I tell you truly, I am feeling desperate.
So even though you may see me playing Candy Crush or online a lot, I can honestly say that it's for medicinal purposes. I will be a Candy Crush addict any day if it will relieve the pain.
Just don't tell the do-gooders. If they think we are liable to become addicts, they'll make FB take it off their site! You fellow pain sufferers know they will. We have gone mad in our correctness!
Friday 22 April 2022
Chipping away at the stone
Tuesday 29 March 2022
Lovely stuff
Friday 25 March 2022
The only nice thing about it
Tuesday 15 February 2022
Making the most of my spoons
Friday 31 December 2021
But by the grace of God, go I
Friday 24 December 2021
Oh no, no ho ho!
Monday 20 December 2021
No mojo with fibro
Tuesday 14 December 2021
Resting my tired twinkle
Thursday 9 December 2021
Something to remember if we move.
I have arms that feel like they're made of lead today. Fibromyalgia. I did our online shop again and it's due to be delivered this afternoon. It's the easiest way for us to do it these days. I have some dishes to wash from lunch and breakfast and I will probably have a nana nap to be able to cope with cooking diner and putting the shopping away.
Lately I've been spending quite a bit of time in bed. It usually doesn't get made much for that reason. But with it looking nice yesterday for the inspection, I decided to take a snap of it. Something to remember if we move.
Wednesday 24 November 2021
Fibromyalgia is a wicked ruler.
Tuesday 9 November 2021
It changes you, man!
Friday 1 October 2021
Today was a washout.
We had an interesting day. On our way to the doctor and chemist, we found a roadblock because of the heavy flooding we've experienced these last few days. So we tried 3 other ways, only to find a police block on the third. The road has been washed away.
Our small township is cut off from travel at the moment, so we had to cancel. The receptionist got the doctor to ring us but it didn't do me much good as I was needing my blood pressure taken. More rain is forecast for the next 10 days.
My orthopaedic surgeon for my damaged knee was cancelled as well. We are quite happy to stay home with 1400 new Covid cases today in Victoria including 22 from our area. I may not reschedule as I am determined not to have surgery as hospitals are best to be avoided at the moment.
I have been shopping for extras in case of emergency, so it paid off today when we couldn't get out. I have plenty of medications in the house too. I am so glad I did some planning.
My only grumble was that we had to shower, dress and leave the house for nothing. My fibromyalgia pain is at a disabling level. I think the weather has caused a major flare.
After dinner I will be getting back in my PJ's and taking a Tramadol and curling up with my electric blanket. At least the night won't be a washout. Today certainly was.
This is what met us trying to get out of our township.